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Royal College of Paediatrics and Child Health conference, 13-15th March 2018, "Children First – Ethics, Morality and Advocacy in Childhood"

Discussion in 'PsychoSocial ME/CFS News' started by Andy, Jan 4, 2018.

  1. Andy

    Andy Committee Member (& Outreach when energy allows)

    Messages:
    14,032
    Location:
    Hampshire, UK
    https://www.rcpch.ac.uk/events/annual-conference

    Despite the theme, Crawley will be there.
    Day One, "How to manage CFS/ME, fatigue and pain in children, Professor Esther Crawley"

    Other highlights
    Day One, "The role of systematic family work in the management of children with severe medically unexplained symptoms, Dr Joanne Holmes"
    and
    Day Three, "‘Everyone Can Groove' (ECG) - How we can dance our way to health, Dr Guddi Singh"
     
    Joh, Inara, Atle and 16 others like this.
  2. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    9,748
    The theme for the conference is ‘Children First – Ethics, Morality and Advocacy in Childhood’ and there will be a selection of workshops and talks taking place throughout three days that will explore this crucial area.

    I wonder if they have any advocates billed to speak.
    Certain people seem to be reading a rather fine line these days. (Not including Donald Trump that is.)
     
  3. large donner

    large donner Guest

    Messages:
    1,214
    Wow, just how generic can they make this with one Guru doctor for all pain and all fatigue. All pain and all fatigue is the same cause and only one doctor Crawley needs to be consulted.
     
    Jan, Stuart, Moosie and 15 others like this.
  4. Allele

    Allele Senior Member (Voting Rights)

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    1,047
    ffs
     
    Jan, Joel, EzzieD and 7 others like this.
  5. Amw66

    Amw66 Senior Member (Voting Rights)

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    4,706
    If only @Grigor could see the day 3 highlight - then we may have an objective measure
     
    Joh, Grigor, Valentijn and 4 others like this.
  6. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    6,648
    Location:
    UK
    There are other implications for this talk; RCPCH see my post here:
    https://www.s4me.info/index.php?posts/29076/

    "
    Preparing for RCPCH Progress (2018 curriculum)

    This section provides information on the new curriculum for paediatric training, which launches in August 2018"

    "
    The RCPCH Progress curriculum has now been approved by the GMC for delivery from 1 August. Download the curriculum and some of the supporting syllabi below.

    RCPCH Progress curriculum (PDF, 370KB, 38 pages)"
    "The new curriculum is based on a framework of learning outcomes as opposed to the current list of competencies, and incorporates the Generic Professional Capabilities the GMC expect of all doctors. Collecting evidence for an outcomes based curriculum will be very different from getting a competency signed off. This new approach will allow greater flexibility for you to demonstrate achievement."
    "
    How can I get involved with the launch and implementation?

    We are looking for trainees, tutors and supervisors who can help us spread the word about RCPCH Progress. "
    https://www.rcpch.ac.uk/progress


    see also:
    https://www.rcpch.ac.uk/news/one-40-teenage-girls-has-chronic-fatigue
    https://www.rcpch.ac.uk/news/app-tackle-chronic-fatigue-offers-hope-child-sufferers
    https://www.rcpch.ac.uk/news/landmark-chronic-fatigue-trial-could-treat-two-thirds
    https://www.rcpch.ac.uk/system/files/protected/news/CFS-ME_-_3_Feb_05N[1].pdf

    (complaints page is here : https://www.rcpch.ac.uk/complaints/complaints)
     
  7. MEMarge

    MEMarge Senior Member (Voting Rights)

    Messages:
    2,208
    I literally can't face reading the above right now, but will do.
    Thanks for putting all this together.
    Do they acknowledge that children can get severe ME?
     
  8. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    6,648
    Location:
    UK
    RCPCH Progress curriculum

    see page 22:
    Leadership and team working:

    Promotes an open
    culture of learning
    and accountability
    by challenging and
    influencing colleague’s
    behaviour

    Patient safety:
    Applies appropriate
    procedures to both
    prescribing and
    clinical care situations
    and manages risk
    effectively.
    Demonstrates ability
    to mitigate against
    potential risks.

    Participates in
    investigating,
    reporting and resolving
    risks to patients,
    including appropriate
    communication
    with patients and
    families/carers.

    Maybe they should have refresher courses.



     
  9. Trish

    Trish Moderator Staff Member

    Messages:
    35,629
    Location:
    UK
    They can't even get their English right:

    From Oxford Dictionaries blog on whether to use mitigate or militate:

    ''If you are unsure which of the two verbs to choose, the best rule of thumb is to remember that militate is used with against, while mitigate is not. If you find yourself writing mitigate against, you’re using the wrong verb!

    X We have also argued that overcrowded classes and lack of resources mitigate against the teaching and learning of science and maths.

    We have also argued that overcrowded classes and lack of resources militate against the teaching and learning of science and maths.''
     
    EzzieD, Inara, Louie41 and 4 others like this.
  10. MEMarge

    MEMarge Senior Member (Voting Rights)

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    2,208

    If only it was just their English that was wrong!
     
  11. TiredSam

    TiredSam Moderator Staff Member

    Messages:
    9,556
    Location:
    Germany
    I was actually heartened when I saw the title of this thread and thought "Oh good, what a perfect venue to discuss the shenanigans and disgraceful behaviour of EC. Oh well :(

    Establishing herself as a pillar of ethics and morality in the hope that it will help as her machinations become more widely known and discussed.

    How to scare the shit out of families with ill children so they do what you want.



    FFS.
     
    Joh, Jan, Barry and 16 others like this.
  12. Grigor

    Grigor Senior Member (Voting Rights)

    Messages:
    335
  13. MEMarge

    MEMarge Senior Member (Voting Rights)

    Messages:
    2,208
    At least she is not a keynote speaker, merely doing an early morning practise session on the first day. Hopefully the turn out won't be huge.

    Probably not worth crowdfunding Dr Rowe to come over. We should leave that to next year when he and Dr Speight can take centre stage with a keynote address on "Science based approach to ME," a serious, multi system....

    Feel free to suggest suitable other lecture topics and workshops.
     
    ladycatlover likes this.
  14. MEMarge

    MEMarge Senior Member (Voting Rights)

    Messages:
    2,208
    Interesting though, will she fly back to Bristol for the next day meeting on Trial design at which she was scheduled to speak for 10 mins? If imy memory is correct.
    What are the odds that she'll ditch that, delegate it to a colleague and sty up in Scotland for the dinner on Wed and other networking opportunities.
    Anyone in Scotland want to arrange a local showing of Unrest on the Monday evening or leaflets to hand out to participants?
     
    Inara, Valentijn and ladycatlover like this.
  15. MEMarge

    MEMarge Senior Member (Voting Rights)

    Messages:
    2,208
    I forgot David Tuller could be after dinner speaker next year as well.
     
    Inara likes this.
  16. Amw66

    Amw66 Senior Member (Voting Rights)

    Messages:
    4,706
    Does anyone have any insight into this - Trudie Chalder seems to be following up on adolescent psychology in BABCP conference ( also in Glasgow) ....
     
    Inara and adambeyoncelowe like this.

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