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Science for ME

  1. ME/CFS News and Research

    A place to discuss BioMedical ME/CFS research and news, general ME/CFS news and diagnostic guidelines

    1. ME/CFS News and Research

      Discussions:
      3,300
      Messages:
      74,036

      1. BioMedical ME/CFS News

      2. Recruitment into current ME/CFS research studies

      3. Regional News

      4. BioMedical ME/CFS Research

      5. General ME/CFS News

      6. Science Library (Read only)

      7. Diagnostic Guidelines

      8. Researcher Interactions

      9. Weekly ME News in Brief

      10. News from Organisations

      Latest: Decreased NO production in endothelial cells exposed to plasma from ME/CFS patients, Bertinat et al (2022) Aslaug, Jan 22, 2022 at 10:33 AM
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  2. Other News and Research

    A place to discuss PsychoSocial ME/CFS news and Research. You can also discuss health news and research unrelated to ME/CFS here

    1. Other News and Research

      Discussions:
      4,815
      Messages:
      70,957

      1. PsychoSocial ME/CFS News

      2. PsychoSocial ME/CFS Research

      3. Other Health News and Research

      4. Epidemics (including Covid-19)

      Latest: The Times: My Mother, Munchausen’s and Me by Helen Naylor review — the tyrant in the sick bed Ebb Tide, Jan 22, 2022 at 10:48 AM
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  3. Advocacy and Fundraising

    A place to discuss advocacy and fundraising related to the ME/CFS community

    1. Advocacy

      Discussions:
      815
      Messages:
      15,979

      1. Advocacy Action Alerts

      2. General Advocacy Discussions

      3. General disability topics and advocacy

      4. Advocacy Projects and Campaigns

      5. Petitions

      6. Fundraising

      7. Open Letters and Replies

      8. MEpedia

      Latest: Politico: He Was Given 6 Months to Live. Then He Changed D.C. (Brian Wallach ALS) Snow Leopard, Jan 22, 2022 at 10:35 AM
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  4. Guidelines, reviews and disease coding

    This section is for guidelines, reviews and coding with public consultation processes for ME/CFS and similar and related illnesses. Scientific papers about guidelines and reviews should be posted in the Research section.

    1. ME/CFS related guidelines, reviews, disease coding

      'Guidelines, reviews and coding for ME/CFS and similar illnesses - development and discussion This section is for guidelines, reviews and coding with public processes for comment. Scientific papers about guidelines and reviews should be posted in the Research subforums.'
      Discussions:
      77
      Messages:
      8,467

      1. Disease coding

      2. 2021 Cochrane Exercise Therapy Review

      3. 2021 USA CDC ME/CFS Diagnosis and Treatment Review

      4. 2020 UK NICE ME/CFS Guideline

      5. 2020 UK NICE Long Covid Guideline

      6. Other guidelines with public consultation process

      7. Other reviews with a public consultation process

      Latest: Any new guidelines downgrading CBT and rejecting GET glennthefrog, Jan 17, 2022 at 7:45 PM
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  5. Symptoms, Treatments, Doctors and Diagnostics

    A place to discuss symptoms and treatments related to ME/CFS. Post and discuss ME/CFS doctors and diagnostics here too

    1. Symptoms

      Discussions:
      435
      Messages:
      8,533

      1. Post-Exertional Malaise, Fatigue, and Crashes

      2. Neurological/Cognitive: Brain Fog, Concentration

      3. Pain and Inflammation

      4. Immunological

      5. Sleep Disturbance

      6. Hypersensitivity and Intolerance Reactions

      7. Cardiovascular and Respiratory

      8. Gastrointestinal and Urinary

      9. Other Symptoms

      Latest: The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS Solstice, Jan 21, 2022 at 2:48 PM
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    2. Treatments

      Discussions:
      253
      Messages:
      5,056

      1. Rituximab

      2. Antivirals, Antibiotics and Immune Modulators

      3. Addressing Chemical & Food Sensitivities

      4. Treating POTS and Orthostatic Intolerance

      5. Treating the Microbiome

      6. Other: Methylation; B12; Glutathione; GcMAF

      7. Alternative Therapies

      Latest: Ivabradine Ash, Jan 8, 2022
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    3. Doctors and Diagnostics

      Discussions:
      116
      Messages:
      2,737

      1. ME/CFS Doctors

      2. Laboratory and Genetic Testing

      3. Resources for Health Professionals

      Latest: Doctors with ME: Putting it into Practice: What NICE ME/CFS means for GPs Barry, Jan 20, 2022 at 1:24 PM
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  6. Missed, Alternative or Co-existing Diagnoses

    Discuss missed, alternative and co-existing diagnoses here

    1. Missed, Alternative or Co-existing Diagnoses

      Discussions:
      366
      Messages:
      3,643

      1. Fibromyalgia and Connective Tissue Disorders

      2. Infections: Lyme, Candida, EBV ...

      3. Endocrine: Thyroid, Adrenal, Diabetes

      4. Immune: Autoimmune and Mast Cell Disorders

      5. Neurological diseases

      6. Vitamin B12, D and other deficiencies

      Latest: Personality, Defense Mechanisms and Psychological Distress in Women with Fibromyalgia, 2022, Romeo et al alktipping, Jan 21, 2022 at 11:20 PM
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  7. Living with ME/CFS

    A place to share and discuss lifestyle issues related to ME/CFS

    1. Living with ME/CFS

      Discussions:
      276
      Messages:
      4,744

      1. Lifestyle Management

      2. Relationships

      3. Work, Finances and Disability Insurance

      4. Parents and Caregivers

      Latest: UK: Disability benefits (ESA and PIP) - news and updates 2021 onwards Sly Saint, Jan 14, 2022
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