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Current treatment approaches for paediatric CFS/ME, 2017, Loades, Bridgen and Crawley

Discussion in 'Psychosomatic research - ME/CFS and Long Covid' started by Andy, May 19, 2018.

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  1. Andy

    Andy Committee Member

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    If you really want to, the rest can be read at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5939995/
     
    Andy, May 19, 2018
    #1
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  2. Esther12

    Esther12 Senior Member (Voting Rights)

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    Seems a bit odd that all their claims are unreferenced.
     
    Esther12, May 19, 2018
    #2
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  3. Barry

    Barry Senior Member (Voting Rights)

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    Given the origin, maybe not so odd.
     
    Barry, May 19, 2018
    #3
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  4. Andy

    Andy Committee Member

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    Considering who the authors are, I don't find it odd at all.

    ETA: Cross-posted with Barry. :)
     
    Andy, May 19, 2018
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  5. Andy

    Andy Committee Member

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    While I think of it, @dave30th , might be of interest to you?
     
    Andy, May 19, 2018
    #5
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  6. Trish

    Trish Moderator Staff Member

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    Well, as a cruel and unusual punishment to myself, I've just read it. What a patronising and simplistic document.

    Not a word about what to do if their magic and un-evidenced (they admit this) treatments don't work.

    As for the statement in the opening paragraph:
    Words fail me.

    It doesn't read like a scientific document.
     
    Trish, May 19, 2018
    #6
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  7. Barry

    Barry Senior Member (Voting Rights)

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    "Post exertional malaise is a particularly useful symptom"

    Try it yourself and see EC. And yes, I know it's not quite how you meant it, but crass however you look at it.
     
    Barry, May 19, 2018
    #7
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  8. Trish

    Trish Moderator Staff Member

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    I see it's from last September, but we don't seem to have spotted it then. Well spotted, @Andy.
     
    Trish, May 19, 2018
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  9. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    It isn't. But I think part of that is that it is another example of a senior partner not bothering to read what is published in their name.
     
    Jonathan Edwards, May 19, 2018
    #9
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  10. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Not new (2016, published 2017)but thought it worth adding here:
    Practical Management of Chronic Fatigue Syndrome or Myalgic Encephalomyelitis in Childhood
    Amberly Brigden, Maria Loades, Anna Abbott, Joanne Kendall-Boyd, Esther Crawley

    https://researchportal.bath.ac.uk/e...-of-chronic-fatigue-syndrome-or-myalgic-encep

    http://adc.bmj.com/content/102/10/981

    pdf of full thing here :
    https://purehost.bath.ac.uk/ws/portalfiles/portal/158071295

    (thought this was of interest at end):
    USEFUL FURTHER READING
    Action for ME’s webpage on children and young people https://www.actionforme.org.uk/children-and-young-people/introduction

    Burgess M, Chalder T.
    Overcoming Chronic Fatigue: A self-help guide using cognitive behavioural techniques.
    London: Robinson; 2009.

    NICE guidance
    NICE.
    Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy): Diagnosis
    and management of CFS/ME in adults and children (NICE guidelines CG53).
    London 2007 2007. CG53.

    Report to the Chief Medical Officer of an Independent Working Group
    http://www.erythos.com/gibsonenquiry/docs/cmoreport.pdf
     
    Sly Saint, May 21, 2018
    #10
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