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me/cfs

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  1. rvallee
    Thread

    CDC announces Infection Initiated Chronic Conditions Understanding and Engagement (ICUE) program

    New CDC Foundation Program Focuses on Creating Partnerships to Address Chronic Conditions Caused by Infections, Including Long COVID...
    Thread by: rvallee, Dec 5, 2022 at 5:49 PM, 5 replies, in forum: General ME/CFS news
  2. ME/CFS Skeptic
    Thread

    Which scientists and research groups would you want to bring to the ME/CFS research field

    Suppose that you could lure research groups into studying ME/CFS, who would you like to bring to this field? Are there any top biomedical...
    Thread by: ME/CFS Skeptic, Dec 4, 2022 at 3:58 PM, 25 replies, in forum: ME/CFS research
  3. Sly Saint
    Thread

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Vocabulary 2022 Vasudevan et al

    Research Objectives To capture symptom experiences of persons living with ME/CFS to increase clinicians’ understanding of this complex illness....
    Thread by: Sly Saint, Dec 3, 2022 at 12:10 PM, 8 replies, in forum: ME/CFS research
  4. Sly Saint
    Thread

    Severe myalgic encephalomyelitis/chronic fatigue syndrome in children and young people: a British Paediatric Surveillance Unit study 2022 Crawley et a

    Abstract Objectives Primary objective: to determine the point prevalence and incidence rate of severe myalgic encephalomyelitis/chronic fatigue...
    Thread by: Sly Saint, Dec 2, 2022 at 12:21 PM, 23 replies, in forum: ME/CFS research
  5. Sly Saint
    Thread

    NHS Royal Cornwall Hospital - Treliske

    CFS/ME Service by Random - Posted on 14 November 2022 The website still describes a NICE 2007 Guideline approach now prohibited by NICE,...
    Thread by: Sly Saint, Nov 23, 2022, 2 replies, in forum: UK clinics and doctors
  6. Dolphin
    Thread

    PET/SPECT/MRI/fMRI Studies in the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2020, Watanabe

    https://link.springer.com/chapter/10.1007/978-3-030-57231-0_32 PET/SPECT/MRI/fMRI Studies in the Myalgic Encephalomyelitis/Chronic Fatigue...
    Thread by: Dolphin, Nov 8, 2022, 1 replies, in forum: ME/CFS research
  7. Tom Kindlon
    Thread

    Support Experiences of Children and Youth with ME/CFS and Epilepsy in New Zealand Schools: A Parental Perspective, 2022, Bierre (thesis)

    Support Experiences of Children and Youth with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Epilepsy in New Zealand Schools: A Parental...
    Thread by: Tom Kindlon, Nov 2, 2022, 2 replies, in forum: ME/CFS research
  8. Sly Saint
    Thread

    Unravelling the nature of postexertional malaise in ME/CFS: the role of elastase, complement C4a and interleukin-1β 2010, Nijs et al

    Unravelling the nature of postexertional malaise in myalgic encephalomyelitis/chronic fatigue syndrome: the role of elastase, complement C4a and...
    Thread by: Sly Saint, Oct 23, 2022, 9 replies, in forum: ME/CFS research
  9. Samuel
    Thread

    Circadian skin temperature rhythm and dysautonomia in [ME/CFS]: ... endothelin-1 in vascular dysregulation, 2022, Cambras et al

    Source: Research Square Preprint Date: September 21, 2022 URL: https://www.researchsquare.com/article/rs-2044838/v1 Circadian skin...
    Thread by: Samuel, Oct 2, 2022, 5 replies, in forum: ME/CFS research
  10. Peter Trewhitt
    Thread

    Commentary: Graded Exercise Therapy and Cognitive Behaviour Therapy Do Not Improve Employment Outcomes in ME/CFS, 2022, Tuller and Vink

    This post has been copied from this thread: Percentage of people with ME/CFS able to work or attend school The latest Virology blog: “Trial By...
    Thread by: Peter Trewhitt, Oct 1, 2022, 14 replies, in forum: ME/CFS research
  11. Hutan
    Thread

    Percentage of people with ME/CFS able to work or attend school

    Recently the percentage of people able to work came up in a forum thread. A statistic of 75% of people with ME/CFS not being able to work was...
    Thread by: Hutan, Sep 28, 2022, 10 replies, in forum: Epidemiology (incidence, prevalence, prognosis)
  12. Kalliope
    Thread

    The Atlantic - Long COVID Has Forced a Reckoning for One of Medicine's Most Neglected Diseases - by Ed Yong

    - Only a couple dozen doctors specialize in chronic fatigue syndrome (ME/CFS). Now their knowledge could be crucial to treating millions more...
    Thread by: Kalliope, Sep 26, 2022, 29 replies, in forum: General ME/CFS news
  13. Andy
    Thread

    Long-term neuromuscular consequences of SARS-Cov-2 and their similarities with ME/CFS: results of the retrospective CoLGEM study, 2022, Retornaz et al

    Abstract Background Patients with long-COVID often complain of continuous fatigue, myalgia, sleep problems, cognitive dysfunction, and...
    Thread by: Andy, Sep 25, 2022, 3 replies, in forum: ME/CFS research
  14. ahimsa
    Thread

    San Francisco Chronicle (opinion): Biden says the COVID pandemic is over. He could have fooled me

    Not sure exactly where to post this article since it covers a lot of things! This forum seemed best because of the title (pandemic), but please...
    Thread by: ahimsa, Sep 24, 2022, 18 replies, in forum: Epidemics (including Covid-19, not Long Covid)
  15. Dolphin
    Thread

    Understanding the experiences of caring for a partner with myalgic encephalopathy: a qualitative study of men in Norway, Torp, 2022 (Master’s Thesis)

    Source: Inland Norway University Date: September 20, 2022 URL: https://brage.inn.no/inn-xmlui/handle/11250/3019314 Understanding the...
    Thread by: Dolphin, Sep 24, 2022, 2 replies, in forum: ME/CFS research
  16. Sly Saint
    Thread

    OP72 Myalgic encephalomyelitis/chronic fatigue syndrome and pregnancy: a mixed-methods systematic review 2022, Pearce et al

    Abstract Background Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a fluctuating complex condition. More common in women than men,...
    Thread by: Sly Saint, Sep 23, 2022, 5 replies, in forum: ME/CFS research
  17. Tom Kindlon
    Thread

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and mitochondria: A review, 2022, Pandey (M.Sc. Thesis)

    via Dr. Marc-Alexander Fluks Source: Cornell University Date: May 2022 URL: https://ecommons.cornell.edu/handle/1813/111644...
    Thread by: Tom Kindlon, Sep 20, 2022, 2 replies, in forum: ME/CFS research
  18. ahimsa
    Thread

    USA: 2022 Sep 19: Long COVID, ME/CFS Patients Protest in Front of White House

    Threads about different articles have been merged Article about today's protest at the White House from MedPage Today: "Long COVID, ME/CFS...
    Thread by: ahimsa, Sep 20, 2022, 18 replies, in forum: General ME/CFS news
  19. Sly Saint
    Thread

    Bioinformatics and systems biology approach to identify the pathogenetic link of Long COVID and ME/CFS, 2022, Lv et al

    Bioinformatics and systems biology approach to identify the pathogenetic link of Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome...
    Thread by: Sly Saint, Sep 17, 2022, 4 replies, in forum: ME/CFS research
  20. ahimsa
    Thread

    USA: Why I'm Getting Arrested on Monday at the White House, and How You Can Help (Millions Missing protest in Washington, DC)

    Why I'm Getting Arrested on Monday at the White House, and How You Can Help...
    Thread by: ahimsa, Sep 15, 2022, 3 replies, in forum: General Advocacy Discussions
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