Discussion in 'General ME/CFS News' started by Andy, Aug 28, 2019.
Excellent! And what an impressive list of 55 signatures!
Thank you David and everyone who signed.
How can they possibly ignore an open letter with such a list of signatories, and even more important, such a clearly stated cast iron case for retraction. If they don't retract it, they lose all credibility.
Would that be possible? Is it not all long gone?
Of course their credibility is long gone in our eyes in our small corner of the medical world, but this takes it up a level, I think. They now have an open letter with international signatories, not just David Tuller fighting a lone battle.
But then it didn't help with the Lancet and PACE, so maybe I'm too hopeful.
Call for better regulation of clinical trials.
You can respond here until 6 September:
The questions asked don't go nearly far enough. They don't address public availability of raw trial data at all.
The signatories are interesting. One or two different ones from U.K. Great to get a foothold in Birkbeck. Anyone know Keith Kahn- Harris’s background?
I just googled him. Useful interest in denialism in latest book.
Is there already a separate thread about this? It’s worth drawing attention to.
98% sure he did an interview or wrote about having ME at one stage.
Thanks @Dolphin. Would be very interested in a link if you can remember it.
ETA: we already have a discussion here from a year ago. See next post for link.
I think Dr Kahn- Harris writes very well about having ME in the Guardian article above.
I had not heard of this before, mentioned in the Guardian article above. Is it still active, faded away? The Guardian article was written in 2008 by the way.
Be interesting to know what the £500k was spent on
It led to the following study, which is probably the best prevalence study that has been done in the UK:
We've set up a thread for the survey in Advocacy Action Alerts, here.
Has anyone let Tom Chivers know about this on twitter?
I've only just read this now - thanks to Tuller and to all the signatories for raising these concerns.
Trial By Error: Calls for Retraction of the LP Study
Last week, when I sent Dr Fiona Godlee an open letter about the untenable decision by Archives of Disease in Childhood to republish the originally reported findings from the Lighnting Process trial, I cc’d many of the 55 signatories. Now three of them–Professor Ola Saugstad from the University of Oslo, Professor Racaniello from Columbia University (and host of Virology Blog), and Professor Elisa Ultra of Universidad Católica de Valencia San Vicente Martir–have sent their own forceful comments to Dr Godlee and the others cc’d on the original letter.
All three strongly support the case against the paper. Professor Saugstad and Professor Racaniello explicitly call for retraction. Professor Ultra questions why such a trial was even conducted, given the paucity of information available about the Lightning Process, and calls the published report “unsustainable.”
I am reposting their comments here.
Separate names with a comma.