1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for CFS here.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 19th February 2024 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

What it's like to have Chronic Fatigue Syndrome, an illness that makes you feel exhausted all the time

Discussion in 'General ME/CFS news' started by Sly Saint, Apr 15, 2018.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    I thought I might have seen this posted somewhere but can't find it.
    It says 2018 but from the link it might be from 2016.:
    Alison Millington
    Mar. 22, 2018

    • Living with CFS feels like being tired all the time — but it's so much more than being tired.
    • The illness is thought to affect at least 17 million people worldwide, and four times as many women as men.
    • It's normally triggered by viral infections like glandular fever, and can last a lifetime.
    • It can come along with headaches and a foggy brain, making simple tasks difficult.
    • While a 2011 trial suggested CFS can be helped with exercise or psychological therapy, a new analysis of the study found that there are actually no longer-term benefits of either.
    After months of struggling both mentally and physically to do simple tasks, dealing with a constantly foggy brain and serious exhaustion that wouldn’t go away no matter how much I slept, a doctor told me I had Chronic Fatigue Syndrome (CFS).

    Having never heard of it, my response was skeptical, and somewhat annoyed — similar to when you’re told "it’s only a virus" after having a miserable cold for weeks on end.

    It felt like a cop-out. But when she told me that there was a chance it would never go away, and the only way to help it was to "avoid exerting too much energy," I decided to do my research.

    That was four years ago. Since then, I've learned many things about CFS, including what it is and, just as importantly, what it isn't."

    Invisible Woman, Andy, Barry and 5 others like this.
  2. alktipping

    alktipping Senior Member (Voting Rights)

    cant really like that article. for someone with degree level education and a journalist no less to write in a way that seems careless towards the facts of her own illness and the obscenity of crawleys work defies belief.
  3. Little Bluestem

    Little Bluestem Senior Member (Voting Rights)

    At least she refers to serious exhaustion and not fatigue.
    alktipping likes this.
  4. Trish

    Trish Moderator Staff Member

    It's a mix of good and bad - good in emphasising that GET doesn't work, and rest is best, but then it confuses the issue because she seems to be one of the lucky few who recovered sufficiently to be able to exercise again.
    Good in mentioning PACE being debunked by Wilshire's paper, but awful in praising Crawley's FITNET study which is so unscientific it will do huge harm. And I wish people wouldn't describe it as being tired all the time.
  5. Ravn

    Ravn Senior Member (Voting Rights)

    Aotearoa New Zealand
  6. MEMarge

    MEMarge Senior Member (Voting Rights)

    Has some good content, including Dr Nina Muirhead
    rvallee and Invisible Woman like this.

Share This Page