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Science for ME

  1. Welcome to Science For ME

    About the forum. Members can access our rules, guidance on using the forum and a section where members can introduce themselves.

    1. Welcome: About the Forum, Our Values

      Discussions:
      1
      Messages:
      1
      Latest: Welcome Science For ME, Apr 19, 2022
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  2. ME/CFS and Long Covid news

    A place to discuss news about ME/CFS and Long Covid.

    1. ME/CFS and Long Covid news

      A place to discuss news about ME/CFS and Long Covid.

      Discussions:
      2,757
      Messages:
      82,182

      1. General ME/CFS news

      2. ME/CFS research news

      3. Long Covid news

      4. Psychosomatic news - ME/CFS and Long Covid

      5. Regional news

      6. News from organisations

      7. Weekly ME news in brief

      Latest: Long Covid in the media and social media 2022 rvallee, Aug 13, 2022 at 10:59 PM
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  3. ME/CFS and Long Covid research

    A place to discuss specific research papers for ME/CFS and associated illnesses such as Long Covid. Each thread should be about a single research paper.

    1. ME/CFS and Long Covid research

      A place to discuss specific research papers for ME/CFS and associated illnesses such as Long Covid. Each thread should be about a single research paper.
      Discussions:
      2,454
      Messages:
      36,934

      1. ME/CFS research

      2. Long Covid research

      3. Psychosomatic research - ME/CFS and Long Covid

      4. Recruitment into current ME/CFS research studies

      Latest: Mind Body Intervention for COVID-19 Long Haul Syndrome Andy, Aug 13, 2022 at 6:01 PM
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  4. Other news and research

    A place to post and discuss other news and research relevant to people with ME/CFS

    1. Other news and research

      A place for other health-related news and research. 'Conditions related to ME/CFS' includes IBS, POTS, fibromyalgia, post-treatment lyme disease, Gulf War Illness. 'Other Psychosomatic Medicine' covers approaches to diseases other than ME/CFS and Long Covid based on a psychosomatic paradigm - these often refer to illness labels such as Medically Unexplained Symptoms (MUS) and functional disorders (e.g. Functional Neurological Disease).
      Discussions:
      4,246
      Messages:
      34,710

      1. 'Conditions related to ME/CFS' news and research

      2. Other psychosomatic news and research

      3. Research methodology news and research

      4. Other health news and research

      5. Epidemics (including Covid-19, not Long Covid)

      Latest: Understanding the Psychophysiological and Sensitization Mechanisms behind Fibromyalgia Syndrome: A Network Analysis Approach, 2022, Varol et al rvallee, Aug 13, 2022 at 10:56 PM
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  5. Resources

    1. Resources

      Discussions:
      58
      Messages:
      423

      1. Resources

      2. Science library (Read only)

      3. Training courses

      Latest: USA: United Brain Association - Chronic fatigue Syndrome Sly Saint, Aug 12, 2022 at 1:32 PM
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  6. Advocacy and Fundraising

    A place to discuss advocacy and fundraising related to the ME/CFS community

    1. Advocacy

      Discussions:
      884
      Messages:
      16,937

      1. Advocacy Action Alerts

      2. General Advocacy Discussions

      3. General disability topics and advocacy

      4. Advocacy Projects and Campaigns

      5. Petitions

      6. Fundraising

      7. Open Letters and Replies

      8. MEpedia

      Latest: S4ME: Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire rvallee, Aug 13, 2022 at 5:11 PM
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  7. Guidelines, reviews and disease coding

    This section is for guidelines, reviews and coding with public consultation processes for ME/CFS and similar and related illnesses. Scientific papers about guidelines and reviews should be posted in the Research section.

    1. ME/CFS related guidelines, reviews, disease coding

      'Guidelines, reviews and coding for ME/CFS and similar illnesses - development and discussion This section is for guidelines, reviews and coding with public processes for comment. Scientific papers about guidelines and reviews should be posted in the Research subforums.'
      Discussions:
      96
      Messages:
      10,054

      1. Disease coding

      2. 2021 Cochrane Exercise Therapy Review

      3. 2021 USA CDC ME/CFS Diagnosis and Treatment Review

      4. 2020 UK NICE ME/CFS Guideline

      5. 2020 UK NICE Long Covid Guideline

      6. Other guidelines

      7. Other reviews with a public consultation process

      Latest: Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian rvallee, Aug 13, 2022 at 5:19 PM
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  8. Discussion topics

    1. Research quality and methodology discussions

      Discussions:
      92
      Messages:
      1,953

      1. Laboratory and genetic testing, medical imaging

      2. Physical testing (e.g. CPET, actimetry)

      3. Subjective outcome measures (questionnaires)

      4. Trial design including bias, placebo effect

      5. Other research methodology topics

      Latest: Chart Of “Questionnaires And Tools That May Be Useful For Assessing ME/CFS (SEID) Symptoms”: Tom Wade MD Sly Saint, Aug 12, 2022 at 1:35 PM
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    2. Causes, Epidemiology, Criteria, Naming discussions

      Discussions:
      45
      Messages:
      1,594

      1. Possible causes and predisposing factor discussion

      2. Diagnostic Criteria and Naming Discussions

      3. Epidemiology (incidence, prevalence, prognosis)

      Latest: Who Hijacked ME? DigitalDrifter, Jul 19, 2022
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    3. Symptoms and signs discussions

      Discussions:
      447
      Messages:
      9,231

      1. General and other signs and symptoms

      2. Post-Exertional malaise and fatigue

      3. Pain and Inflammation

      4. Sleep Disturbance

      5. Cardiovascular and exercise physiology (CPET)

      6. Orthostatic intolerance

      7. Neurological/cognitive/vision

      8. Blood (e.g. coagulation, cell stiffness)

      9. Immunological

      10. Hypersensitivity and Intolerance Reactions

      11. Gastrointestinal and Urinary

      12. Cellular (mitochondria, metabolites, cytokines)

      Latest: The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS RedFox, Aug 13, 2022 at 2:14 PM
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    4. Treatment discussions

      A place to discuss treatments for ME/CFS and related conditions, excluding psychosomatic treatments
      Discussions:
      240
      Messages:
      4,938

      1. Drug and supplement treatments

      2. Orthostatic intolerance treatments

      3. Nutrition, food sensitivity, microbiome treatments

      4. Other treatments

      Latest: CoQ10 - Coenzyme Q10 Hutan, Aug 3, 2022
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    5. Psychosomatic theories and treatments discussions

      A place to discuss theories and treatments based on the assumption that ME/CFS and other illnesses are psychosomatic, caused by false illness beliefs and deconditioning. Topics include PACE trial, CBT, GET, MUS, functional diseases, Lightning Process.
      Discussions:
      36
      Messages:
      1,290
      Latest: Functional Neurological Disorder (FND) - articles, social media and discussion Andy, Aug 4, 2022
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    6. Other specific illnesses discussions

      A place to discuss alternative diagnoses and possible co-morbidities
      Discussions:
      181
      Messages:
      2,742

      1. Fibromyalgia and Connective Tissue Disorders

      2. Infections: Lyme, Candida, EBV ...

      3. Endocrine: Thyroid, Adrenal, Diabetes

      4. Immune: Autoimmune and Mast Cell Disorders

      5. Neurological diseases

      6. Vitamin B12, D and other deficiencies

      7. Gulf War Illness

      8. Other specific illnesses

      Latest: Facioscapulohumeral Dystrophy (FSHD) Arnie Pye, Aug 12, 2022 at 4:39 PM
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    7. Doctors, clinics and organisations discussions

      Discussions:
      104
      Messages:
      3,204

      1. General clinical care

      2. USA clinics and doctors

      3. UK clinics and doctors

      4. Other clinics and doctors

      5. Organisations relevant to ME/CFS and Long Covid

      Latest: United Kingdom: London - Persistent Physical Symptoms Research and Treatment Unit - Kings College London; South London and Maudsley NHS Trust Sly Saint, Aug 10, 2022 at 7:35 PM
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    8. Living with ME/CFS discussions

      Discussions:
      267
      Messages:
      4,858

      1. Home adaptations, mobility and personal care

      2. Relationships and coping

      3. Monitoring and pacing

      4. Work, Finances and Disability Insurance

      5. Caregiver support

      Latest: The Chronic Elephant blog by hellytheelephant bobbler, Aug 10, 2022 at 11:52 PM
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    9. General ME/CFS discussions

      For discussion topics that don't fit any of the named discussion forums.
      Discussions:
      5
      Messages:
      121

      1. General ME/CFS discussion

      Latest: [Poll] Experiences of PWME taking the contraceptive pill Ravn, Aug 11, 2022 at 2:22 AM
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