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crawley

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  1. Marky
    Thread

    "The ME scandal"

    Hey Someone anonymous from Norway have produced a very thorough two part series on different topics (PACE, Lightning Process etc.) It has...
    Thread by: Marky, Mar 28, 2021, 17 replies, in forum: General ME/CFS News
  2. Sly Saint
    Thread

    POMME Study: Paediatric Outcome Measure ME 2020 Crawley et al

    https://www.ruh.nhs.uk/patients/services/clinical_depts/paediatric_cfs_me/index.asp...
    Thread by: Sly Saint, Mar 11, 2021, 10 replies, in forum: PsychoSocial ME/CFS Research
  3. Andy
    Thread

    Cost-effectiveness of Interventions for Chronic Fatigue Syndrome or Myalgic Encephalomyelitis: A Systematic Review.., Cochrane, Crawley et al, 2021

    Full title: Cost-effectiveness of Interventions for Chronic Fatigue Syndrome or Myalgic Encephalomyelitis: A Systematic Review of Economic...
    Thread by: Andy, Mar 2, 2021, 11 replies, in forum: PsychoSocial ME/CFS Research
  4. Sly Saint
    Thread

    Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study): 2021 Stephenson and Crawley

    I haven't searched for more info on this yet. Stevenson Terence PI. Crawley Esther Co-A. Non-hospitalised Children & young people (CYP) with Long...
    Thread by: Sly Saint, Feb 8, 2021, 29 replies, in forum: Epidemics (including Covid-19)
  5. Sly Saint
    Thread

    Exploring the prevalence of Pompe’s disease in patients diagnosed with CFS/ME: 2021 Crawley

    I haven't searched for more details on this yet. Esther Crawley: Sanofi: Exploring the prevalence of Pompe’s disease in patients diagnosed with...
    Thread by: Sly Saint, Feb 8, 2021, 9 replies, in forum: BioMedical ME/CFS Research
  6. Sly Saint
    Thread

    CADENCE study: to assess whether raised CRP is associated with probable depression in children and young people with CFS/ME. Loades, Crawley- ongoing

    This study aims to assess whether raised CRP (a blood test used as a marker of inflammation) is associated with probable depression in children...
    Thread by: Sly Saint, Jan 3, 2021, 13 replies, in forum: PsychoSocial ME/CFS Research
  7. Sly Saint
    Thread

    ExFACTR Study: Exploring the Feasibility of ACT for Children and young people with CFS/ME ... in prep. for an RCT. Crawley et al. Recruiting Jan 2021

    Exploring the Feasibility of ACT for Children and young people with CFS/ME who have been receiving Treatment for more than 12 months or 12...
    Thread by: Sly Saint, Dec 19, 2020, 40 replies, in forum: PsychoSocial ME/CFS Research
  8. Andy
    Thread

    Paediatric chronic fatigue syndrome: 25 year perspective, 2020, Loades, Crawley, Chalder et al

    Over the lifetime of Clinical Child Psychology and Psychiatry, there has been considerable progress in understanding the epidemiology of Chronic...
    Thread by: Andy, Dec 12, 2020, 22 replies, in forum: PsychoSocial ME/CFS Research
  9. Dolphin
    Thread

    Adolescents and their parents’ experiences of internet delivered home treatment for chronic fatigue syndrome/me (fitnet-NHS trial),2020, Parslow et al

    https://adc.bmj.com/content/105/Suppl_1/A56.1 G162 Adolescents and their parents’ experiences of internet delivered home treatment for chronic...
    Thread by: Dolphin, Oct 31, 2020, 2 replies, in forum: PsychoSocial ME/CFS Research
  10. John Mac
    Thread

    Do treatments for paediatric chronic fatigue syndrome improve pain? a systematic review, Ascough et al, 2020 G535(P)

    Abstract Aims Paediatric chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) is common (prevalence 1–2%). Two thirds of children...
    Thread by: John Mac, Oct 27, 2020, 9 replies, in forum: PsychoSocial ME/CFS Research
  11. Jonathan Edwards
    Thread

    Does the new ME/CFS research of BPS proponents affect anything much now?

    This post has been copied and following posts moved from this thread: Possibility of ME or PVFS after COVID-19, Long Covid Yeah, I think it's...
    Thread by: Jonathan Edwards, Oct 24, 2020, 28 replies, in forum: PsychoSocial ME/CFS News
  12. Andy
    Thread

    Chronic fatigue syndrome/myalgic encephalomyelitis in children aged 5 to 11 years: A qualitative study, 2020, Bridgen, Crawley et al

    Treatments for paediatric chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) have not been designed or evaluated for younger children...
    Thread by: Andy, Oct 24, 2020, 14 replies, in forum: PsychoSocial ME/CFS Research
  13. Hutan
    Thread

    Specialist treatment of CFS/ME: a cohort study among adult patients in England, 2017, Collin and Crawley

    Abstract Background NHS specialist chronic fatigue syndrome (CFS/ME) services in England treat approximately 8000 adult patients each year....
    Thread by: Hutan, Oct 5, 2020, 9 replies, in forum: PsychoSocial ME/CFS Research
  14. Dolphin
    Thread

    How common are depression and anxiety in adolescents with CFS and how should we screen for these mental health co-morbidities, 2020, Loades et al

    Free full text: https://link.springer.com/article/10.1007/s00787-020-01646-w Original Contribution Open Access Published: 22 September 2020...
    Thread by: Dolphin, Sep 25, 2020, 8 replies, in forum: PsychoSocial ME/CFS Research
  15. Andy
    Thread

    Recruiting Adolescents With [CFS/ME] to Internet-Delivered Therapy: Internal Pilot Within a Randomized Controlled Trial, 2020, Knoop, Crawley et al

    Full title: Recruiting Adolescents With Chronic Fatigue Syndrome/Myalgic Encephalomyelitis to Internet-Delivered Therapy: Internal Pilot Within a...
    Thread by: Andy, Aug 14, 2020, 22 replies, in forum: PsychoSocial ME/CFS Research
  16. Andy
    Thread

    Digital Behavior Change Interventions for Younger Children With Chronic Health Conditions: Systematic Review, 2020, Crawley, Loades et al

    Background: The prevalence of chronic health conditions in childhood is increasing, and behavioral interventions can support the management of...
    Thread by: Andy, Aug 1, 2020, 7 replies, in forum: Health News and Research unrelated to ME/CFS
  17. Sly Saint
    Thread

    Developing the Paediatric Researchers of the future - Bristol, course organisers- Esther Crawley, Robin Marlow

    Intercalated BSc in Child Health Research Taught by paediatric researchers from across the University of Bristol, this new course for 2021 is...
    Thread by: Sly Saint, Jul 29, 2020, 10 replies, in forum: Health News and Research unrelated to ME/CFS
  18. Sly Saint
    Thread

    Corrected proof: Treatment outcome in adults with CFS: a prospective study in England based on the CFS/ME National Outcomes Database- Crawley,White

    Treatment outcome in adults with chronic fatigue syndrome: a prospective study in England based on the CFS/ME National Outcomes Database E...
    Thread by: Sly Saint, Jun 30, 2020, 4 replies, in forum: PsychoSocial ME/CFS Research
  19. Sly Saint
    Thread

    EXPLORER study: Exploring treatments for younger children with CFS/ME - Amberly Brigden, Esther Crawley

    This study is investigating CFS/ME in younger children (5-11-year olds) and explore ways in which treatment should be adapted for this younger...
    Thread by: Sly Saint, Jun 11, 2020, 23 replies, in forum: PsychoSocial ME/CFS Research
  20. Andy
    Thread

    The care of younger children (5–11 years) with CFS/ME. A qualitative study comparing families’, teachers’ and clinicians’ perspectives’, 2020, Crawley

    Title including weird quote, “The child’s got a complete circle around him ”. The care of younger children (5–11 years) with CFS/ME. A qualitative...
    Thread by: Andy, Jun 11, 2020, 6 replies, in forum: PsychoSocial ME/CFS Research
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