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David Tuller: Trial By Error: My Letter To Fiona Godlee

Discussion in 'General ME/CFS News' started by Kalliope, Jul 2, 2018.

  1. Kalliope

    Kalliope Senior Member (Voting Rights)

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    My Letter to Fiona Godlee

    Earlier today, I e-mailed the following letter to Fiona Godlee, the editor-in-chief at The BMJ and editorial director of BMJ. I cc’d the Health Research Authority, the CFS/ME Research Collaborative, NICE, Carol Monaghan, etc.

    The subject line: BMJ’s failure to address problems with pediatric studies of ME/CFS
     
    Inara, ahimsa, mango and 29 others like this.
  2. Trish

    Trish Moderator Staff Member

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    Excellent. More hard hitting and all the better for it - the time for polite restraint has passed. I'm glad @dave30th spelled out just what LP is this time. Maybe that will shock them into action.
     
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  3. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

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    A great letter. Clear, fair, but pulling no punches.

    The BMJ can not keep protecting Prof Crawley's scientific malpractice and the PACE apologists' old boy network indefinitely. There must be a point when the BMJ admits they got it wrong.

    The BMJ is wholely owned by the BMA, could pressure be put on the BMA to encourage an adequate response?
     
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  4. inox

    inox Senior Member (Voting Rights)

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    "So why are ME/CFS patients constantly accused of being anti-science and irrational and “vexatious” for not accepting findings produced by this kind of data-torturing? When it comes to this domain of research, it is clear to non-biased observers that it is the researchers themselves who are best compared to climate-change deniers, not the patients valiantly challenging their terrible science."

    <3
     
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  5. inox

    inox Senior Member (Voting Rights)

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    This bit, of all the things surronding these group of studies, is where I really lost hope in the establishments. It's right there, in the study - or really service evalutation - they went to schools and interviewed parents/children _not attending the clinic_ /flabbergasted

    "Remarkably, in its presentation of the issue to the Committee on Publication Ethics, BMJ Open argued that one reason the study qualified as service evaluation was that it only involved anonymized data. Since this statement was clearly at odds with the methodology described in the paper, it created the impression BMJ Open editors had not even read the study they were aggressively defending."
     
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  6. Amw66

    Amw66 Senior Member (Voting Rights)

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    Given that NICE guideline review has highlighted children and the severely affected the timing of this is good. But will it have the desired effect?
    For those that tweet effectively, drawing attention to this would be appreciated.
     
  7. Barry

    Barry Senior Member (Voting Rights)

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    It really does make you wonder: What is the hold that the BPS brigade have over these people?
     
  8. Alvin

    Alvin Senior Member (Voting Rights)

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    That is a very important question
    If we can figure this out conclusively we can adjust our strategy
     
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  9. Barry

    Barry Senior Member (Voting Rights)

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    It could also be a question with a very obscure answer.
     
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  10. Alvin

    Alvin Senior Member (Voting Rights)

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    Thats ok
     
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  11. Daisymay

    Daisymay Senior Member (Voting Rights)

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    Wow! Absolutely love it, go Tuller!

    "Really, Dr Godlee, enough is enough. It is time to stop stonewalling, acknowledge and address the issues with these papers, and make a clean breast of it—that is, if children’s health does in fact matter to BMJ. "
     
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  12. Snowdrop

    Snowdrop Senior Member (Voting Rights)

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    I could have it entirely wrong because I'm just guessing here but I see it the other way round.
    The BPS group are really just richly rewarded (for doing the dirty work or at least supervising it) handmaidens to people higher up the food chain. I don't really know the structural workings of the system but institutions like the BMA would then be their protectors and something more political calling the shots. Although I see some back and forth mutual advantages--SW had a dream-- a dream of putting psychiatry at the apex of medical care making it more relevant and more ubiquitous. His empire. This fit nicely with some political motives, people who know nothing of science and want sick people to go away. And want to stop having to make huge payouts/investment for anything health related.

    That would put the BPS in a position where they are protected (to various degrees) but also on the line as the 'visible' face of the ideological attack on all things rational regarding illnesses of uncertain aeteology.
     
    Last edited: Jul 3, 2018
  13. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    love the comment (Lilpink ?) 'Waiting for Godlee'
     
  14. Sasha

    Sasha Senior Member (Voting Rights)

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    There's the title for your next blogpost, @dave30th.
     
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  15. Barry

    Barry Senior Member (Voting Rights)

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    Not sure if the joke translates into Americanese, so just in case not, there is an expression re very elderly people "Waiting for God". There was also a popular comedy series of that name.
     
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  16. Trish

    Trish Moderator Staff Member

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    Or the play Waiting for Godot.
     
  17. chrisb

    chrisb Senior Member (Voting Rights)

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    I thought it was a reference to the theatre of the absurd.
     
  18. Barry

    Barry Senior Member (Voting Rights)

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  19. Trish

    Trish Moderator Staff Member

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    From my old friend, the internet:
    Seems apt.
     
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  20. Sasha

    Sasha Senior Member (Voting Rights)

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    I took it as a reference to 'Waiting for Godot', the Samuel Beckett play.
     
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