Patient perceptions of barriers to effective migraine management in Aotearoa New Zealand Blair McInnarney; Fiona Imlach; Jonathan Kennedy; Susan...
The Untapped Power of “We Don't Know”: Epistemological Humility in the Era of COVID-19 Jolaade Kalinowski; Elizabeth A. Hintz; Chigozirim Izeogu...
Abstract The present study contributes to an expanding literature investigating the systemic and structural issues that serve to disadvantage...
Now published - link here ******** Preprint From @MSEsperanza: "The idea of rehabilitation needs to be completely rethought for this disease"...
Full title: ‘We have no services for you… so you have to make the best out of it’: A qualitative study of Myalgic Encephalomyelitis/Chronic...
Full title: ‘I just need to know what they are and if you can help me’: Medicalization and the search for legitimacy in people diagnosed with...
A thread for general news, events, articles etc from Austria and Switzerland.
https://www.bmj.com/content/382/bmj.p1983
World Psychiatry Journal The lived experience of depression: a bottom-up review co-written by experts by experience and academics Paolo...
https://www.uptodate.com/contents/patient-perspective-myalgic-encephalomyelitis-chronic-fatigue-syndrome Patient perspective: Myalgic...
See also News from Scotland _________________ Moved from the News from the MEA thread. not news from MEA as such; but anyone know about this...
Posts moved from Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al On...
‘I am just a shadow of who I used to be’—Exploring existential loss of identity among people living with chronic conditions of Long COVID Chao...
“We’re drowning and we’re alone”: a qualitative study of the lived experience of people experiencing persistent post-COVID-19 symptoms Donna...
Abstract Objectives We explore the experiences of people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (pwME/CFS) during the first UK...
Copied post Not specifically about ME Awareness Day but as it was posted today... Anil van der Zee on Twitter [MEDIA] "Since I've been living...
Aims and Objectives In this study, we aimed to characterize the impact of long COVID on quality of life and approaches to symptom management among...
Background Long COVID is a rapidly evolving global health crisis requiring interdisciplinary support strategies that incorporate the lived...
Diane Shipley: Knowledge of Missing Out At the start of lockdown, a friend texted that a party she was looking forward to had been canceled. I...
BACKGROUND: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating chronic illness that impacts pediatric populations....
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