'Results of probably the largest-ever survey of opinion among people with ME/CFS and their carers about what treatments and therapies work for...
Free full text: https://bjgpopen.org/content/early/2020/10/12/bjgpopen20X101143 Finding the 'right' GP: a qualitative study of the experiences of...
A few years ago, my friend and colleague Steven Lubet, a law professor and scholar at Northwestern University, wrote the following account of the...
[MEDIA] Preprint paper here: Persistent symptoms after Covid-19: qualitative study of 114 long Covid patients and draft quality criteria for...
Introduction: Fibromyalgia syndrome (FMS) is a chronic musculoskeletal pain and fatigue condition. Despite extensive research, there is currently...
Abstract Objectives To explore patients’ experiences with fluctuations in persistent physical symptoms (PPS) and to understand which factors—from...
Dr. Hilary Robertson (ME|FM Society of BC) and Dr. Luis Nacul (BC Women’s Hospital’s Complex Chronic Diseases Program) would like to invite you to...
Patient involvement in research—a brief history There is a well-described mismatch between the research that is done on a particular condition...
Source: Psychology of Men & Masculinity Preprint Date: April 30, 2019 URL: https://www.dora.dmu.ac.uk/handle/2086/17973 'The real me shining...
By Open Medicine Foundation Researchers at Stanford University and UC Irvine appear close to giving people with chronic fatigue syndrome...
a clinical research study by a third-year medical student at Cardiff University Aim of the project: The aim of this project is to gain a better...
https://www.tandfonline.com/doi/abs/10.1080/07399332.2018.1521811?journalCode=uhcw20 Journal: Health Care for Women International Dismissing...
Worth a read. Considers how patient feedback is viewed by health professionals and managers and cultural problems that PWME will likely recognise....
Abstract Background The Clinical Understanding and Research Excellence in ME/CFS group (CureME) at the London School of Hygiene & Tropical...
Devendorf, A. R., Brown, A. A., & Jason, L. A. Chronic Illness Objective There is no consensus on recovery from myalgic encephalomyelitis and...
it’s towards the end of the day and I just saw this, perhaps there isn’t time and we should keep it in mind for next year. (Assuming it’s a...
Taken from a blog originally from 2011 but the comments go on to 2018; Saturday, 3 September 2011 The Hospital Appointment... so a little...
[MEDIA] Would someone who's on twitter please make this dutch journalist aware of... - the S4ME PACE briefing paper:...
Abstract Chronic illness is a risk factor for suicide but is often explained with depression. Research has shown an increased suicide rate in...
When Jenny Meagher, 54, got home from an hour at Chadstone shopping centre recently, she spent the rest of the day in bed feeling like she had a...
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