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crawley

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  1. Sly Saint
    Thread

    Severe myalgic encephalomyelitis/chronic fatigue syndrome in children and young people: a British Paediatric Surveillance Unit study 2022 Crawley et a

    Abstract Objectives Primary objective: to determine the point prevalence and incidence rate of severe myalgic encephalomyelitis/chronic fatigue...
    Thread by: Sly Saint, Dec 2, 2022 at 12:21 PM, 23 replies, in forum: ME/CFS research
  2. Andy
    Thread

    Predictive model for long COVID in children 3 months after a SARS-CoV-2 PCR test 2022 Nugawela, Crawley et al

    Abstract Background To update and internally validate a model to predict children and young people (CYP) most likely to experience long COVID...
    Thread by: Andy, Nov 30, 2022, 2 replies, in forum: Long Covid research
  3. Kalliope
    Thread

    Long COVID and Post-infective Fatigue Syndrome: A Review - Wyller, Moss-Morris, Crawley, Knoop, Lloyd et al, 2022

    Abstract Fatigue is a dominant feature of both acute and convalescent coronavirus disease 2019 (COVID-19) (sometimes termed “long-COVID”), with up...
    Thread by: Kalliope, Oct 30, 2022, 12 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  4. Sly Saint
    Thread

    UK Clock Club

    Bristol Clock Club Project Overview We aim to improve our understanding of circadian rhythms and sleep across species (e.g.Drosophila,...
    Thread by: Sly Saint, Sep 11, 2022, 1 replies, in forum: Other health news and research
  5. MSEsperanza
    Thread

    Association between school absence and physical function in paediatric [CFS/ME], 2009, Crawley & Sterne

    Crawley E, Sterne JA. Association between school absence and physical function in paediatric chronic fatigue syndrome/myalgic encephalopathy. Arch...
    Thread by: MSEsperanza, Aug 24, 2022, 8 replies, in forum: ME/CFS research
  6. Andy
    Thread

    The importance of school in the management of (ME/CFS): issues identified by adolescents and their families, 2022, Cleary, Crawley et al

    Full title: The importance of school in the management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): issues identified by...
    Thread by: Andy, Aug 23, 2022, 13 replies, in forum: ME/CFS research
  7. Andy
    Thread

    Why Should ACT Work When CBT Has Failed? a Study Assessing Acceptability and Feasibility of Acceptance and Commitment Therapy (ACT), 2022, Crawley

    Full title: Why Should ACT Work When CBT Has Failed? a Study Assessing Acceptability and Feasibility of Acceptance and Commitment Therapy (ACT)...
    Thread by: Andy, Jul 2, 2022, 26 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  8. Sly Saint
    Thread

    Developing a model for predicting impairing physical symptoms in children... after SARS-CoV-2 ...: CLoCK Study, 2022, Nugawela, Crawley et al

    Developing a model for predicting impairing physical symptoms in children 3 months after a SARS-CoV-2 PCR-test: The CLoCk Study preprint...
    Thread by: Sly Saint, Apr 12, 2022, 0 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  9. Sly Saint
    Thread

    Experiences of pain in paediatric chronic fatigue syndrome/myalgic encephalomyelitis: a single-centre qualitative study, 2022, Crawley et al

    Abstract Background Moderate to severe pain affects up to two-thirds of children with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME)...
    Thread by: Sly Saint, Feb 20, 2022, 6 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  10. rvallee
    Thread

    What treatments work for anxiety and depression in children and adolescents with [CFS]? An updated systematic review, 2021, Clery et al

    (Embargoed until 2099?) Oxford criteria, so tagged as "chronic fatigue", not applicable to ME/CFS. Philippa Clery*, Alexander Royston , Katie...
    Thread by: rvallee, Dec 17, 2021, 17 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  11. Sly Saint
    Thread

    Do adolescents w/CFS/ME & co-morbid anxiety &/or depressive symptoms think differently to those who do not have co-morbid psychopathology?,2020,Loades

    Do adolescents with chronic fatigue syndrome (CFS/ME) and co-morbid anxiety and/or depressive symptoms think differently to those who do not have...
    Thread by: Sly Saint, Oct 15, 2021, 25 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  12. Hutan
    Thread

    Case series of Pervasive Refusal Syndrome presenting with CFS: avoiding the pitfall of a wrong diagnosis, 2014, Herberholz, Crawley et al

    https://www.researchgate.net/publication/273874213_G160P_Case_series_of_Pervasive_Refusal_Syndrome_presenting_with_Chronic_Fatigue_Syndrome_avoidin...
    Thread by: Hutan, Oct 7, 2021, 4 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  13. Sly Saint
    Thread

    Article Telegraph: Is long Covid being overblown?

    "Some experts say it's a major issue for sufferers while others say that it has been confused with other conditions – so what’s the truth?" Even...
    Thread by: Sly Saint, Oct 4, 2021, 8 replies, in forum: Long Covid news
  14. Sly Saint
    Thread

    Long COVID and post-infective fatigue syndrome – a review, 2021, Sandler, Moss-Morris, Crawley, Knoop et al

    Abstract Fatigue is a dominant feature of both acute and convalescent COVID-19 (sometimes termed ‘long-COVID’), with up to 46% of patients...
    Thread by: Sly Saint, Sep 11, 2021, 1 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  15. Dx Revision Watch
    Thread

    United Kingdom: Bath paediatric CFS clinic

    This post is copied and following posts moved from this thread: NICE pauses publication of updated ME/CFS guideline hours before publication was...
    Thread by: Dx Revision Watch, Aug 22, 2021, 231 replies, in forum: UK clinics and doctors
  16. Sly Saint
    Thread

    Article Guardian: First year of pandemic claimed lives of 25 young people in England

    The studies did not assess the risk of “long Covid” in under 18s. However, speaking at a separate online seminar organised by the Royal Society of...
    Thread by: Sly Saint, Jul 10, 2021, 3 replies, in forum: Epidemics (including Covid-19, not Long Covid)
  17. Andy
    Thread

    CBT repackaged or a novel treatment? The Lightning Process compared with UK specialist medical care for paediatric [CFS], 2021, Anderson et al

    Authors: Emma C. Anderson, Maria Loades, Jennifer Starbuck, Phil Parker, Fiona Finch, Rebecca Barnes, Lucy Beasant & Esther Crawley ABSTRACT...
    Thread by: Andy, Jul 5, 2021, 67 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  18. Andy
    Thread

    In progress: Measuring Health in Children with CFS/ME: Refinement, application and evaluation of new PROM (PEACH) in routine practice, Crawley et al

    Funded study in progress. Abstract: Background: Paediatric Chronic Fatigue Syndrome or Myalgic Encaphalistis (CFS/ME) is disabling and...
    Thread by: Andy, Jun 10, 2021, 16 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  19. Sly Saint
    Thread

    Spotlight on Long Covid webinar series, The Royal Society of Medicine

    Join us to hear the most up-to-date clinical knowledge about Long Covid from leading researchers, expert clinicians, and patient voices. With...
    Thread by: Sly Saint, May 28, 2021, 14 replies, in forum: Long Covid news
  20. Sly Saint
    Thread

    Is it time to ACT? qualitative study of acceptability, feasibility of Acceptance and Commitment Therapy for adolescents with CFS, 2021, Crawley et al

    preprint Is it time to ACT? A qualitative study of the acceptability and feasibility of Acceptance and Commitment Therapy for adolescents with...
    Thread by: Sly Saint, Apr 25, 2021, 54 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
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