crawley

I thought it would be worth checking what was happening with this study. https://doi.org/10.1186/ISRCTN72645894 The following are attached: 1. A copy of the trial protocol. 2. A copy of the approval by Multicentre Research Ethics Committee (MREC), 19/01/2012, ref: 11/SW/0301. 3. A copy of...

" Thank you to our reviewers 2017 Thank you to our reviewers http://dx.doi.org/10.1136/bmjopen-2018-reviewers The Editor would like to publicly acknowledge the people listed below who served as reviewers on the journal during 2017. Without their efforts the quality of the journal could not be...

Yesterday's news from the CFS/ME Research Collaborative A recap of yesterday's news and an email to Sue Paterson, director of legal services at the University of Bristol with an inquiry of professor Crawley's new role at Bristol and of more details about Crawley's departure.

https://www.actionforme.org.uk/research/uk-cfsme-collaborative/ Screenshot of their linked file

The PRIME project: developing a patient evidence‐base Sophie Staniszewska, DPhil (Oxon) BSc (Hons), 1 Sally Crowe, Post Graduate Diploma, 2 Douglas Badenoch, MSc, 3 Carol Edwards, BA MSc PhD, 4 Jan Savage, RN BSc (Hons) PhD, 5 and Will Norman, PhD MA (Hons) 6 Acknowledgements We are grateful...

https://www.ncbi.nlm.nih.gov/pubmed/29471861 https://trialsjournal.biomedcentral.com/articles/10.1186/s13063-018-2500-3

http://www.sleep-journal.com/article/S1389-9457(18)30017-0/fulltext?cc=y= Simon M. Collin, Tom Norris, Paul Gringras, Peter S. Blair, Kate Tilling, Esther Crawley Abstract Objective /Background: Sleep abnormalities are characteristic of chronic fatigue syndrome (CFS, also known as ‘ME’), but...

Open access at http://adc.bmj.com/content/early/2018/01/30/archdischild-2017-314138 if you can stomach it. Crawley continues her "chronic disabling fatigue" = ME fiction "Here we use data from the Avon Longitudinal Study of Parents and Children (ALSPAC) to investigate whether levels and...

I thought this story (the second one) was so sad and infuriating that it deserves its own thread. It was later said in the thread that it's about the "Bath Fatigue clinic" in the UK. (Admins, if you can think of a better title, please edit.)

The international collaborative on fatigue following infection (COFFI), 2018, Katz et al. Ben Z Katz,Simon M Collin,Gabrielle Murphy,Rona Moss-Morris,Vegard Bruun Wyller,Knut-Arne Wensaas,Jeannine L.A. Hautvast,Chantal P Bleeker-Rovers,Ute Vollmer-Conna,Dedra Buchwald,Renée Taylor,Paul...

Just saw this appear as I was about to go to bed, so haven't read it yet, but expect it will be great and of interest to everyone here. http://www.virology.ws/2018/01/17/trial-by-error-professor-crawleys-bogus-buzzfeed-claims/

Just announced on the AfME Facebook page

Hi there, This is my first post so I wasn't sure which section exactly to post in - feel free to move this if it's not appropriate. I hadn't seen this piece before, it's from 2015. I was posting it here because: - It contains some really good viewpoints and information (but also some stuff...

I don't remember seeing anything about this previously: http://www.bristol.ac.uk/ccah/research/childdevelopmentdisability/chronic-fatigue/ The above page also includes this: I wonder if they'll try to justify a definition of recovery which just means 'filling in a few forms a bit more...

I'd just noticed that this was available via Google cache, but not on the Bristol website, so thought I'd back up a copy here. Once I'd got through dong that, I realised I could just link t the waybackmachine copy...

https://www.rcpch.ac.uk/events/annual-conference Despite the theme, Crawley will be there. Day One, "How to manage CFS/ME, fatigue and pain in children, Professor Esther Crawley" Other highlights Day One, "The role of systematic family work in the management of children with severe medically...

I found this video while pootling about on the interweb - While it is a mash up and not a true representation of overall presentations involved in the video, there is a clear section where Esther Crawley is presenting to the MRC (in 2010) about her trial. There are lots of things to comment...

New blog post today by David Tuller. - This post is about a serious issue–ethical approval for research studies involving children. It is also about how powerful institutions, like leading medical journals, respond to concerns. But the story is really too long and complicated. I recommend it...

Another date for our diary, Esther Crawley confirmed as a speaker at the European Society for Paediatric Infectious Diseases (ESPID) later this year: http://espidmeeting.org/2018/scientific-information/confirmed-invited-speakers#.WkuWyJCnzMI

I've made a practice of not publicly calling out Esther Crawley in part because the issues we face are so much bigger than any one researcher. 26 tweets Embed Jennifer Brea @jenbrea Follow Read on Twitter And because I think I still entertain a fantasy of one day sitting down to lunch with...