Evaluation of a survey exploring the experiences of adults and children with ME/CFS who have participated in CBT and GET interventional programmes...
Abstract: This article conveys how taking patient knowledge seriously can improve patient experience and further medical science. In clinical...
https://www.tandfonline.com/doi/full/10.1080/21641846.2024.2444826 Research Article Voice of the patient: people with myalgic...
https://link.springer.com/article/10.1007/s12144-024-06935-0#citeas Shapiro, D., Hayburn, A. Medical gaslighting as a mechanism for medical...
Highlights Illness invalidation occurs for people managing a range of chronic health symptoms. Psychological distress was associated with illness...
Diagnosis: Jessica’s story As told by her parents Simon and Andrea. “Our precious daughter, Jessica, died on 20 December 2020. She was 27 years...
Hi. I just wanted to share an essay my dad wrote that got included in a recent healthrising post. The part written by my dad is quoted below:...
This thread has been split in order to create an In Memory thread for Merryn. To leave tributes to Merryn please go to:...
Patient perceptions of barriers to effective migraine management in Aotearoa New Zealand Blair McInnarney; Fiona Imlach; Jonathan Kennedy; Susan...
The Untapped Power of “We Don't Know”: Epistemological Humility in the Era of COVID-19 Jolaade Kalinowski; Elizabeth A. Hintz; Chigozirim Izeogu...
Abstract The present study contributes to an expanding literature investigating the systemic and structural issues that serve to disadvantage...
Now published - link here ******** Preprint From @MSEsperanza: "The idea of rehabilitation needs to be completely rethought for this disease"...
Full title: ‘We have no services for you… so you have to make the best out of it’: A qualitative study of Myalgic Encephalomyelitis/Chronic...
Full title: ‘I just need to know what they are and if you can help me’: Medicalization and the search for legitimacy in people diagnosed with...
A thread for general news, events, articles etc from Austria and Switzerland.
https://www.bmj.com/content/382/bmj.p1983
World Psychiatry Journal The lived experience of depression: a bottom-up review co-written by experts by experience and academics Paolo...
https://www.uptodate.com/contents/patient-perspective-myalgic-encephalomyelitis-chronic-fatigue-syndrome Patient perspective: Myalgic...
See also News from Scotland _________________ Moved from the News from the MEA thread. not news from MEA as such; but anyone know about this...
Posts moved from Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al On...
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