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  1. rvallee
    Thread

    A randomised controlled trial of the effectiveness of an exercise training program in patients recovering from SARS, 2005

    (This was about SARS, not properly controlled either) A randomised controlled trial of the effectiveness of an exercise training program in...
    Thread by: rvallee, Dec 26, 2020, 3 replies, in forum: Epidemics (including Covid-19)
  2. Milo
    Thread

    Protocol for a randomised controlled feasibility trial of exercise rehabilitation for people with POTS: the PULSE study (2020) MacGregor et al

    Abstract: Background Postural orthostatic tachycardia syndrome (POTS) is an autonomic nervous system disorder causing an abnormal cardiovascular...
    Thread by: Milo, Oct 23, 2020, 7 replies, in forum: Health News and Research unrelated to ME/CFS
  3. Kalliope
    Thread

    The ME Association: Scottish Government Issue Caution for Graded Exercise Therapy in ME/CFS & Post/Long-Covid

    The Scottish Health Department has posted an interim statement advising caution over the suitability of Graded Exercise Therapy (GET) in treating...
    Thread by: Kalliope, Oct 15, 2020, 1 replies, in forum: General ME/CFS News
  4. Hutan
    Thread

    Specialist treatment of CFS/ME: a cohort study among adult patients in England, 2017, Collin and Crawley

    Abstract Background NHS specialist chronic fatigue syndrome (CFS/ME) services in England treat approximately 8000 adult patients each year....
    Thread by: Hutan, Oct 5, 2020, 9 replies, in forum: PsychoSocial ME/CFS Research
  5. Tom Kindlon
    Thread

    Dr Alastair Miller's misleading claims about effectiveness of the English NHS (rehab) ME/CFS clinics, Royal Society of Medicine webinar in Sept '20

    This is a quick post I've just posted on Facebook. If anyone spots any errors, let me know; alternatively, let me know if you think everything is...
    Thread by: Tom Kindlon, Oct 4, 2020, 13 replies, in forum: General ME/CFS News
  6. Michiel Tack
    Thread

    Why do doctors use treatments that do not work? Doust & Del Mar, 2005

    Thought this was an interesting editorial. It's from 2004 but is still relevant. The history of medicine is replete with examples of treatments...
    Thread by: Michiel Tack, Sep 18, 2020, 5 replies, in forum: Health News and Research unrelated to ME/CFS
  7. InitialConditions
    Thread

    NICE Statement about graded exercise therapy in the context of COVID-19

    https://www.nice.org.uk/guidance/gid-ng10091/documents/interim-findings-2 "NICE is aware of concerns about graded exercise therapy (GET) for...
    Thread by: InitialConditions, Jul 11, 2020, 164 replies, in forum: Information for NICE guidelines
  8. chrisb
    Thread

    Normal muscle strength and fatiguability in patients with effort syndromes, 1988, Stokes at al

    I realise that this is hardly news but thought it worth a reread as Chalder and Butler in a 1989 MEA newsletter considered it one of the two...
    Thread by: chrisb, Jul 3, 2020, 20 replies, in forum: PsychoSocial ME/CFS Research
  9. cassava7
    Thread

    The concept of ‘illness without disease’ impedes understanding of chronic fatigue syndrome: a response to Sharpe and Greco, 2020, Lubet & Tuller

    Mod note: The reply by Lubet and Tuller was in response to an article by Sharpe and Greco, discussed here: Michael Sharpe: Mind, Medicine and...
    Thread by: cassava7, Jun 3, 2020, 10 replies, in forum: PsychoSocial ME/CFS Research
  10. Lucibee
    Thread

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    This post and the following one have been moved or copied from this thread. Oooooo...! [MEDIA]...
    Thread by: Lucibee, Feb 13, 2020, 664 replies, in forum: PsychoSocial ME/CFS News
  11. Andy
    Thread

    The Impact of a Structured Exercise Programme upon Cognitive Function in Chronic Fatigue Syndrome Patients, 2019, Zalewski, Morten, Newton et al

    Background: Cognitive function disturbance is a frequently described symptom of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). In...
    Thread by: Andy, Dec 19, 2019, 24 replies, in forum: PsychoSocial ME/CFS Research
  12. Michiel Tack
    Thread

    Why the Cochrane review on exercise therapy for chronic fatigue syndrome is still misleading

    I've written a blog post about the recent amendment to the Cochrane review and how it doesn't address the major flaws. I will post the full text...
    Thread by: Michiel Tack, Oct 20, 2019, 19 replies, in forum: PsychoSocial ME/CFS Research
  13. Trish
    Thread

    Open Letter to the Chief Executive of Action for ME about the AfME web page on Graded Exercise Therapy

    Following discussion on this thread I have now sent the following personal letter to Sonya Chowdhury, Chief Executive of the UK charity Action for...
    Thread by: Trish, Oct 20, 2019, 24 replies, in forum: Open Letters and Replies
  14. Michiel Tack
    Thread

    The influence of the Cochrane review on GET

    I thought it might be useful to get an overview of medical guidelines on ME/CFS that have been influenced by the Cochrane review on graded...
    Thread by: Michiel Tack, Oct 17, 2019, 31 replies, in forum: PsychoSocial ME/CFS Research
  15. Michiel Tack
    Thread

    Patient survey by the Dutch ME/CFS Association - Corsius et al. 2019

    Corsius et al. (2019). Zorg voor betere behandeling bij ME. Enquête onder ME-patiënten naar hun ervaringen met behandelingen bij ME. A new...
    Thread by: Michiel Tack, Sep 12, 2019, 17 replies, in forum: PsychoSocial ME/CFS Research
  16. MSEsperanza
    Thread

    Fatigue Exacerbation by Interval or Continuous Exercise in Chronic Fatigue Syndrome (2016) Sandler, C; Llloyd, A; Barry, B

    Sandler, C; Llloyd, A Barry, B (2016), Fatigue Exacerbation by Interval or Continuous Exercise in Chronic Fatigue Syndrome, Medicine & Science in...
    Thread by: MSEsperanza, Jul 30, 2019, 9 replies, in forum: PsychoSocial ME/CFS Research
  17. Sly Saint
    Thread

    Royal Free - PACE trial involvement, CBT and GET justification

    On Royal Free website: CFS/ME research Royal Free London chronic fatigue syndrome/ME research project: the PACE trial The Royal Free London...
    Thread by: Sly Saint, Jun 21, 2019, 17 replies, in forum: General ME/CFS News
  18. Trish
    Thread

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    This thread aims to draw together all our discussions on the Cochrane Review: Exercise Therapy for Chronic Fatigue Syndrome, Version published:...
    Thread by: Trish, Jun 18, 2019, 392 replies, in forum: General ME/CFS News
  19. Estherbot
    Thread

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Michael Sharpe breaks his retirement promise on ME/CFS and returns with this monstrosity, a blog for the BMJ (British Medical Journal) He says...
    Thread by: Estherbot, May 29, 2019, 393 replies, in forum: PsychoSocial ME/CFS News
  20. Estherbot
    Thread

    Presidential election RCGP

    The Royal College of General Practioners (RCGP) is having its Presidential election soon....
    Thread by: Estherbot, May 21, 2019, 7 replies, in forum: Advocacy Action Alerts
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