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  1. Sly Saint
    Thread

    #MEAction: Tell your Doctor that GET is gone

    "The updated NICE guideline on ME/CFS contains substantial changes that alter the treatment and management of people with ME in England and...
    Thread by: Sly Saint, Nov 10, 2021, 6 replies, in forum: Advocacy Projects and Campaigns
  2. Science For ME
    Thread

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    This public thread is for general discussion of the much anticipated NICE 2021 ME/CFS Guideline including media and social media responses and...
    Thread by: Science For ME, Oct 28, 2021, 648 replies, in forum: 2020 UK NICE ME/CFS Guideline
  3. John Mac
    Thread

    United Kingdom: Petition Change.org: for a new mechanism by which M.E/C.F.S patients can report harms.

    https://www.change.org/p/department-of-health-and-social-care-we-demand-the-creation-of-a-new-mechanism-by-which-m-e-c-f-s-patients-can-report-harm...
    Thread by: John Mac, Nov 2, 2021, 28 replies, in forum: Petitions
  4. Sly Saint
    Thread

    ME/CFS services in the United Kingdom

    This appears to be a new service(?) under Lancashire Care NHS trust. Found this job advert: " Lancashire Care NHS Foundation Trust Clinical...
    Thread by: Sly Saint, Sep 5, 2018, 375 replies, in forum: ME/CFS Doctors
  5. rvallee
    Thread

    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    https://kclpure.kcl.ac.uk/portal/en/publications/evidence-based-care-for-people-with-chronic-fatigue-syndrome-and-myalgic-encephalomyelitis(536398c...
    Thread by: rvallee, Oct 21, 2021, 150 replies, in forum: PsychoSocial ME/CFS Research
  6. Sly Saint
    Thread

    Trial By Error: More Science-as-Promotion from the GET Campaigners

    David Tuller Sept 14 2021 Professor Trudie Chalder, Professor Peter White and like-minded members of the CBT/GET ideological brigades have...
    Thread by: Sly Saint, Sep 15, 2021, 9 replies, in forum: General ME/CFS News
  7. Hutan
    Thread

    Physiotherapy for functional motor disorders: a consensus recommendation, 2015, Nielsen et al

    Open access: https://jnnp.bmj.com/content/86/10/1113 Glenn Nielsen, Jon Stone, Audrey Matthews, Melanie Brown, Chris Sparkes, Ross Farmer,...
    Thread by: Hutan, Sep 13, 2021, 13 replies, in forum: PsychoSocial ME/CFS Research
  8. Andy
    Thread

    Video: Run-DMC: Pacing vs Graded Exercise Therapy | The Academic Battle - in Reality

    "In part 2 of this film about the role of pacing and Long Covid we ask about the role of Graded Exercise Therapy, whether it is safe for patients,...
    Thread by: Andy, Jul 16, 2021, 13 replies, in forum: Epidemics (including Covid-19)
  9. Sly Saint
    Thread

    AMA Journal of Ethics : The Importance of Listening in Treating Invisible Illness and Long-Haul COVID-19

    Primary and specialty care clinicians strive to base diagnoses and treatment on specific, measurable abnormalities. Yet those with invisible,...
    Thread by: Sly Saint, Jul 2, 2021, 12 replies, in forum: General ME/CFS News
  10. Hutan
    Thread

    Germany: IQWIG Report to government on ME/CFS - feedback on Report Plan due 11 Aug 2021

    From the News from Germany thread: The IQWIG revealed their method of creating a report about the current situation of ME/CFS for the german...
    Thread by: Hutan, Jul 1, 2021, 35 replies, in forum: Other reviews with a public consultation process
  11. Andy
    Thread

    Graded Exercise Therapy for Patients with Chronic Fatigue Syndrome in Secondary care: a benchmarking study, 2021, Smakowski, Chalder et al

    Abstract Objective We investigated the effectiveness of Graded Exercise Therapy (GET) delivered to patients with Chronic Fatigue Syndrome...
    Thread by: Andy, Jun 30, 2021, 31 replies, in forum: PsychoSocial ME/CFS Research
  12. Sly Saint
    Thread

    Video: Fatigue, Pacing and PEM Management | Lessons from ME/CFS - With Dr Ben Marsh

    I know this video has been mentioned on another thread but I think it might have been missed by many and deserves a thread of its own. In Episode...
    Thread by: Sly Saint, Jun 15, 2021, 4 replies, in forum: General ME/CFS News
  13. Dolphin
    Thread

    Adverse outcomes in trials of graded exercise therapy for adult patients with chronic fatigue syndrome, 2021, White & Etherington

    https://www.sciencedirect.com/science/article/abs/pii/S0022399921001781 Journal of Psychosomatic Research Available online 28 May 2021, 110533 In...
    Thread by: Dolphin, May 31, 2021, 91 replies, in forum: PsychoSocial ME/CFS Research
  14. Sly Saint
    Thread

    Controversy over exercise therapy for chronic fatigue syndrome: Continuing the debate (from 2017)

    Part of: BJPsych Advances Cochrane Corner and Round the Corner Collection Published online by Cambridge University Press: 11 April 2018 "...
    Thread by: Sly Saint, Apr 25, 2021, 0 replies, in forum: PsychoSocial ME/CFS News
  15. Andy
    Thread

    Guided graded exercise self-help for chronic fatigue syndrome: Long term follow up & cost-effectiveness following the GETSET trial, 2021, Clark et al

    Highlights • Guided graded exercise self-help (GES) can lead to sustained improvement in patients with chronic fatigue syndrome. • There was no...
    Thread by: Andy, Apr 5, 2021, 44 replies, in forum: PsychoSocial ME/CFS Research
  16. Andy
    Thread

    Cost-effectiveness of Interventions for Chronic Fatigue Syndrome or Myalgic Encephalomyelitis: A Systematic Review.., Cochrane, Crawley et al, 2021

    Full title: Cost-effectiveness of Interventions for Chronic Fatigue Syndrome or Myalgic Encephalomyelitis: A Systematic Review of Economic...
    Thread by: Andy, Mar 2, 2021, 11 replies, in forum: PsychoSocial ME/CFS Research
  17. rvallee
    Thread

    A randomised controlled trial of the effectiveness of an exercise training program in patients recovering from SARS, 2005

    (This was about SARS, not properly controlled either) A randomised controlled trial of the effectiveness of an exercise training program in...
    Thread by: rvallee, Dec 26, 2020, 3 replies, in forum: Epidemics (including Covid-19)
  18. Milo
    Thread

    Protocol for a randomised controlled feasibility trial of exercise rehabilitation for people with POTS: the PULSE study (2020) MacGregor et al

    Abstract: Background Postural orthostatic tachycardia syndrome (POTS) is an autonomic nervous system disorder causing an abnormal cardiovascular...
    Thread by: Milo, Oct 23, 2020, 7 replies, in forum: Other Health News and Research
  19. Sly Saint
    Thread

    The Effect of CBT, GET and Pacing Treatments on ME/CFS Symptoms: Analysis of a Patient Survey compared against Secondary Surveys - 2017 Geraghty et al

    Problem Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) severely impacts the quality of life of sufferers. Most ME/CFS patients will...
    Thread by: Sly Saint, Oct 18, 2020, 7 replies, in forum: PsychoSocial ME/CFS Research
  20. Hutan
    Thread

    Specialist treatment of CFS/ME: a cohort study among adult patients in England, 2017, Collin and Crawley

    Abstract Background NHS specialist chronic fatigue syndrome (CFS/ME) services in England treat approximately 8000 adult patients each year....
    Thread by: Hutan, Oct 5, 2020, 9 replies, in forum: PsychoSocial ME/CFS Research
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