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crawley

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  1. Sly Saint
    Thread

    Long COVID and post-infective fatigue syndrome – a review, 2021, Sandler, Moss-Morris, Crawley, Knoop et al

    Abstract Fatigue is a dominant feature of both acute and convalescent COVID-19 (sometimes termed ‘long-COVID’), with up to 46% of patients...
    Thread by: Sly Saint, Sep 11, 2021, 1 replies, in forum: Epidemics (including Covid-19)
  2. Dx Revision Watch
    Thread

    Dr Phil Hammond and ME/CFS (UK, Bath paediatric CFS clinic)

    This post is copied and following posts moved from this thread: NICE pauses publication of updated ME/CFS guideline hours before publication was...
    Thread by: Dx Revision Watch, Aug 22, 2021, 187 replies, in forum: 2020 UK NICE ME/CFS Guideline
  3. Sly Saint
    Thread

    Article Guardian: First year of pandemic claimed lives of 25 young people in England

    The studies did not assess the risk of “long Covid” in under 18s. However, speaking at a separate online seminar organised by the Royal Society of...
    Thread by: Sly Saint, Jul 10, 2021, 3 replies, in forum: Epidemics (including Covid-19)
  4. Andy
    Thread

    CBT repackaged or a novel treatment? The Lightning Process compared with UK specialist medical care for paediatric [CFS], 2021, Anderson et al

    Authors: Emma C. Anderson, Maria Loades, Jennifer Starbuck, Phil Parker, Fiona Finch, Rebecca Barnes, Lucy Beasant & Esther Crawley ABSTRACT...
    Thread by: Andy, Jul 5, 2021, 55 replies, in forum: Alternative Therapies
  5. Andy
    Thread

    In progress: Measuring Health in Children with CFS/ME: Refinement, application and evaluation of new PROM (PEACH) in routine practice, Crawley et al

    Funded study in progress. Abstract: Background: Paediatric Chronic Fatigue Syndrome or Myalgic Encaphalistis (CFS/ME) is disabling and...
    Thread by: Andy, Jun 10, 2021, 16 replies, in forum: PsychoSocial ME/CFS Research
  6. Sly Saint
    Thread

    Webinar The Royal Society of Medicine: Spotlight on Long Covid 8 July 2021

    Join us to hear the most up-to-date clinical knowledge about Long Covid from leading researchers, expert clinicians, and patient voices. With...
    Thread by: Sly Saint, May 28, 2021, 11 replies, in forum: Epidemics (including Covid-19)
  7. Sly Saint
    Thread

    Is it time to ACT? qualitative study of acceptability, feasibility of Acceptance and Commitment Therapy for adolescents with CFS, 2021, Crawley et al

    preprint Is it time to ACT? A qualitative study of the acceptability and feasibility of Acceptance and Commitment Therapy for adolescents with...
    Thread by: Sly Saint, Apr 25, 2021, 28 replies, in forum: PsychoSocial ME/CFS Research
  8. Sly Saint
    Thread

    Practical Paediatrics Update 2021:Interactive on-line lectures followed with case scenarios, discussion and Q&A Jun 11; Crawley

    FRIDAY 11 JUNE 2021 10:00 – 10:45 Paediatric Chronic Fatigue Professor Esther Crawley, Consultant Paediatrician, The Royal United Hospitals Bath...
    Thread by: Sly Saint, Apr 21, 2021, 1 replies, in forum: General ME/CFS News
  9. Andy
    Thread

    Anticipation of and response to exercise in adolescents with CFS: An experimental study, 2021, Loades, Chalder et al

    "Highlights • Adolescents with CFS, asthma and healthy controls undertook an exercise task. • Those with CFS took longer to complete a...
    Thread by: Andy, Apr 20, 2021, 34 replies, in forum: PsychoSocial ME/CFS Research
  10. Andy
    Thread

    Exploring anhedonia in adolescents with Chronic Fatigue Syndrome (CFS): A mixed-methods study, 2021, Smith, Crawley, Loades et al

    Abstract Background: Chronic Fatigue Syndrome (CFS/ME) may get in the way of enjoying activities. A substantial minority of adolescents with...
    Thread by: Andy, Apr 18, 2021, 15 replies, in forum: PsychoSocial ME/CFS Research
  11. Sly Saint
    Thread

    “She used to be Tigger and then she was Eeyore”: young people, CFS/ME, exploring predictors of recovery, 2021, Clery, Crawley et al

    P1 “She used to be Tigger and then she was Eeyore”: A qualitative study with children and young people with CFS/ME, exploring predictors of...
    Thread by: Sly Saint, Apr 14, 2021, 23 replies, in forum: PsychoSocial ME/CFS Research
  12. Three Chord Monty
    Thread

    Recovery from chronic fatigue syndrome: a systematic review—heterogeneity of definition limits study comparison, 2021, Moore et al (Esther Crawley)

    Recovery from chronic fatigue syndrome: a systematic review—heterogeneity of definition limits study comparison Yasmin Moore Teona Serafimova...
    Thread by: Three Chord Monty, Apr 13, 2021, 9 replies, in forum: PsychoSocial ME/CFS Research
  13. Marky
    Thread

    "The ME scandal"

    Hey Someone anonymous from Norway have produced a very thorough two part series on different topics (PACE, Lightning Process etc.) It has...
    Thread by: Marky, Mar 28, 2021, 20 replies, in forum: General ME/CFS News
  14. Sly Saint
    Thread

    POMME Study: Paediatric Outcome Measure ME 2020 Crawley et al

    https://www.ruh.nhs.uk/patients/services/clinical_depts/paediatric_cfs_me/index.asp...
    Thread by: Sly Saint, Mar 11, 2021, 10 replies, in forum: PsychoSocial ME/CFS Research
  15. Andy
    Thread

    Cost-effectiveness of Interventions for Chronic Fatigue Syndrome or Myalgic Encephalomyelitis: A Systematic Review.., Cochrane, Crawley et al, 2021

    Full title: Cost-effectiveness of Interventions for Chronic Fatigue Syndrome or Myalgic Encephalomyelitis: A Systematic Review of Economic...
    Thread by: Andy, Mar 2, 2021, 11 replies, in forum: PsychoSocial ME/CFS Research
  16. Andy
    Thread

    CONservative TReatment of Appendicitis in Children: a randomised controlled feasibility Trial (CONTRACT) , Hall, Crawley et al, 2021

    Objective To establish the feasibility of a multicentre randomised controlled trial to assess the effectiveness and cost-effectiveness of a...
    Thread by: Andy, Feb 21, 2021, 30 replies, in forum: Health News and Research unrelated to ME/CFS
  17. Sly Saint
    Thread

    Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study), 2021, Stephenson and Crawley

    I haven't searched for more info on this yet. Stevenson Terence PI. Crawley Esther Co-A. Non-hospitalised Children & young people (CYP) with Long...
    Thread by: Sly Saint, Feb 8, 2021, 69 replies, in forum: Epidemics (including Covid-19)
  18. Sly Saint
    Thread

    Exploring the prevalence of Pompe’s disease in patients diagnosed with CFS/ME: 2021 Crawley

    I haven't searched for more details on this yet. Esther Crawley: Sanofi: Exploring the prevalence of Pompe’s disease in patients diagnosed with...
    Thread by: Sly Saint, Feb 8, 2021, 9 replies, in forum: BioMedical ME/CFS Research
  19. Sly Saint
    Thread

    CADENCE study: to assess whether raised CRP is associated with probable depression in children and young people with CFS/ME. Loades, Crawley- ongoing

    This study aims to assess whether raised CRP (a blood test used as a marker of inflammation) is associated with probable depression in children...
    Thread by: Sly Saint, Jan 3, 2021, 13 replies, in forum: PsychoSocial ME/CFS Research
  20. Sly Saint
    Thread

    ExFACTR Study: Exploring the Feasibility of ACT for Children and young people with CFS/ME ... in prep. for an RCT. Crawley et al. Recruiting Jan 2021

    Exploring the Feasibility of ACT for Children and young people with CFS/ME who have been receiving Treatment for more than 12 months or 12...
    Thread by: Sly Saint, Dec 19, 2020, 40 replies, in forum: PsychoSocial ME/CFS Research
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