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crawley

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  1. SNT Gatchaman
    Thread

    Investigating the factors associated with meaningful improvement on the SF-36-PFS ... young people, 2023, Crawley et al

    Investigating the factors associated with meaningful improvement on the SF-36-PFS and exploring the appropriateness of this measure for young...
    Thread by: SNT Gatchaman, Aug 25, 2023, 29 replies, in forum: ME/CFS research news
  2. Sly Saint
    Thread

    Open GEM study - Prevalence of genetic diseases in ME/CFS patients, 2022, Esther Crawley, Bristol University

    A thread on the announcement of funding for the study has been merged with the announcement of the study I haven't searched for more details on...
    Thread by: Sly Saint, Feb 8, 2021, 19 replies, in forum: Recruitment into current ME/CFS research studies
  3. Sly Saint
    Thread

    ELUCIDate Study: Bristol University

    ELUCIDate long-term consequences of Childhood Infections using administrative and research Data The core study team University of Bristol Dr...
    Thread by: Sly Saint, May 15, 2023, 5 replies, in forum: Long Covid research
  4. Sly Saint
    Thread

    Long COVID in Children and Youth After Infection or Reinfection with the Omicron Variant: A Prospective Observational Study, 2023 CLoCK consortium

    Abstract To describe the prevalence of long COVID in children infected for the first time (n=332) or reinfected (n=243) with Omicron variant...
    Thread by: Sly Saint, May 14, 2023, 2 replies, in forum: Long Covid research
  5. John Mac
    Thread

    Correction: The impact of CFS/ME on employment and productivity in the UK: a cross-sectional study based on the CFS/ME national outcomes database

    Correction : BMC Health Services Research 11, 217 (2011) Another Crawley correction from 2011 Original study...
    Thread by: John Mac, May 10, 2023, 5 replies, in forum: ME/CFS research
  6. Sly Saint
    Thread

    What stops children with a chronic illness accessing health care: a mixed methods study in children with CFS/ME, 2011, Webb, Crawley et al

    Paper from 2011 Abstract Background Paediatric Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) is relatively common and disabling with...
    Thread by: Sly Saint, May 6, 2023, 1 replies, in forum: ME/CFS research
  7. Trish
    Thread

    Long Covid Advocacy: Is the “greatest medical scandal of the last century" being repeated for a generation of children? (about the CLoCK study)

    https://longcovidadvocacy.substack.com/p/is-the-greatest-medical-scandal-of Is the “greatest medical scandal of the last century" being repeated...
    Thread by: Trish, Apr 14, 2023, 39 replies, in forum: Long Covid news
  8. Sly Saint
    Thread

    Severe myalgic encephalomyelitis/chronic fatigue syndrome in children and young people: a British Paediatric Surveillance Unit study 2022 Crawley et a

    Abstract Objectives Primary objective: to determine the point prevalence and incidence rate of severe myalgic encephalomyelitis/chronic fatigue...
    Thread by: Sly Saint, Dec 2, 2022, 23 replies, in forum: ME/CFS research
  9. Andy
    Thread

    Predictive model for long COVID in children 3 months after a SARS-CoV-2 PCR test 2022 Nugawela, Crawley et al

    Abstract Background To update and internally validate a model to predict children and young people (CYP) most likely to experience long COVID...
    Thread by: Andy, Nov 30, 2022, 2 replies, in forum: Long Covid research
  10. Kalliope
    Thread

    Long COVID and Post-infective Fatigue Syndrome: A Review - Wyller, Moss-Morris, Crawley, Knoop, Lloyd et al, 2022

    Abstract Fatigue is a dominant feature of both acute and convalescent coronavirus disease 2019 (COVID-19) (sometimes termed “long-COVID”), with up...
    Thread by: Kalliope, Oct 30, 2022, 12 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  11. Sly Saint
    Thread

    UK Clock Club

    Bristol Clock Club Project Overview We aim to improve our understanding of circadian rhythms and sleep across species (e.g.Drosophila,...
    Thread by: Sly Saint, Sep 11, 2022, 1 replies, in forum: Other health news and research
  12. MSEsperanza
    Thread

    Association between school absence and physical function in paediatric [CFS/ME], 2009, Crawley & Sterne

    Crawley E, Sterne JA. Association between school absence and physical function in paediatric chronic fatigue syndrome/myalgic encephalopathy. Arch...
    Thread by: MSEsperanza, Aug 24, 2022, 9 replies, in forum: ME/CFS research
  13. Andy
    Thread

    The importance of school in the management of (ME/CFS): issues identified by adolescents and their families, 2022, Cleary, Crawley et al

    Full title: The importance of school in the management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): issues identified by...
    Thread by: Andy, Aug 23, 2022, 13 replies, in forum: ME/CFS research
  14. Andy
    Thread

    Why Should ACT Work When CBT Has Failed? a Study Assessing Acceptability and Feasibility of Acceptance and Commitment Therapy (ACT), 2022, Crawley

    Full title: Why Should ACT Work When CBT Has Failed? a Study Assessing Acceptability and Feasibility of Acceptance and Commitment Therapy (ACT)...
    Thread by: Andy, Jul 2, 2022, 26 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  15. Sly Saint
    Thread

    Developing a model for predicting impairing physical symptoms in children... after SARS-CoV-2 ...: CLoCK Study, 2022, Nugawela, Crawley et al

    Developing a model for predicting impairing physical symptoms in children 3 months after a SARS-CoV-2 PCR-test: The CLoCk Study preprint...
    Thread by: Sly Saint, Apr 12, 2022, 0 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  16. Sly Saint
    Thread

    Experiences of pain in paediatric chronic fatigue syndrome/myalgic encephalomyelitis: a single-centre qualitative study, 2022, Crawley et al

    Abstract Background Moderate to severe pain affects up to two-thirds of children with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME)...
    Thread by: Sly Saint, Feb 20, 2022, 6 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  17. rvallee
    Thread

    What treatments work for anxiety and depression in children and adolescents with [CFS]? An updated systematic review, 2021, Clery et al

    (Embargoed until 2099?) Oxford criteria, so tagged as "chronic fatigue", not applicable to ME/CFS. Philippa Clery*, Alexander Royston , Katie...
    Thread by: rvallee, Dec 17, 2021, 17 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  18. Sly Saint
    Thread

    Do adolescents w/CFS/ME & co-morbid anxiety &/or depressive symptoms think differently to those who do not have co-morbid psychopathology?,2020,Loades

    Do adolescents with chronic fatigue syndrome (CFS/ME) and co-morbid anxiety and/or depressive symptoms think differently to those who do not have...
    Thread by: Sly Saint, Oct 15, 2021, 25 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  19. Hutan
    Thread

    Case series of Pervasive Refusal Syndrome presenting with CFS: avoiding the pitfall of a wrong diagnosis, 2014, Herberholz, Crawley et al

    https://www.researchgate.net/publication/273874213_G160P_Case_series_of_Pervasive_Refusal_Syndrome_presenting_with_Chronic_Fatigue_Syndrome_avoidin...
    Thread by: Hutan, Oct 7, 2021, 4 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  20. Sly Saint
    Thread

    Article Telegraph: Is long Covid being overblown?

    "Some experts say it's a major issue for sufferers while others say that it has been confused with other conditions – so what’s the truth?" Even...
    Thread by: Sly Saint, Oct 4, 2021, 8 replies, in forum: Long Covid news
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