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Advocacy

  1. Advocacy Action Alerts

    Discussions:
    128
    Messages:
    1,709
    Latest: UK Genome Wide Association Study (GWAS) project: indicate your support and/or willingness to take part and/or join the mailing list Andy, Jun 23, 2020
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  2. General Advocacy Discussions

    Discussions:
    130
    Messages:
    2,568
    Latest: Harvard Health CFS website content DokaGirl, Jul 7, 2020 at 3:09 PM
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  3. Information for NICE guidelines

    A forum for members to raise and discuss information that would be useful in the development of the NICE guidelines.
    Discussions:
    21
    Messages:
    653
    Latest: NICE delay publication till 9 dec 2020. Draft guideline consultation closing August. rvallee, Jun 24, 2020
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  4. General disability topics and advocacy

    Use this forum for wider disability topics that may include but are not exclusively about ME.
    Discussions:
    41
    Messages:
    369
    Latest: Article: Mystery illnesses are on the rise with women, whom doctors are dismissing as "nervous Nellies" Apr 2020 Andy, Jun 18, 2020
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  5. Advocacy Projects and Campaigns

    Discussions:
    245
    Messages:
    4,637
    Latest: Japan Me Association: "Accolades for our Documentary Film" Sly Saint, Jun 27, 2020
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  6. Petitions

    Discussions:
    29
    Messages:
    1,096
    Latest: EU Petition - opportunity to lobby for funding for ME research ringding, Feb 2, 2020
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  7. Fundraising

    Discussions:
    72
    Messages:
    1,186
    Latest: Karl Morten's crowdfunding campaign, "Understanding the causes of ME/CFS" Andy, Jun 27, 2020
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  8. Open Letters and Replies

    Discussions:
    22
    Messages:
    1,624
    Latest: S4ME letter to Cochrane re: proposed new Exercise for Chronic Fatigue Syndrome review and patient involvement Andy, Jun 1, 2020
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  9. MEpedia

    A subforum where people can communicate about MEpedia
    Discussions:
    16
    Messages:
    677
    Latest: Biomedical articles on MEpedia - purposes and pitfalls Wilhelmina Jenkins, Nov 25, 2019
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