crawley

  1. Sly Saint

    Defining the minimally clinically important difference of the SF-36 physical function subscale for paediatric CFS/ME - Crawley et al

    Defining the minimally clinically important difference of the SF-36 physical function subscale for paediatric CFS/ME: triangulation using three different methods Amberly Brigden Roxanne M Parslow Daisy Gaunt Simon M Collin Andy Jones Esther Crawley...
  2. Kalliope

    David Tuller: Trial By Error: So What's Happening with the MAGENTA Trial?

    So what's happening with the MAGENTA trial? I’ll be in Bristol later this week for the CFS/ME Research Collaborative’s annual conference. I was not welcome last year, since I was at that point engaged in harshly criticizing the organization for its unwillingness to acknowledge that its deputy...
  3. T

    Using the internet to cope with chronic fatigue syndrome/myalgic encephalomyelitis in adolescence: a qualitative study (Brigden et al., 2018)

    Free full text: https://bmjpaedsopen.bmj.com/content/2/1/e000299 http://dx.doi.org/10.1136/bmjpo-2018-000299
  4. Sly Saint

    NIHR Fellowships - 2017 round 11

    " Applications for all levels of Round 11 of the Fellowships Programme have now closed. Five levels of NIHR Fellowship awards were available: Doctoral, Post Doctoral, Transitional Research, Career Development and Senior Research...
  5. E

    David Tuller: Trial By Error: The Contentless “Editor’s Note” About the Lightning Process Trial

    Trial By Error: The Contentless “Editor’s Note” About the Lightning Process Trial http://www.virology.ws/2018/07/16/trial-by-error-the-contentless-editors-note-about-the-lightning-process-trial/ 16 July 2018 By David Tuller, DrPH Last week, I noticed that Nick Brown, the editor-in-chief of...
  6. Indigophoton

    David Tuller: Trial By Error: My Letter to Parliament’s Science and Technology Committee

    http://www.virology.ws/2018/07/11/trial-by-error-my-letter-to-the-science-and-technology-committee/
  7. Melanie

    Archive of Diseases in Childhood: Editor's Note on Lightning Process Trial (June 2018)

  8. Kalliope

    David Tuller: Trial By Error: Waiting for Godlee

    Trial by Error: Waiting for Godlee This morning I sent another letter to Fiona Godlee, editor-in-chief at The BMJ and editorial director at BMJ. Hopefully she will take action soon on the two pediatric papers whose publication has demonstrated that something is seriously amiss at the journals...
  9. Kalliope

    David Tuller: Trial By Error: My Letter To Fiona Godlee

    My Letter to Fiona Godlee Earlier today, I e-mailed the following letter to Fiona Godlee, the editor-in-chief at The BMJ and editorial director of BMJ. I cc’d the Health Research Authority, the CFS/ME Research Collaborative, NICE, Carol Monaghan, etc. The subject line: BMJ’s failure to...
  10. Sly Saint

    MAGENTA (Managed Activity Graded Exercise iN Teenagers and pre-Adolescents) - Esther Crawley

    https://bmjopen.bmj.com/content/6/7/e011255 " Study design This study started in September 2015 and recruitment is expected to finish in August 2016. This is a feasibility RCT with integrated qualitative methods." " Ethical considerations GET, CBT and activity management are recommended as...
  11. Indigophoton

    David Tuller: Trial by Error: My exchange with Professor Bishop

    http://www.virology.ws/2018/06/25/trial-by-error-my-exchange-with-professor-bishop/
  12. Andy

    Children’s views on research without prior consent in emergency situations: a UK qualitative study, 2018, Woolfall et al (including Crawley)

    Exploring more ways to take advantage of children. Open access at http://bmjopen.bmj.com/content/8/6/e022894
  13. Kalliope

    David Tuller: Trial By Error: BMJ Still "Looking Into" Lightning Process Paper

    BMJ Still "Looking Into Lightning Process Paper" Tuller has received via CC an e-mail from dr. Brown, editor of Archives of Disease in Childhood, stating that they had previously acknowledged receipt of his complaints, are looking into them and will respond fully when ready. Tuller has...
  14. Andy

    Current treatment approaches for paediatric CFS/ME, 2017, Loades, Bridgen and Crawley

    If you really want to, the rest can be read at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5939995/
  15. Cheshire

    Esther Crawley's contribution to #MEawarenessweek

    Not a joke... :( What a bitter hijack... Direct link: https://www.nihr.ac.uk/blogs/worries-that-keep-you-awake-at-night/8466 Just a little extract to let you have a taste of her revolting prose (this woman really has no decency): Leaving the field would be your best contribution, Esther...
  16. Sly Saint

    'Cashing in' on Crawleys research

    The obvious example is the Lightning Process......but I've been coming across a number of others who are citing Crawleys research to promote their 'product'...eg " The researchers from the University of Bristol (UK) conducted the biggest study about chronic fatigue syndrome (CFS). CFS is also...
  17. Sly Saint

    What it's like to have Chronic Fatigue Syndrome, an illness that makes you feel exhausted all the time

    I thought I might have seen this posted somewhere but can't find it. It says 2018 but from the link it might be from 2016.: " Alison Millington Mar. 22, 2018 " Living with CFS feels like being tired all the time — but it's so much more than being tired. The illness is thought to affect at...
  18. Webdog

    Pediatric chronic fatigue syndrome: current perspectives (Crawley)

    New Crawley publication in the journal Pediatric Health, Medicine and Therapeutics. https://www.dovepress.com/pediatric-chronic-fatigue-syndrome-current-perspectives-peer-reviewed-article-PHMT Edit: Fixed a mistyped date.
  19. Jonathan Edwards

    BACME Meeting 14-15 March

    Discussion about the BACME conference prior to it starting is on this thread. https://www.s4me.info/threads/bacme-national-conference-14-15th-march-2018-‘changing-times’.1767/ It seems there was a BACME meeting this week 14-15 March. It included presentations from Ann McArdle on muscle...
  20. Cheshire

    David Tuller - Trial By Error: News about Esther Crawley

    This thread focuses on the news about Esther Crawley in David Tuller's recent blog. It has been split from this thread which focuses on the information about the Australian situation in David Tuller's recent blog...
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