crawley

Wider collateral damage to children in the UK because of the social distancing measures designed to reduce the impact of COVID-19 in adults Esther Crawley1, Maria Loades1,2, Gene Feder3, Stuart Logan4, Sabi Redwood5, John Macleod2 https://bmjpaedsopen.bmj.com/content/4/1/e000701 Hmm...

Interesting article I had not seen before; features Len Jason, PACE trial, David Tuller, Mary Dimmock, Wessely, White, Esther Crawley, Steven Holgate, Jo Edwards and more. just pop this bit in here o_O https://goodmenproject.com/the-good-life/worklife-balance/fighting-over-fatigue/

via Dr. Marc-Alexander Fluks Source: University of Bristol Date: November 28, 2019 URL: https://research-information.bris.ac.uk/en/theses/a-qualitative-exploration-of-treatment-preference-in-paediatric-randomised-controlled-trials(e6ff1d3b-e315-45e2-a4da-18ae0b414a1d).html...

https://bmjpaedsopen.bmj.com/content/4/1/e000617 full paper pdf: https://bmjpaedsopen.bmj.com/content/bmjpo/4/1/e000617.full.pdf "However, patients who recover appear to have less pain than those who do not recover." :cookie:

not recommending the book but....... https://www.scribd.com/book/443434408/Thinking-And-Eating-For-Two-The-Science-of-Using-Systems-1-and-2-Thinking-to-Nourish-Self-and-Symbionts

Posted by Dr. Marc-Alexander Fluks to various fora. Can't find it online, only similar ones including 'thousands' instead of 'hundreds' of patients. Source: ME Association Winter magazine Ref: http://www.measussex.org.uk Thirty years of seeing patients with ME/CFS...

Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): prioritisation through card ranking Roxanne M. Parslow, Nina Anderson, Danielle Byrne, Kirstie L. Haywood, Alison Shaw...

full paper here https://bmjpaedsopen.bmj.com/content/3/1/e000543

https://onlinelibrary.wiley.com/doi/abs/10.1002/cpp.2417?af=R eta: full paper now available https://sci-hub.tw/10.1002/cpp.2417

https://bmjpaedsopen.bmj.com/content/3/1/e000525.full Full text is open. I find it depressing that 'return to pre-morbid condition' is not strongly endorsed. This is pretty damn clear. Yes, there are problems, and athletes returning to 'normal' person activity might not be quite recovered...

A correction has appeared in BMJ Open for a UK/Dutch study published in 2015. Esther Crawley was one of the original studies authors. https://bmjopen.bmj.com/content/9/11/e008830corr1 The original 2015 study: https://bmjopen.bmj.com/content/5/10/e008830

Open access, https://bmjopen.bmj.com/content/1/2/e000252 Reason for posting above https://bmjopen.bmj.com/content/9/11/e000252corr1 @dave30th

Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/ Myalgic Encephalopathy (CFS/ME): cognitive interviews with children full paper https://jpro.springeropen.com/articles/10.1186/s41687-019-0156-8 eta:

The following posts have been moved from this thread. Have just noticed this on AfME website: https://www.actionforme.org.uk/news/me-research-hra-reviews-ethical-concerns/ @dave30th @Andy and...

By David Tuller, DrPH http://www.virology.ws/2019/10/21/trial-by-error-bristols-report-due-soon-slides-from-my-oxford-talk/ LP Study talk

Trial By Error: Where Is Bristol’s Review of Professor Crawley’s Ethics Missteps? http://www.virology.ws/2019/10/02/trial-by-error-where-is-bristols-review-of-professor-crawleys-ethics-missteps/ 2 October 2019 By David Tuller, DrPH I have repeatedly raised concerns about Professor Esther...

The science media centre has played an important role in stigmatising CFS patients, and anyone critical of PACE and related work, so it's always interesting to look at how they present themselves. Someone sent me this old report recently, and while it's not that interesting or relevant to us, I...

http://www.virology.ws/2019/08/28/trial-by-error-an-open-letter-to-dr-godlee-about-bmjs-ethically-bankrupt-actions/

Link here: https://data.bris.ac.uk/data/dataset/3kp75dy7ngru4236r8t1gl71h5

Journal of Adolescence Volume 75, August 2019, Pages 123-129 https://www.sciencedirect.com/science/article/pii/S0140197119301289 again using this proxy CDF (chronic disabling fatigue). Is this now a formal diagnosis? Or are they maybe, finally, realising that CDF does not equate to ME or CFS...