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crawley

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  1. Sly Saint
    Thread

    Interventions to treat pain in paediatric CFS/ME: a systematic review - Crawley et al Jan 2020

    Abstract Background Paediatric chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) is common (prevalence 1%–2%). Two-thirds of children...
    Thread by: Sly Saint, Mar 8, 2020, 7 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  2. Sly Saint
    Thread

    Book: Thinking And Eating For Two: The Science of Using Systems 1 and 2 Thinking to Nourish Self and Symbionts By Greg Maguire

    not recommending the book but....... In his book of good news for how to maintain optimal health throughout a long life, Prof. Dr. Greg Maguire...
    Thread by: Sly Saint, Jan 27, 2020, 11 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  3. MeSci
    Thread

    United Kingdom: Sussex & Kent ME/CFS Society News

    Posted by Dr. Marc-Alexander Fluks to various fora. Can't find it online, only similar ones including 'thousands' instead of 'hundreds' of...
    Thread by: MeSci, Jan 13, 2018, 177 replies, in forum: News from organisations
  4. Sly Saint
    Thread

    Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric CFS/ME - Crawley et al Jan 2020

    Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric chronic fatigue syndrome/myalgic...
    Thread by: Sly Saint, Jan 7, 2020, 8 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  5. Sly Saint
    Thread

    How are behavioural interventions delivered to children (5–11 years old): a systematic mapping review - Brigden, Crawley et al Dec 2019

    Abstract Context Behavioural interventions are used to prevent, manage and treat a wide variety of conditions including obesity, diabetes, chronic...
    Thread by: Sly Saint, Dec 24, 2019, 7 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  6. Sly Saint
    Thread

    CAN LINGUISTIC ANALYSIS BE USED TO IDENTIFY WHETHER ADOLESCENTS WITH A CHRONIC ILLNESS ARE DEPRESSED? - Jones, Loades, Crawley et al Dec 15 2019

    Abstract Comorbid depression is common in adolescents with chronic illness. We aimed to design and test a linguistic coding scheme for identifying...
    Thread by: Sly Saint, Dec 16, 2019, 26 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  7. rogerblack
    Thread

    Paediatric chronic fatigue syndrome patients’ and parents’ perceptions of recovery - Harland, Crawley et al 2019.

    https://bmjpaedsopen.bmj.com/content/3/1/e000525.full Full text is open. Abstract Objectives Chronic fatigue syndrome/myalgic encephalomyelitis...
    Thread by: rogerblack, Dec 7, 2019, 10 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  8. John Mac
    Thread

    Correction: CFS/ME is different in children compared to in adults: a study of UK and Dutch clinical cohorts. 2019

    A correction has appeared in BMJ Open for a UK/Dutch study published in 2015. Esther Crawley was one of the original studies authors. The...
    Thread by: John Mac, Nov 20, 2019, 7 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  9. Andy
    Thread

    Unidentified (CFS/ME) is a major cause of school absence: surveillance outcomes from school-based clinics, 2011, Crawley et al

    Objective To investigate the feasibility of conducting clinics for chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) in schools. Design...
    Thread by: Andy, Nov 14, 2019, 9 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  10. Sly Saint
    Thread

    Developing and pretesting a new patient reported outcome measure for paediatric CFS/ME: cognitive interviews with children, 2019, Crawley et al

    Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/ Myalgic Encephalopathy (CFS/ME):...
    Thread by: Sly Saint, Nov 10, 2019, 7 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  11. MEMarge
    Thread

    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    The following posts have been moved from this thread. Have just noticed this on AfME website:...
    Thread by: MEMarge, Oct 22, 2019, 126 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  12. MSEsperanza
    Thread

    Trial By Error: Bristol’s Report Due Soon; Slides from My Oxford Talk

    By David Tuller, DrPH http://www.virology.ws/2019/10/21/trial-by-error-bristols-report-due-soon-slides-from-my-oxford-talk/ A day of reckoning...
    Thread by: MSEsperanza, Oct 21, 2019, 7 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  13. Eagles
    Thread

    Trial By Error: Where Is Bristol’s Review of Professor Crawley’s Ethics Missteps?

    Trial By Error: Where Is Bristol’s Review of Professor Crawley’s Ethics Missteps?...
    Thread by: Eagles, Oct 2, 2019, 4 replies, in forum: General ME/CFS news
  14. Esther12
    Thread

    United Kingdom: Science Media Centre (including Fiona Fox)

    The science media centre has played an important role in stigmatising CFS patients, and anyone critical of PACE and related work, so it's always...
    Thread by: Esther12, Dec 10, 2017, 683 replies, in forum: News from organisations
  15. Andy
    Thread

    Trial By Error: An Open Letter to Dr Godlee about BMJ’s Ethically Bankrupt Actions

    I have sent the following letter to Dr Fiona Godlee, editorial director of BMJ, about Archives of Disease in Childhood’s egregious decision to...
    Thread by: Andy, Aug 28, 2019, 141 replies, in forum: General ME/CFS news
  16. adambeyoncelowe
    Thread

    CFS in the NHS public dataset

    This data set contains a number of variables collected from participants in the CFS in the NHS trial at assessment and follow up. It does not...
    Thread by: adambeyoncelowe, Aug 22, 2019, 1 replies, in forum: General ME/CFS news
  17. Sly Saint
    Thread

    Depressive symptoms at age 9–13 and chronic disabling fatigue at age 16: A longitudinal study -Aug 2019 Collin,Loades, Crawley et al

    Journal of Adolescence Volume 75, August 2019, Pages 123-129 Abstract Introduction We investigated whether depressive symptoms at ages 9–13...
    Thread by: Sly Saint, Aug 6, 2019, 10 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  18. Kalliope
    Thread

    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    [MEDIA] BMJ has "corrected" the Lightning Process study but has allowed its conclusions to stand, as far as I can tell. I will have more to say...
    Thread by: Kalliope, Jul 11, 2019, 91 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  19. Kalliope
    Thread

    Trial By Error: FOI Response from Bristol about LP Study; Correction in BJGP about MUS

    FOI Response from Bristol about LP Study; Correction in BJGP about MUS Tuller has received a response to his FOI request with the University of...
    Thread by: Kalliope, Jul 1, 2019, 9 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  20. Eagles
    Thread

    David Tuller: Trial By Error: Time to Retract the LP Study; Letter to Archives of Disease in Childhood

    Trial By Error: Time to Retract the LP Study; Letter to Archives of Disease in Childhood...
    Thread by: Eagles, Jun 3, 2019, 2 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
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