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  1. Andy
    Thread

    Video: Run-DMC: Pacing vs Graded Exercise Therapy | The Academic Battle - in Reality

    "In part 2 of this film about the role of pacing and Long Covid we ask about the role of Graded Exercise Therapy, whether it is safe for patients,...
    Thread by: Andy, Jul 16, 2021, 13 replies, in forum: Epidemics (including Covid-19)
  2. Sly Saint
    Thread

    AMA Journal of Ethics : The Importance of Listening in Treating Invisible Illness and Long-Haul COVID-19

    Primary and specialty care clinicians strive to base diagnoses and treatment on specific, measurable abnormalities. Yet those with invisible,...
    Thread by: Sly Saint, Jul 2, 2021, 12 replies, in forum: General ME/CFS News
  3. Hutan
    Thread

    Germany: IQWIG Report to government on ME/CFS - feedback on Report Plan due 11 Aug 2021

    From the News from Germany thread: The IQWIG revealed their method of creating a report about the current situation of ME/CFS for the german...
    Thread by: Hutan, Jul 1, 2021, 9 replies, in forum: Other reviews with a public consultation process
  4. Andy
    Thread

    Graded Exercise Therapy for Patients with Chronic Fatigue Syndrome in Secondary care: a benchmarking study, 2021, Smakowski, Chalder et al

    Abstract Objective We investigated the effectiveness of Graded Exercise Therapy (GET) delivered to patients with Chronic Fatigue Syndrome...
    Thread by: Andy, Jun 30, 2021, 7 replies, in forum: PsychoSocial ME/CFS Research
  5. Sly Saint
    Thread

    Video: Fatigue, Pacing and PEM Management | Lessons from ME/CFS - With Dr Ben Marsh

    I know this video has been mentioned on another thread but I think it might have been missed by many and deserves a thread of its own. In Episode...
    Thread by: Sly Saint, Jun 15, 2021, 4 replies, in forum: General ME/CFS News
  6. Dolphin
    Thread

    Adverse outcomes in trials of graded exercise therapy for adult patients with chronic fatigue syndrome, 2021, White & Etherington

    https://www.sciencedirect.com/science/article/abs/pii/S0022399921001781 Journal of Psychosomatic Research Available online 28 May 2021, 110533 In...
    Thread by: Dolphin, May 31, 2021, 83 replies, in forum: PsychoSocial ME/CFS Research
  7. Sly Saint
    Thread

    Controversy over exercise therapy for chronic fatigue syndrome: Continuing the debate (from 2017)

    Part of: BJPsych Advances Cochrane Corner and Round the Corner Collection Published online by Cambridge University Press: 11 April 2018 "...
    Thread by: Sly Saint, Apr 25, 2021, 0 replies, in forum: PsychoSocial ME/CFS News
  8. Andy
    Thread

    Guided graded exercise self-help for chronic fatigue syndrome: Long term follow up & cost-effectiveness following the GETSET trial, 2021, Clark et al

    Highlights • Guided graded exercise self-help (GES) can lead to sustained improvement in patients with chronic fatigue syndrome. • There was no...
    Thread by: Andy, Apr 5, 2021, 44 replies, in forum: PsychoSocial ME/CFS Research
  9. Andy
    Thread

    Cost-effectiveness of Interventions for Chronic Fatigue Syndrome or Myalgic Encephalomyelitis: A Systematic Review.., Cochrane, Crawley et al, 2021

    Full title: Cost-effectiveness of Interventions for Chronic Fatigue Syndrome or Myalgic Encephalomyelitis: A Systematic Review of Economic...
    Thread by: Andy, Mar 2, 2021, 11 replies, in forum: PsychoSocial ME/CFS Research
  10. rvallee
    Thread

    A randomised controlled trial of the effectiveness of an exercise training program in patients recovering from SARS, 2005

    (This was about SARS, not properly controlled either) A randomised controlled trial of the effectiveness of an exercise training program in...
    Thread by: rvallee, Dec 26, 2020, 3 replies, in forum: Epidemics (including Covid-19)
  11. Milo
    Thread

    Protocol for a randomised controlled feasibility trial of exercise rehabilitation for people with POTS: the PULSE study (2020) MacGregor et al

    Abstract: Background Postural orthostatic tachycardia syndrome (POTS) is an autonomic nervous system disorder causing an abnormal cardiovascular...
    Thread by: Milo, Oct 23, 2020, 7 replies, in forum: Health News and Research unrelated to ME/CFS
  12. Sly Saint
    Thread

    The Effect of CBT, GET and Pacing Treatments on ME/CFS Symptoms: Analysis of a Patient Survey compared against Secondary Surveys - 2017 Geraghty et al

    Problem Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) severely impacts the quality of life of sufferers. Most ME/CFS patients will...
    Thread by: Sly Saint, Oct 18, 2020, 7 replies, in forum: PsychoSocial ME/CFS Research
  13. Kalliope
    Thread

    The ME Association: Scottish Government Issue Caution for Graded Exercise Therapy in ME/CFS & Post/Long-Covid

    The Scottish Health Department has posted an interim statement advising caution over the suitability of Graded Exercise Therapy (GET) in treating...
    Thread by: Kalliope, Oct 15, 2020, 6 replies, in forum: General ME/CFS News
  14. Hutan
    Thread

    Specialist treatment of CFS/ME: a cohort study among adult patients in England, 2017, Collin and Crawley

    Abstract Background NHS specialist chronic fatigue syndrome (CFS/ME) services in England treat approximately 8000 adult patients each year....
    Thread by: Hutan, Oct 5, 2020, 9 replies, in forum: PsychoSocial ME/CFS Research
  15. Andy
    Thread

    Dr Alastair Miller's misleading claims about effectiveness of the English NHS (rehab) ME/CFS clinics, Royal Society of Medicine webinar in Sept '20

    [MEDIA] Proponents of cognitive behavior therapy and graded exercise therapy as treatments for CFS, ME, or their variants keep trotting out their...
    Thread by: Andy, Oct 2, 2020, 15 replies, in forum: General ME/CFS News
  16. Michiel Tack
    Thread

    Why do doctors use treatments that do not work? Doust & Del Mar, 2005

    Thought this was an interesting editorial. It's from 2004 but is still relevant. The history of medicine is replete with examples of treatments...
    Thread by: Michiel Tack, Sep 18, 2020, 5 replies, in forum: Health News and Research unrelated to ME/CFS
  17. Dolphin
    Thread

    (Spanish) Effectiveness of graduated therapeutic exercise and CBT in CFS a systematic review, 2020, Polo Ferrandez

    Free full text: https://gredos.usal.es/bitstream/handle/10366/143718/TFG_PoloFerrandez_EjercicioFatiga.pdf?sequence=1&isAllowed=y From: Dr....
    Thread by: Dolphin, Jul 26, 2020, 8 replies, in forum: PsychoSocial ME/CFS Research
  18. strategist
    Thread

    MEAction UK has sent an open letter to Matt Hancock asking him to recognise the harm caused by GET

    Please email your MP and ask them to write to Matt Hancock, Secretary of State for Health and Social Care calling on him to: Request NICE adds...
    Thread by: strategist, Jul 15, 2020, 6 replies, in forum: General ME/CFS News
  19. InitialConditions
    Thread

    NICE Statement about graded exercise therapy in the context of COVID-19

    https://www.nice.org.uk/guidance/gid-ng10091/documents/interim-findings-2 "NICE is aware of concerns about graded exercise therapy (GET) for...
    Thread by: InitialConditions, Jul 11, 2020, 163 replies, in forum: Epidemics (including Covid-19)
  20. chrisb
    Thread

    Normal muscle strength and fatiguability in patients with effort syndromes, 1988, Stokes at al

    I realise that this is hardly news but thought it worth a reread as Chalder and Butler in a 1989 MEA newsletter considered it one of the two...
    Thread by: chrisb, Jul 3, 2020, 20 replies, in forum: PsychoSocial ME/CFS Research
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