crawley

BMJ has "corrected" the Lightning Process study but has allowed its conclusions to stand, as far as I can tell. I will have more to say about this. Apparently, the authors have convinced the journal that the outcome swapping had nothing to do with the fact that the revised primary outcome had...

FOI Response from Bristol about LP Study; Correction in BJGP about MUS Tuller has received a response to his FOI request with the University of Bristol about the LP-study and has learned: The university was informed on Feb 8.2018 that the journal had raised serious questions about the study...

Trial By Error: Time to Retract the LP Study; Letter to Archives of Disease in Childhood http://www.virology.ws/2019/06/03/trial-by-error-time-to-retract-the-lp-study-letter-to-archives-of-disease-in-childhood/ 3 June 2019 By David Tuller, DrPH Let me say this directly: It is way past time...

http://www.virology.ws/2019/05/20/trial-by-error-the-lightning-process-is-effective-really/

http://www.virology.ws/2019/05/16/trial-by-error-a-plea-to-fiona-godlee-on-a-familiar-topic/

http://www.virology.ws/2019/04/29/trial-by-error-my-latest-letter-to-bristols-legal-department/

Can't actually find this paper, but the abstract has been posted at Bath and I thought it might be of interest, even though they don't really say much: https://researchportal.bath.ac.uk/en/publications/physical-activity-patterns-among-children-and-adolescents-with-mi (Edit: Open access...

My Letter to Professor Hotopf About Bristol's School Absence Study Matthew Hotopf is a professor of general medicine psychiatry at King’s College London. He served as a peer-reviewer for a study by Bristol University investigators that was published in BMJ Open in 2011. The study involved...

http://www.virology.ws/2019/03/04/trial-by-error-who-has-the-school-study-documents/

I just came across this this morning and it fills me with what I can only describe as the collywobbles. Firstly how many children with severe ME will go to the GP or hospital? Almost never. What condition will the Dr/Paediatric know what to look out for? I now need a bucket of coffee and to...

How many protocols does this harmful GET trial need exactly? There's 5 on the website now. Is Action for ME supporting this street merging with AYME? They have a clear statement against GET now. Selected GPs are now sending out letters on behalf Crawley et al for any kids aged 11+. For 16 or...

http://www.virology.ws/2019/01/31/trial-by-error-bristol-investigating-crawley-papers/

My Letter to LP Study's Senior Author I e-mailed the following letter to Professor Montgomery on Sunday evening (California time), with the subject heading “Retrospective Registration and Outcome-Swapping in Lightning Process Trial.” I cc’d Dr Nick Brown, editor-in-chief of Archives of Disease...

Wasn't sure where to put this (if anywhere): Source: Internet Interventions Preprint Date: December 23, 2018 URL: https://www.sciencedirect.com/science/article/pii/S2214782918300642 'It's not one size fits all'; the use of videoconferencing for delivering therapy in a Specialist Paediatric...

Didn't know where to post this or if it has been posted before; https://www.qmul.ac.uk/wolfson/media/wolfson/ref-2014-results/UoA2-chronic_fatigue_syndrome.pdf We have so much to thank QMUL for

New paper - has a number of red flags. Focuses on fatigue description and " payback" as a description for PEM without much definition. Questionnaire based, pre diagnosed Mild/ moderate but not housebound I don't know if any comorbidities (OI, EDS etc) have even been thought about I have not...

BMJ and Bristol's Ethics Exemptions Earlier today, I sent the following e-mail to Dr Fiona Godlee, editorial director of BMJ. I cc’d Carol Monaghan MP, Darren Jones MP, and Nicky Morgan MP. I also cc’d Teresa Allen of the Health Research Authority.

Don't know who this flyer is being given/sent to: http://www.ruh.nhs.uk/patients/services/clinical_depts/paediatric_cfs_me/documents/PCFS005_PCFSME_Research_Flyer.pdf

https://www.csp.org.uk/frontline/article/childrens-pain-we-can-make-it-better links to FITNET another of NICE guidelines committee members.

How to avoid ethical review I have written many posts about BMJ Open’s 2011 school absence study, which reported that school absence records could be useful in identifying children with chronic fatigue syndrome. However, for reasons not yet adequately explained, the investigators exempted the...