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ethics

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  1. Lucibee
    Thread

    Mother Jones article: Desperate Patients Are Shelling Out Thousands for a Long Covid Cure. Is It for Real?

    Desperate Patients Are Shelling Out Thousands for a Long Covid Cure. Is It for Real? Two doctors, their unusual treatment program, and the “wild...
    Thread by: Lucibee, Jan 4, 2022, 45 replies, in forum: Long Covid news
  2. Sly Saint
    Thread

    Event: Respect and Shame in Healthcare and Bioethics, Dec 3rd 2021

    Respect and Shame in Healthcare and Bioethics Workshop: Peter Schaber, University of Zurich – “Respect for the Patient’s Wishes.” + ECR...
    Thread by: Sly Saint, Nov 8, 2021, 15 replies, in forum: General ME/CFS news
  3. Haveyoutriedyoga
    Thread

    Mapping out epistemic justice in the clinical space: using narrative techniques to affirm patients as knowers, Rosen, 2021

    https://peh-med.biomedcentral.com/articles/10.1186/s13010-021-00110-0 Abstract Epistemic injustice sits at the intersection of ethics,...
    Thread by: Haveyoutriedyoga, Oct 27, 2021, 1 replies, in forum: Other health news and research
  4. Wyva
    Thread

    AMA Journal of Ethics: What to do when symptoms are difficult to see or measure

    Physicians depend on the measurability and empirical verifiability of symptoms. Still, some symptoms defy observation and measurement, which can...
    Thread by: Wyva, Jul 14, 2021, 1 replies, in forum: General ME/CFS news
  5. Sly Saint
    Thread

    AMA Journal of Ethics : The Importance of Listening in Treating Invisible Illness and Long-Haul COVID-19

    Primary and specialty care clinicians strive to base diagnoses and treatment on specific, measurable abnormalities. Yet those with invisible,...
    Thread by: Sly Saint, Jul 2, 2021, 12 replies, in forum: General ME/CFS news
  6. Dolphin
    Thread

    The Ethical Consequences of Medical Objectivity, 2021, Sevareid (Masters thesis)

    There is some discussion of ME/CFS and medically unexplained symptoms in this including mention of papers by Keith Geraghty and Diane O'Leary....
    Thread by: Dolphin, May 29, 2021, 8 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  7. cassava7
    Thread

    Health Research Priority Setting: Do Grant Review Processes Reflect Ethical Principles?, Pierson and Millum, 2021

    https://www.tandfonline.com/doi/abs/10.1080/17441692.2021.1922731 Most public and non-profit organisations that fund health research provide the...
    Thread by: cassava7, May 4, 2021, 1 replies, in forum: Other health news and research
  8. Simbindi
    Thread

    Duties of a doctor

    I am starting a thread on the 'Duties of a Doctor', which in the UK has replaced the Hippocratic Oath (as far as I am aware for graduating...
    Thread by: Simbindi, Sep 20, 2020, 4 replies, in forum: General Advocacy Discussions
  9. Dolphin
    Thread

    Connecting epistemic injustice and justified belief in health-related conspiracies, 2020, Annesley

    I think it is possible it happens with some people with ME/CFS, both men and women...
    Thread by: Dolphin, Sep 4, 2020, 6 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  10. Daisymay
    Thread

    Call for doctors to clearly declare any funding from industry

    In Baroness Julia Cumberlege report on the pelvic mesh etc scandal, calls for doctors to have to clearly declare any funding from industry. If...
    Thread by: Daisymay, Jul 9, 2020, 7 replies, in forum: Other health news and research
  11. Guest 2176
    Thread

    Reddit thread on r/philosophy on the ethical questions involved in ME/CFS debate

    [MEDIA]
    Thread by: Guest 2176, Dec 28, 2019, 13 replies, in forum: General Advocacy Discussions
  12. John Mac
    Thread

    Correction: CFS/ME is different in children compared to in adults: a study of UK and Dutch clinical cohorts. 2019

    A correction has appeared in BMJ Open for a UK/Dutch study published in 2015. Esther Crawley was one of the original studies authors. The...
    Thread by: John Mac, Nov 20, 2019, 7 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  13. MEMarge
    Thread

    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    The following posts have been moved from this thread. Have just noticed this on AfME website:...
    Thread by: MEMarge, Oct 22, 2019, 84 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  14. Sly Saint
    Thread

    M.E., UK Research Ethics-Public Health Journalist Dr. David Tuller & Guests Nov 5 2019

    [ATTACH] What happens when design flaws are discovered in U.K. ME/CFS research, and future treatments depend on ethical research? About this...
    Thread by: Sly Saint, Oct 11, 2019, 10 replies, in forum: Advocacy Projects and Campaigns
  15. Eagles
    Thread

    Trial By Error: Where Is Bristol’s Review of Professor Crawley’s Ethics Missteps?

    Trial By Error: Where Is Bristol’s Review of Professor Crawley’s Ethics Missteps?...
    Thread by: Eagles, Oct 2, 2019, 4 replies, in forum: General ME/CFS news
  16. rvallee
    Thread

    Unethical work must be filtered out or flagged (Nature)

    Researchers need guidance on how to handle published work whose ethics have been questioned, argue Graeme D. Ruxton and Tom Mulder. How about...
    Thread by: rvallee, Aug 11, 2019, 2 replies, in forum: Research methodology news and research
  17. Cheshire
    Thread

    Journal of Medical Ethics - Blog: It’s Time to Pay Attention to “Chronic Fatigue Syndrome” (2019) O'Leary

    Professional and public debate about myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) has reached a new pitch. A London Times article...
    Thread by: Cheshire, Mar 5, 2019, 194 replies, in forum: General ME/CFS news
  18. Andy
    Thread

    Trial By Error: Who Has the School Study Documents?

    I first wrote about BMJ Open’s 2011 school absence study in August, 2017. The investigators, all from Bristol University, exempted the study from...
    Thread by: Andy, Mar 4, 2019, 33 replies, in forum: General ME/CFS news
  19. Andy
    Thread

    Blog: "Even the Ethics Committee says the PACE authors should share the patient-level data, so why does PLOS ONE not enforce its regulations...

    Full title: Even the Ethics Committee says the PACE authors should share the patient-level data, so why does PLOS ONE not enforce its regulations...
    Thread by: Andy, Feb 17, 2019, 16 replies, in forum: General ME/CFS news
  20. Barry
    Thread

    Ethical classification of ME/CFS in the United Kingdom (2019) Diane O'Leary

    Few conditions have sparked as much controversy as myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Professional consensus has long...
    Thread by: Barry, Feb 8, 2019, 196 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
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