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Science for ME
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Welcome to Science For ME
About the forum. Members can access our rules, guidance on using the forum and a section where members can introduce themselves.
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Welcome: About the Forum, Our Values
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- Messages:
- 1
Latest: Welcome Science For ME, Apr 19, 2022
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ME/CFS and Long Covid news
A place to discuss news about ME/CFS and Long Covid.
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ME/CFS and Long Covid news
A place to discuss news about ME/CFS and Long Covid.
- Discussions:
- 2,896
- Messages:
- 86,766
Latest: Diane Shipley: Knowledge of Missing Out Sly Saint, Mar 21, 2023 at 12:51 PM
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ME/CFS and Long Covid research
A place to discuss specific research papers for ME/CFS and associated illnesses such as Long Covid. Each thread should be about a single research paper.
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ME/CFS and Long Covid research
A place to discuss specific research papers for ME/CFS and associated illnesses such as Long Covid. Each thread should be about a single research paper.
- Discussions:
- 3,150
- Messages:
- 42,181
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Other news and research
A place to post and discuss other news and research relevant to people with ME/CFS
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Other news and research
A place for other health-related news and research. 'Conditions related to ME/CFS' includes IBS, POTS, fibromyalgia, post-treatment lyme disease, Gulf War Illness. 'Other Psychosomatic Medicine' covers approaches to diseases other than ME/CFS and Long Covid based on a psychosomatic paradigm - these often refer to illness labels such as Medically Unexplained Symptoms (MUS) and functional disorders (e.g. Functional Neurological Disease).
- Discussions:
- 4,947
- Messages:
- 38,507
Latest: Cushing’s Disease Presenting with Functional Neurological (Conversion) Disorder 2023 Ashrafzadeh et al rvallee, Mar 21, 2023 at 2:43 PM
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Resources
- Discussions:
- 90
- Messages:
- 726
Latest: UK: Action for ME: Media Guidelines for reporting on M.E. Trish, Mar 20, 2023 at 5:51 PM
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Advocacy and Fundraising
A place to discuss advocacy and fundraising related to the ME/CFS community
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Advocacy
- Discussions:
- 939
- Messages:
- 17,940
Latest: International: Science for ME social media posts Andy, Mar 20, 2023 at 10:11 AM
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Guidelines, reviews and disease coding
This section is for guidelines, reviews and coding with public consultation processes for ME/CFS and similar and related illnesses. Scientific papers about guidelines and reviews should be posted in the Research section.
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ME/CFS related guidelines, reviews, disease coding
'Guidelines, reviews and coding for ME/CFS and similar illnesses - development and discussion This section is for guidelines, reviews and coding with public processes for comment. Scientific papers about guidelines and reviews should be posted in the Research subforums.'
- Discussions:
- 99
- Messages:
- 10,536
Latest: Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian Sly Saint, Mar 21, 2023 at 11:44 AM
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Research quality and methodology discussions
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- 121
- Messages:
- 2,250
Latest: Preprint: Reflections on Patient Engagement by Patient Partners: How it can go Wrong 2023 Richards, Poirier et al Andy, Mar 21, 2023 at 9:42 AM -
Causes, Epidemiology, Criteria, Naming discussions
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- 55
- Messages:
- 1,827
Latest: Degree of improvement in ME Yvonne, Mar 20, 2023 at 10:00 AM -
Symptoms and signs discussions
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- 474
- Messages:
- 9,759
Latest: Noise cancelling devices for sleep? rvallee, Mar 21, 2023 at 3:42 PM -
Treatment discussions
A place to discuss treatments for ME/CFS and related conditions, excluding psychosomatic treatments
- Discussions:
- 263
- Messages:
- 5,516
Latest: Can vaccines cure ME/CFS or Long Covid? Hutan, Mar 20, 2023 at 9:31 PM -
Psychosomatic theories and treatments discussions
A place to discuss theories and treatments based on the assumption that ME/CFS and other illnesses are psychosomatic, caused by false illness beliefs and deconditioning. Topics include PACE trial, CBT, GET, MUS, functional diseases, Lightning Process.
- Discussions:
- 44
- Messages:
- 1,763
Latest: Functional Neurological Disorder (FND) - articles, social media and discussion SNT Gatchaman, Mar 17, 2023 at 8:23 PM -
Other specific illnesses discussions
A place to discuss alternative diagnoses and possible co-morbidities
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- 199
- Messages:
- 2,796
Latest: Pelvic transvaginal ultrasound - what's it like? Leila, Mar 16, 2023 at 12:03 PM -
Doctors, clinics and organisations discussions
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- 142
- Messages:
- 4,286
Latest: Finding a local ME-friendly GP Mij, Mar 21, 2023 at 3:03 PM -
Living with ME/CFS discussions
- Discussions:
- 284
- Messages:
- 5,334
Latest: Advice for difficulty texting on smartphone due to issues with fine motor skills/coordination rvallee, Mar 20, 2023 at 9:08 PM -
General ME/CFS discussions
For discussion topics that don't fit any of the named discussion forums.
- Discussions:
- 24
- Messages:
- 535
Latest: Well-known, famous people with ME/CFS (public thread) JemPD, Mar 19, 2023 at 11:30 PM
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