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patient experience

  1. Daisy
    Thread

    BMJ blog: The language used to describe patient feedback has a detrimental influence on safety culture

    Worth a read. Considers how patient feedback is viewed by health professionals and managers and cultural problems that PWME will likely recognise....
    Thread by: Daisy, Feb 5, 2019, 11 replies, in forum: Health News and Research unrelated to ME/CFS
  2. WillowJ
    Thread

    Deadline today, Dec 1 (USA): Nomination for Patient Experience Innovation Awards

    it’s towards the end of the day and I just saw this, perhaps there isn’t time and we should keep it in mind for next year. (Assuming it’s a...
    Thread by: WillowJ, Dec 1, 2018, 3 replies, in forum: Advocacy Projects and Campaigns
  3. Sly Saint
    Thread

    Patient experiences of Dr Gabrielle Murphy

    Taken from a blog originally from 2011 but the comments go on to 2018; Saturday, 3 September 2011 The Hospital Appointment... so a little...
    Thread by: Sly Saint, Dec 1, 2018, 22 replies, in forum: General ME/CFS News
  4. MSEsperanza
    Thread

    Dutch journalist asks about pwME's objection to CBT/GET

    [MEDIA] Would someone who's on twitter please make this dutch journalist aware of... - the S4ME PACE briefing paper:...
    Thread by: MSEsperanza, Aug 28, 2018, 35 replies, in forum: General ME/CFS News
  5. Melanie
    Thread

    'Chronic fatigue': The devastating illness that's so much worse than just tiredness - Honey Coach nine.com.au (July, 2018)

    When Jenny Meagher, 54, got home from an hour at Chadstone shopping centre recently, she spent the rest of the day in bed feeling like she had a...
    Thread by: Melanie, Jul 7, 2018, 4 replies, in forum: General ME/CFS News
  6. Sly Saint
    Thread

    The PRIME project 2010

    The PRIME project: developing a patient evidence‐base Sophie Staniszewska, DPhil (Oxon) BSc (Hons), 1 Sally Crowe, Post Graduate Diploma, 2...
    Thread by: Sly Saint, Feb 28, 2018, 2 replies, in forum: PsychoSocial ME/CFS Research
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