Sly Saint
Senior Member (Voting Rights)
This thread has been moved from the News subforum and renamed following a published paper based on Cheston's work.
Respect and Shame in Healthcare and Bioethics Workshop:
Peter Schaber, University of Zurich – “Respect for the Patient’s Wishes.”
+ ECR presentation from Katharine Cheston, University of Durham – “The ‘Wish to be Treated with Dignity, Respect and Empathy’: (Dis)Respect and Shame in the Context of ‘Medically Unexplained’ Illness.”
This workshop is part of the Respect and Shame in Healthcare Bioethics Workshop Series, and is organised at the University of Exeter by the Wellcome Trust funded Shame and Medicine Project, and Supriya Subramani, Institute of Biomedical Ethics and History of Medicine, University of Zurich.
Schedule
Respect and Shame in Healthcare and Bioethics Workshop:
Peter Schaber, University of Zurich – “Respect for the Patient’s Wishes.”
+ ECR presentation from Katharine Cheston, University of Durham – “The ‘Wish to be Treated with Dignity, Respect and Empathy’: (Dis)Respect and Shame in the Context of ‘Medically Unexplained’ Illness.”
This workshop is part of the Respect and Shame in Healthcare Bioethics Workshop Series, and is organised at the University of Exeter by the Wellcome Trust funded Shame and Medicine Project, and Supriya Subramani, Institute of Biomedical Ethics and History of Medicine, University of Zurich.
The ‘Wish to be Treated with Dignity, Respect and Empathy’: (Dis)Respect and Shame in the Context of ‘Medically Unexplained’ Illness (Katharine Cheston).
Respect and disrespect were recurring themes in the updated NICE guidelines for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) – a disabling condition of unknown aetiology – which were released for consultation late last year. One particularly poignant section of these draft guidelines collated survey responses from those with severe ME/CFS who expressed feeling ‘dismissed, belittled’ – even of being ‘treated with contempt’ – by UK health services, concluding simply that ‘ME/CFS patients wish to be treated with dignity, respect and empathy’ by the healthcare professionals they encounter. That those who are so severely unwell should express a wish not for medical treatment – for prescriptions and pills – but for respect, is revelatory, and it certainly merits further investigation.
This presentation explores concepts of respect, disrespect and shame in the context of so-called ‘medically unexplained’ illnesses: those conditions, like ME/CFS, which cause bodily symptoms for which there is currently no accepted biomedical explanation. I will elucidate the reasons why those with ‘medically unexplained’ illness are especially vulnerable to experiencing disrespect in healthcare encounters; I will argue that this disrespect compounds their suffering by provoking a uniquely intense sense of shame that is often perceived to be more distressing than the symptoms themselves.
Schedule
- 1:00- 1:40 PM GMT: Respect for the Patient’s Wishes (Peter Schaber)
- 1:40- 2:00 PM GMT: Open discussion
- Break (2:00- 2:10 PM GMT)
- 2:10- 3:00 PM GMT: The ‘Wish to be Treated with Dignity, Respect and Empathy’: (Dis)Respect and Shame in the Context of ‘Medically Unexplained’ Illness (Katharine Cheston)
- 3:00- 3:20 PM GMT: Feedback from Peter Schaber
- 3:20- 3:50 PM GMT: Open discussion
https://www.eventbrite.co.uk/e/resp...ioethics-workshop-series-tickets-165753873297
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