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Science for ME

  1. ME/CFS News and Research

    A place to discuss BioMedical ME/CFS research and news, general ME/CFS news and diagnostic guidelines

    1. ME/CFS News and Research

      Discussions:
      3,202
      Messages:
      71,804

      1. BioMedical ME/CFS News

      2. Recruitment into current ME/CFS research studies

      3. Regional News

      4. BioMedical ME/CFS Research

      5. General ME/CFS News

      6. Science Library (Read only)

      7. Diagnostic Guidelines

      8. Researcher Interactions

      9. Weekly ME News in Brief

      10. News from Organisations

      Latest: [Blog] BACME, NHS ME/CFS clinics shift from deconditioning to dysregulation model of ME/CFS in anticipation of updated NICE Guideline Peter Trewhitt, Oct 23, 2021 at 11:35 AM
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  2. Other News and Research

    A place to discuss PsychoSocial ME/CFS news and Research. You can also discuss health news and research unrelated to ME/CFS here

    1. Other News and Research

      Discussions:
      4,474
      Messages:
      67,268

      1. PsychoSocial ME/CFS News

      2. PsychoSocial ME/CFS Research

      3. Health News and Research unrelated to ME/CFS

      4. Epidemics (including Covid-19)

      Latest: Persistent clotting protein pathology in Long COVID/PASC is accompanied by increased levels of antiplasmin, 2021, Pretorius et al Fizzlou, Oct 23, 2021 at 11:21 AM
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  3. Advocacy and Fundraising

    A place to discuss advocacy and fundraising related to the ME/CFS community

    1. Advocacy

      Discussions:
      800
      Messages:
      15,602

      1. Advocacy Action Alerts

      2. General Advocacy Discussions

      3. General disability topics and advocacy

      4. Advocacy Projects and Campaigns

      5. Petitions

      6. Fundraising

      7. Open Letters and Replies

      8. MEpedia

      Latest: Petition 122600 to the German Bundestag: Healthcare, Scientific Research and Political Support for ME/CFS Sufferers!, 2021 Joh, Oct 23, 2021 at 5:55 AM
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  4. Guidelines, reviews and disease coding

    This section is for guidelines, reviews and coding with public consultation processes for ME/CFS and similar and related illnesses. Scientific papers about guidelines and reviews should be posted in the Research section.

    1. ME/CFS related guidelines, reviews, disease coding

      'Guidelines, reviews and coding for ME/CFS and similar illnesses - development and discussion This section is for guidelines, reviews and coding with public processes for comment. Scientific papers about guidelines and reviews should be posted in the Research subforums.'
      Discussions:
      66
      Messages:
      6,587

      1. Disease coding

      2. 2021 Cochrane Exercise Therapy Review

      3. 2021 USA CDC ME/CFS Diagnosis and Treatment Review

      4. 2020 UK NICE ME/CFS Guideline

      5. 2020 UK NICE Long Covid Guideline

      6. Other guidelines with public consultation process

      7. Other reviews with a public consultation process

      Latest: Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021) Suffolkres, Oct 23, 2021 at 9:22 AM
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  5. Symptoms, Treatments, Doctors and Diagnostics

    A place to discuss symptoms and treatments related to ME/CFS. Post and discuss ME/CFS doctors and diagnostics here too

    1. Symptoms

      Discussions:
      418
      Messages:
      8,189

      1. Post-Exertional Malaise, Fatigue, and Crashes

      2. Neurological/Cognitive: Brain Fog, Concentration

      3. Pain and Inflammation

      4. Immunological

      5. Sleep Disturbance

      6. Hypersensitivity and Intolerance Reactions

      7. Cardiovascular and Respiratory

      8. Gastrointestinal and Urinary

      9. Other Symptoms

      Latest: Brain fog poll Dom, Oct 17, 2021 at 11:45 AM
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    2. Treatments

      Discussions:
      244
      Messages:
      4,860

      1. Rituximab

      2. Antivirals, Antibiotics and Immune Modulators

      3. Addressing Chemical & Food Sensitivities

      4. Treating POTS and Orthostatic Intolerance

      5. Treating the Microbiome

      6. Other: Methylation; B12; Glutathione; GcMAF

      7. Alternative Therapies

      Latest: Orthostatic Cognitive Dysfunction in Postural Tachycardia Syndrome After Rapid Water Drinking, 2019, Belén Rodriguez et al DokaGirl, Oct 22, 2021 at 11:50 PM
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    3. Doctors and Diagnostics

      Discussions:
      95
      Messages:
      2,056

      1. ME/CFS Doctors

      2. Laboratory and Genetic Testing

      3. Resources for Health Professionals

      Latest: ME/CFS services in the United Kingdom Kitty, Oct 22, 2021 at 1:21 PM
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  6. Missed, Alternative or Co-existing Diagnoses

    Discuss missed, alternative and co-existing diagnoses here

    1. Missed, Alternative or Co-existing Diagnoses

      Discussions:
      307
      Messages:
      3,318

      1. Fibromyalgia and Connective Tissue Disorders

      2. Infections: Lyme, Candida, EBV ...

      3. Endocrine: Thyroid, Adrenal, Diabetes

      4. Immune: Autoimmune and Mast Cell Disorders

      5. Neurological diseases

      6. Vitamin B12, D and other deficiencies

      Latest: Functional Neurological Disorders - discussion thread livinglighter, Oct 23, 2021 at 6:50 AM
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  7. Living with ME/CFS

    A place to share and discuss lifestyle issues related to ME/CFS

    1. Living with ME/CFS

      Discussions:
      277
      Messages:
      4,557

      1. Lifestyle Management

      2. Relationships

      3. Work, Finances and Disability Insurance

      4. Parents and Caregivers

      Latest: Let's talk wheelchairs and mobility scooters Kitty, Oct 20, 2021 at 3:13 AM
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