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me/cfs

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  1. Patient4Life
    Thread

    What does MS fatigue feel like? (Aug 2, 2019) by Jennifer Huizen - Medical News Today

    What does MS fatigue feel like? (Aug 2, 2019) by Jennifer Huizen - Medical News Today Fatigue affects as many as 90% of people with MS. It is...
    Thread by: Patient4Life, Jan 20, 2020, 4 replies, in forum: Health News and Research unrelated to ME/CFS
  2. Patient4Life
    Thread

    L-dopa for ME/CFS? Prescribed for a Patient on Twitter

    ME/CFS patient on Twitter prescribed L-dopa. I am thinking this is a pretty risky drug to utilize considering what it does to Parkinson's patients...
    Thread by: Patient4Life, Oct 12, 2019, 13 replies, in forum: General ME/CFS News
  3. Helen
    Thread

    Lyme: another sad story, but a new app for areas with infected ticks

    BBC interview with a Lyme victim who has a story that too many of us recognize. It also triggered ME/CFS in her case. The good news is that there...
    Thread by: Helen, Oct 9, 2019, 1 replies, in forum: Infections: Lyme, Candida, EBV ...
  4. Patient4Life
    Thread

    Where are we with ICD 11 Coding for ME/CFS and Fibromyalgia?

    Just wondering what the latest news is on ICD 11 Coding for both ME/CFS and Fibromyalgia. @Dx Revision Watch
    Thread by: Patient4Life, Aug 23, 2019, 2 replies, in forum: Diagnostic Guidelines
  5. Patient4Life
    Thread

    NORD Removed its ME page

    NORD removed its ME page. If you do type in Myalgic Encephalomyelitis, only a list of patient organizations pops up.
    Thread by: Patient4Life, Apr 13, 2019, 4 replies, in forum: General ME/CFS News
  6. MeSci
    Thread

    Advances in ME/CFS: Past, Present and Future; Friedman, 2018-19

    Source: Frontiers in Pediatrics Preprint Date: March 19, 2019 URL: https://www.frontiersin.org/articles/10.3389/fped.2019.00131/abstract...
    Thread by: MeSci, Mar 28, 2019, 12 replies, in forum: General ME/CFS News
  7. MeSci
    Thread

    Pharmaceutical interventions in CFS: A literature-based commentary, Richman, Morris, Broderick, Craddock, Klimas, Fletcher, March 11, 2019

    Source: Clinical Therapeutics Preprint Date: March 11, 2019 URL: https://www.sciencedirect.com/science/article/abs/pii/S0149291819300712 Ref:...
    Thread by: MeSci, Mar 16, 2019, 5 replies, in forum: General ME/CFS News
  8. Tilly
    Thread

    Professor Crawley BPSU study - Chronic fatigue syndrome (CFS) Severe children Feb 2019 - 2020

    I just came across this this morning and it fills me with what I can only describe as the collywobbles. Firstly how many children with severe ME...
    Thread by: Tilly, Mar 1, 2019, 56 replies, in forum: PsychoSocial ME/CFS News
  9. Andy
    Thread

    Blog: Changing the narrative #1: exploring a new approach to strategic communications in the ME community, by Valerie Eliot Smith

    Introduction I started writing this blog in 2012. For several years since then, I have kept starting drafts on a particular topic, only to then...
    Thread by: Andy, Jan 7, 2019, 181 replies, in forum: Advocacy Projects and Campaigns
  10. Patient4Life
    Thread

    Autonomic dysfunction and HPV immunization: an overview. (2018) Blitshetyn et al.

    Autonomic dysfunction and HPV immunization: an overview. Abstract This article reviews the case series reported from several countries describing...
    Thread by: Patient4Life, Nov 29, 2018, 0 replies, in forum: Health News and Research unrelated to ME/CFS
  11. DigitalDrifter
    Thread

    Some videos about various topics concerning ME collected by a member

    This is a general thread for the discussion of videos related to ME. Both good and bad videos are to be included. I'll start with a positive:...
    Thread by: DigitalDrifter, Nov 19, 2018, 11 replies, in forum: General ME/CFS News
  12. Lisa108
    Thread

    Abnormal changes during Tilt Table Test in ME/CFS patients are NOT related to deconditioning

    This study was posted today on the German 'ME -Pacing mit Pulsuhr'-Facebook page: The Abnormal Cardiac Index and Stroke Volume Index Changes...
    Thread by: Lisa108, Nov 10, 2018, 14 replies, in forum: BioMedical ME/CFS Research
  13. merylg
    Thread

    Australian government tender for clinical pathway development for tick related diseases

    https://www.tenders.gov.au/?event=public.atm.show&ATMUUID=04A87C7D-0E3F-EB19-7ABD47FD0E8FA550&fbclid=IwAR0BJ6W5-LXFY8tz0XySjVsJFHKoPE8ueJ1N8Ct24Fhv...
    Thread by: merylg, Nov 9, 2018, 1 replies, in forum: Infections: Lyme, Candida, EBV ...
  14. andypants
    Thread

    Animated (mini) documentary on ME/CFS - Open Medicine Foundation

    Apologies if this has been posted before, couldn't find it anywhere. Posted a week ago on YouTube by OMF. [MEDIA]
    Thread by: andypants, Oct 31, 2018, 6 replies, in forum: General ME/CFS News
  15. Andy
    Thread

    School Nurses Can Improve the Lives of Students With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2018, Friedman et al

    Does this count as "good" psychosocial research, as in, in terms of where to put it on the forum? Abstract Myalgic encephalomyelitis/chronic...
    Thread by: Andy, Sep 29, 2018, 11 replies, in forum: PsychoSocial ME/CFS Research
  16. Hip
    Thread

    Name and shame list of institutions and psychiatrists/psychologists/pediatricians coercing exercise therapy on unwilling ME/CFS patients

    A few years ago I had the idea of starting up a website in which hospitals, institutions or individual psychiatrists and psychologists who coerce...
    Thread by: Hip, Sep 10, 2018, 110 replies, in forum: General Advocacy Discussions
  17. Sly Saint
    Thread

    Unraveling the Molecular Determinants of Manual Therapy: An Approach to Integrative Therapeutics for the Treatment of Fibromyalgia and CFS/ME

    Unraveling the Molecular Determinants of Manual Therapy: An Approach to Integrative Therapeutics for the Treatment of Fibromyalgia and Chronic...
    Thread by: Sly Saint, Sep 9, 2018, 8 replies, in forum: BioMedical ME/CFS Research
  18. Melanie
    Thread

    'Denialism: what drives people to reject the truth' by Keith Kahn-Harris

    Michael Sharpe Tweeted this out. Well, the professor doesn't mention PACE trial deniers, but we all know what he is really up to. :sneaky:...
    Thread by: Melanie, Aug 4, 2018, 45 replies, in forum: Health News and Research unrelated to ME/CFS
  19. Melanie
    Thread

    Anyone From Around the World Can Submit EVIDENCE OF HARM Caused by CBT/GET to Scottish Parliament

    Anyone From Around the World Can Submit EVIDENCE OF HARM Caused by CBT/GET to Scottish Parliament
    Thread by: Melanie, Jul 29, 2018, 5 replies, in forum: Petitions
  20. Melanie
    Thread

    Bateman Horne Center Will Be A Recruitment Center for the Precision Medicine Initiative

    Bateman Horne Center will be a recruitment center of the Precision Medicine Initiative for ME/CFS and Fibromyalgia. NIH Announces Precision...
    Thread by: Melanie, Jul 29, 2018, 1 replies, in forum: BioMedical ME/CFS Research
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