crawley

(Embargoed until 2099?) Oxford criteria, so tagged as "chronic fatigue", not applicable to ME/CFS. Philippa Clery*, Alexander Royston , Katie Driver, Jasmine Bailey, Esther M Crawley, Maria Loades...

Do adolescents with chronic fatigue syndrome (CFS/ME) and co-morbid anxiety and/or depressive symptoms think differently to those who do not have co-morbid psychopathology? 2020 Loades, Crawley et al Abstract Background Co-morbid anxiety and/or depression is common in adolescents with Chronic...

https://www.researchgate.net/publication/273874213_G160P_Case_series_of_Pervasive_Refusal_Syndrome_presenting_with_Chronic_Fatigue_Syndrome_avoiding_the_pitfall_of_a_wrong_diagnosis N. Herberholz, Simon Collin, Alison Mccowat, Esther Crawley Abstract Aim Children with Pervasive Refusal Syndrome...

"Some experts say it's a major issue for sufferers while others say that it has been confused with other conditions – so what’s the truth?" https://www.telegraph.co.uk/health-fitness/body/long-covid-overblown/

Abstract Fatigue is a dominant feature of both acute and convalescent COVID-19 (sometimes termed ‘long-COVID’), with up to 46% of patients reporting fatigue lasting weeks to months. The investigators of the international Collaborative on Fatigue Following Infection (COFFI) conducted a systematic...

This post is copied and following posts moved from this thread: NICE pauses publication of updated ME/CFS guideline hours before publication was due - 17th August 2021 Other threads discussing Dr Hammond: Spoonseeker blog: A (Second) Letter to Dr Phil Hammond Dr Phil Hammond - Health Revolution...

https://www.theguardian.com/world/2021/jul/09/first-year-of-pandemic-claimed-lives-of-25-youngsters-in-england (I'm guessing the seminar is https://www.s4me.info/threads/webinar-the-royal-society-of-medicine-spotlight-on-long-covid-8-july-2021.20722/) eta: so she's one of the countrys leading...

Authors: Emma C. Anderson, Maria Loades, Jennifer Starbuck, Phil Parker, Fiona Finch, Rebecca Barnes, Lucy Beasant & Esther Crawley ABSTRACT Rationale UK specialist medical care (SMC) for paediatric Chronic Fatigue Syndrome (CFS/ME) includes behavioural approaches (Graded Exercise Therapy...

Funded study in progress. Abstract: Background: Paediatric Chronic Fatigue Syndrome or Myalgic Encaphalistis (CFS/ME) is disabling and relatively common (1-2% of teenagers). We need to improve treatment but need a well developed Patient Reported Outcome Measure (PROM) to do this. Clinical...

Key speakers incl " 3:00pm Session 3 Panel discussion featuring representatives from key studies researching the long-term impact of Covid on physical and mental health Professor Paul Elliott, Director of REACT programme and UK DRI Group Leader, Imperial College London Professor Nishi...

Now published, see https://www.s4me.info/threads/qualitative-study-of-the-acceptability-and-feasibility-of-acceptance-and-commitment-therapy-for-adolescents-with-cfs-2021-crawley-et-al.20297/page-2#post-382771 preprint Is it time to ACT? A qualitative study of the acceptability and feasibility...

"Highlights • Adolescents with CFS, asthma and healthy controls undertook an exercise task. • Those with CFS took longer to complete a laboratory-based exercise task than controls. • They (and their parents) expected to perform worse. • They were more anxious pre-task and rated their performance...

Abstract Background: Chronic Fatigue Syndrome (CFS/ME) may get in the way of enjoying activities. A substantial minority of adolescents with CFS/ME are depressed. Anhedonia is a core symptom of depression. Anhedonia in adolescents with CFS/ME has not been previously investigated. Method: One...

P1 “She used to be Tigger and then she was Eeyore”: A qualitative study with children and young people with CFS/ME, exploring predictors of recovery and future treatment needs Philippa Clery, MBBS BSc, Jennifer Starbuck, BSc DClinPsy, Amanda Laffan, BSc DClinPsy, Esther Crawley, MBBCh PhD...

Recovery from chronic fatigue syndrome: a systematic review—heterogeneity of definition limits study comparison Yasmin Moore Teona Serafimova Nina Anderson Hayley King Alison Richards Amberly Brigden Parisa Sinai Julian Higgins Caitlin Ascough Philippa Clery Esther M Crawley Open access...

Hey Someone anonymous from Norway have produced a very thorough two part series on different topics (PACE, Lightning Process etc.) It has english subtitles so everyone can watch

https://www.ruh.nhs.uk/patients/services/clinical_depts/paediatric_cfs_me/index.asp https://www.ruh.nhs.uk/patients/services/clinical_depts/paediatric_cfs_me/documents/POMME_Study_Info_June 2020.pdf eta: an apple a day keeps the doctor away?

Full title: Cost-effectiveness of Interventions for Chronic Fatigue Syndrome or Myalgic Encephalomyelitis: A Systematic Review of Economic Evaluations Open access, https://link.springer.com/article/10.1007/s40258-021-00635-7

Open access, https://adc.bmj.com/content/early/2021/01/12/archdischild-2020-320746

Full title: Who should we ask about mental health symptoms in adolescents with CFS/ME? Parent-child agreement on the revised children’s anxiety and depression scale Open access, https://journals.sagepub.com/doi/10.1177/1359104521994880