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  1. Trish
    Thread

    The Draft Report by the Institute..[IQWiG] Does Not Provide Any Evidence That GET and CBT are Safe and Effective treatments for ME/CFS, 2023, Vink et

    The Draft Report by the Institute for Quality and Efficiency in Healthcare Does Not Provide Any Evidence That Graded Exercise Therapy and...
    Thread by: Trish, Jan 16, 2023, 8 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  2. Purple
    Thread

    Is there evidence that GET is harmful?

    There's a thread dating from four years ago about GET and whether there is good evidence it is actually harmful. I was wondering whether there has...
    Thread by: Purple, Dec 27, 2022, 0 replies, in forum: Psychosomatic theories and treatments discussions
  3. Andy
    Thread

    Effect of using a structured pacing protocol on post-exertional symptom exacerbation and health status in a longitudinal cohort... 2022 Parker et al

    Full title: Effect of using a structured pacing protocol on post-exertional symptom exacerbation and health status in a longitudinal cohort with...
    Thread by: Andy, Dec 4, 2022, 56 replies, in forum: Long Covid research
  4. Peter Trewhitt
    Thread

    Commentary: Graded Exercise Therapy and Cognitive Behaviour Therapy Do Not Improve Employment Outcomes in ME/CFS, 2022, Tuller and Vink

    This post has been copied from this thread: Percentage of people with ME/CFS able to work or attend school The latest Virology blog: “Trial By...
    Thread by: Peter Trewhitt, Oct 1, 2022, 14 replies, in forum: ME/CFS research
  5. chillier
    Thread

    cognitive behavioural and personalised exercise interventions for fatigue in inflammatory rheumatic diseases (LIFT), 2022, Bachmair et al

    Merged thread - article discussed first Abstract here Came across this article in the telegraph reporting CBT and exercise improves fatigue in...
    Thread by: chillier, Jun 28, 2022, 36 replies, in forum: Other health news and research
  6. Hutan
    Thread

    Interventions for the Treatment and Management of CFS: A Systematic Review, 2001, Whiting et al

    (an old paper, mentioned on another thread here) Interventions for the Treatment and Management of Chronic Fatigue Syndrome: A Systematic Review...
    Thread by: Hutan, May 15, 2022, 2 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  7. Andy
    Thread

    2022 Brian Hughes on the NICE Guideline and what it means for care of people with ME/CFS

    Copied post The Norwegian ME Association is organising a webinar with prof. Brian Hughes on the NICE guidelines. Anyone can register on zoom for...
    Thread by: Andy, Mar 18, 2022, 7 replies, in forum: Resources
  8. Sly Saint
    Thread

    Australia: RACGP: GET for CFS

    Very PACE trial based information. eg" Adverse effects Surveys by patient groups of their members have suggested that GET may be harmful to some...
    Thread by: Sly Saint, Jan 3, 2022, 7 replies, in forum: General ME/CFS news
  9. Sly Saint
    Thread

    #MEAction: Tell your Doctor that GET is gone

    "The updated NICE guideline on ME/CFS contains substantial changes that alter the treatment and management of people with ME in England and...
    Thread by: Sly Saint, Nov 10, 2021, 7 replies, in forum: Advocacy Projects and Campaigns
  10. Science For ME
    Thread

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    This public thread is for general discussion of the much anticipated NICE 2021 ME/CFS Guideline including media and social media responses and...
    Thread by: Science For ME, Oct 28, 2021, 1,002 replies, in forum: 2020 UK NICE ME/CFS Guideline
  11. John Mac
    Thread

    United Kingdom: Petition Change.org: for a new mechanism by which M.E/C.F.S patients can report harms.

    https://www.change.org/p/department-of-health-and-social-care-we-demand-the-creation-of-a-new-mechanism-by-which-m-e-c-f-s-patients-can-report-harm...
    Thread by: John Mac, Nov 2, 2021, 35 replies, in forum: Petitions
  12. Hutan
    Thread

    ME/CFS services in the United Kingdom

    (Note - this post was actually made on 4 Jul 2022) Note from the moderation team: This thread is for posts about ME/CFS services in the United...
    Thread by: Hutan, Nov 2, 2017, 558 replies, in forum: UK clinics and doctors
  13. rvallee
    Thread

    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    https://kclpure.kcl.ac.uk/portal/en/publications/evidence-based-care-for-people-with-chronic-fatigue-syndrome-and-myalgic-encephalomyelitis(536398c...
    Thread by: rvallee, Oct 21, 2021, 172 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  14. Hutan
    Thread

    Physiotherapy for functional motor disorders: a consensus recommendation, 2015, Nielsen et al

    Open access: https://jnnp.bmj.com/content/86/10/1113 Glenn Nielsen, Jon Stone, Audrey Matthews, Melanie Brown, Chris Sparkes, Ross Farmer,...
    Thread by: Hutan, Sep 13, 2021, 13 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  15. Sly Saint
    Thread

    AMA Journal of Ethics : The Importance of Listening in Treating Invisible Illness and Long-Haul COVID-19

    Primary and specialty care clinicians strive to base diagnoses and treatment on specific, measurable abnormalities. Yet those with invisible,...
    Thread by: Sly Saint, Jul 2, 2021, 12 replies, in forum: General ME/CFS news
  16. Hutan
    Thread

    Germany: IQWIG Report to government on ME/CFS - latest call for feedback by 27 November 2022

    From the News from Germany thread: The IQWIG revealed their method of creating a report about the current situation of ME/CFS for the german...
    Thread by: Hutan, Jul 1, 2021, 151 replies, in forum: Other reviews with a public consultation process
  17. Andy
    Thread

    Graded Exercise Therapy for Patients with Chronic Fatigue Syndrome in Secondary care: a benchmarking study, 2021, Smakowski, Chalder et al

    Abstract Objective We investigated the effectiveness of Graded Exercise Therapy (GET) delivered to patients with Chronic Fatigue Syndrome...
    Thread by: Andy, Jun 30, 2021, 43 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  18. Wyva
    Thread

    Which countries have ditched the BPS approach or removed CBT/GET from their guidelines?

    Apart from the US and the UK, of course. I'm looking for any other countries, even if they just quietly removed the CBT/GET recommendations, so...
    Thread by: Wyva, Jun 19, 2021, 3 replies, in forum: Psychosomatic theories and treatments discussions
  19. Sly Saint
    Thread

    Gez Medinger videos: Part 1 Pacing - Ben Marsh, Part 2 GET - Todd Davenport et al.

    Video: Fatigue, Pacing and PEM Management | Lessons from ME/CFS - With Dr Ben Marsh I know this video has been mentioned on another thread but I...
    Thread by: Sly Saint, Jun 15, 2021, 16 replies, in forum: Resources
  20. Dolphin
    Thread

    Adverse outcomes in trials of graded exercise therapy for adult patients with chronic fatigue syndrome, 2021, White & Etherington

    https://www.sciencedirect.com/science/article/abs/pii/S0022399921001781 Journal of Psychosomatic Research Available online 28 May 2021, 110533 In...
    Thread by: Dolphin, May 31, 2021, 92 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
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