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crawley

Page 1 of 7
  1. Andy
    Thread

    In progress: Measuring Health in Children with CFS/ME: Refinement, application and evaluation of new PROM (PEACH) in routine practice, Crawley et al

    Funded study in progress. Abstract: Background: Paediatric Chronic Fatigue Syndrome or Myalgic Encaphalistis (CFS/ME) is disabling and...
    Thread by: Andy, Jun 10, 2021 at 2:23 PM, 12 replies, in forum: PsychoSocial ME/CFS Research
  2. Sly Saint
    Thread

    Webinar The Royal Society of Medicine: Spotlight on Long Covid 8 July 2021

    Join us to hear the most up-to-date clinical knowledge about Long Covid from leading researchers, expert clinicians, and patient voices. With...
    Thread by: Sly Saint, May 28, 2021, 4 replies, in forum: Epidemics (including Covid-19)
  3. Sly Saint
    Thread

    Is it time to ACT? qualitative study of acceptability, feasibility of Acceptance and Commitment Therapy for adolescents with CFS, 2021, Crawley et al

    preprint Is it time to ACT? A qualitative study of the acceptability and feasibility of Acceptance and Commitment Therapy for adolescents with...
    Thread by: Sly Saint, Apr 25, 2021, 28 replies, in forum: PsychoSocial ME/CFS Research
  4. Sly Saint
    Thread

    Practical Paediatrics Update 2021:Interactive on-line lectures followed with case scenarios, discussion and Q&A Jun 11; Crawley

    FRIDAY 11 JUNE 2021 10:00 – 10:45 Paediatric Chronic Fatigue Professor Esther Crawley, Consultant Paediatrician, The Royal United Hospitals Bath...
    Thread by: Sly Saint, Apr 21, 2021, 1 replies, in forum: General ME/CFS News
  5. Andy
    Thread

    Anticipation of and response to exercise in adolescents with CFS: An experimental study, 2021, Loades, Chalder et al

    "Highlights • Adolescents with CFS, asthma and healthy controls undertook an exercise task. • Those with CFS took longer to complete a...
    Thread by: Andy, Apr 20, 2021, 34 replies, in forum: PsychoSocial ME/CFS Research
  6. Andy
    Thread

    Exploring anhedonia in adolescents with Chronic Fatigue Syndrome (CFS): A mixed-methods study, 2021, Smith, Crawley, Loades et al

    Abstract Background: Chronic Fatigue Syndrome (CFS/ME) may get in the way of enjoying activities. A substantial minority of adolescents with...
    Thread by: Andy, Apr 18, 2021, 15 replies, in forum: PsychoSocial ME/CFS Research
  7. Sly Saint
    Thread

    “She used to be Tigger and then she was Eeyore”: young people, CFS/ME, exploring predictors of recovery, 2021, Clery, Crawley et al

    P1 “She used to be Tigger and then she was Eeyore”: A qualitative study with children and young people with CFS/ME, exploring predictors of...
    Thread by: Sly Saint, Apr 14, 2021, 23 replies, in forum: PsychoSocial ME/CFS Research
  8. Three Chord Monty
    Thread

    Recovery from chronic fatigue syndrome: a systematic review—heterogeneity of definition limits study comparison, 2021, Moore et al (Esther Crawley)

    Recovery from chronic fatigue syndrome: a systematic review—heterogeneity of definition limits study comparison Yasmin Moore Teona Serafimova...
    Thread by: Three Chord Monty, Apr 13, 2021, 9 replies, in forum: PsychoSocial ME/CFS Research
  9. Marky
    Thread

    "The ME scandal"

    Hey Someone anonymous from Norway have produced a very thorough two part series on different topics (PACE, Lightning Process etc.) It has...
    Thread by: Marky, Mar 28, 2021, 20 replies, in forum: General ME/CFS News
  10. Sly Saint
    Thread

    POMME Study: Paediatric Outcome Measure ME 2020 Crawley et al

    https://www.ruh.nhs.uk/patients/services/clinical_depts/paediatric_cfs_me/index.asp...
    Thread by: Sly Saint, Mar 11, 2021, 10 replies, in forum: PsychoSocial ME/CFS Research
  11. Andy
    Thread

    Cost-effectiveness of Interventions for Chronic Fatigue Syndrome or Myalgic Encephalomyelitis: A Systematic Review.., Cochrane, Crawley et al, 2021

    Full title: Cost-effectiveness of Interventions for Chronic Fatigue Syndrome or Myalgic Encephalomyelitis: A Systematic Review of Economic...
    Thread by: Andy, Mar 2, 2021, 11 replies, in forum: PsychoSocial ME/CFS Research
  12. Sly Saint
    Thread

    Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study): 2021 Stephenson and Crawley

    I haven't searched for more info on this yet. Stevenson Terence PI. Crawley Esther Co-A. Non-hospitalised Children & young people (CYP) with Long...
    Thread by: Sly Saint, Feb 8, 2021, 31 replies, in forum: Epidemics (including Covid-19)
  13. Sly Saint
    Thread

    Exploring the prevalence of Pompe’s disease in patients diagnosed with CFS/ME: 2021 Crawley

    I haven't searched for more details on this yet. Esther Crawley: Sanofi: Exploring the prevalence of Pompe’s disease in patients diagnosed with...
    Thread by: Sly Saint, Feb 8, 2021, 9 replies, in forum: BioMedical ME/CFS Research
  14. Sly Saint
    Thread

    CADENCE study: to assess whether raised CRP is associated with probable depression in children and young people with CFS/ME. Loades, Crawley- ongoing

    This study aims to assess whether raised CRP (a blood test used as a marker of inflammation) is associated with probable depression in children...
    Thread by: Sly Saint, Jan 3, 2021, 13 replies, in forum: PsychoSocial ME/CFS Research
  15. Sly Saint
    Thread

    ExFACTR Study: Exploring the Feasibility of ACT for Children and young people with CFS/ME ... in prep. for an RCT. Crawley et al. Recruiting Jan 2021

    Exploring the Feasibility of ACT for Children and young people with CFS/ME who have been receiving Treatment for more than 12 months or 12...
    Thread by: Sly Saint, Dec 19, 2020, 40 replies, in forum: PsychoSocial ME/CFS Research
  16. Andy
    Thread

    Paediatric chronic fatigue syndrome: 25 year perspective, 2020, Loades, Crawley, Chalder et al

    Over the lifetime of Clinical Child Psychology and Psychiatry, there has been considerable progress in understanding the epidemiology of Chronic...
    Thread by: Andy, Dec 12, 2020, 22 replies, in forum: PsychoSocial ME/CFS Research
  17. Dolphin
    Thread

    Adolescents and their parents’ experiences of internet delivered home treatment for chronic fatigue syndrome/me (fitnet-NHS trial),2020, Parslow et al

    https://adc.bmj.com/content/105/Suppl_1/A56.1 G162 Adolescents and their parents’ experiences of internet delivered home treatment for chronic...
    Thread by: Dolphin, Oct 31, 2020, 2 replies, in forum: PsychoSocial ME/CFS Research
  18. John Mac
    Thread

    Do treatments for paediatric chronic fatigue syndrome improve pain? a systematic review, Ascough et al, 2020 G535(P)

    Abstract Aims Paediatric chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) is common (prevalence 1–2%). Two thirds of children...
    Thread by: John Mac, Oct 27, 2020, 9 replies, in forum: PsychoSocial ME/CFS Research
  19. Jonathan Edwards
    Thread

    Does the new ME/CFS research of BPS proponents affect anything much now?

    This post has been copied and following posts moved from this thread: Possibility of ME or PVFS after COVID-19, Long Covid Yeah, I think it's...
    Thread by: Jonathan Edwards, Oct 24, 2020, 28 replies, in forum: PsychoSocial ME/CFS News
  20. Andy
    Thread

    Chronic fatigue syndrome/myalgic encephalomyelitis in children aged 5 to 11 years: A qualitative study, 2020, Bridgen, Crawley et al

    Treatments for paediatric chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) have not been designed or evaluated for younger children...
    Thread by: Andy, Oct 24, 2020, 14 replies, in forum: PsychoSocial ME/CFS Research
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