"Doctors as Patients" documentary Anil van der Zee

Grigor

Grigor

Senior Member (Voting Rights)
OMG we did it‼️‼️

In this film for ME Awareness month, five medical doctors open up about living with PAIS/IACC conditions like ME, long-COVID, and chronic Lyme. It’s a format that I believe has never been shown before, not just in the Netherlands but possibly worldwide!

They speak candidly about their experiences with illness, what they were taught (or not taught) in medical school, and how that shaped their own treatment decisions—sometimes even leading to harm.

They reflect on how becoming patients themselves radically changed their views on medicine, science, and what needs to change in healthcare. It’s raw, honest, and incredibly insightful—for medical professionals, researchers, politicians, and patients alike.

This project was a true labor of love. We had zero budget. Three amazing cameramen, a few behind-the-scenes heroes, the MDs themselves, and those from the community who shared material for the film—all volunteered their time and energy. It wasn’t easy: illness and PEM often got in the way, but we somehow made it.

We're ((primarily) amateur filmmakers (and I'm definitely the biggest one!), so don’t expect a slick Hollywood production. The real professionals here are the doctors—whose powerful voices, shaped by both medical training and lived experience, definitely need to be heard.

I invite you to watch, leave a like, drop a comment on YouTube to help boost the algorithm, and share it far and wide. This is more than a film—it's a message the world needs to hear and see!!!

Their stories will hopefully change how you think about medicine—don’t miss it. Especially now that PAIS/IACC conditions have become an even more urgent health issue since the pandemic. Their voices matter more than ever!

The film has English and Dutch subtitles. If you want to translate it to another language let me know.

 
Trish said:
Thank you @Grigor and all the participants. It's a very powerful and helpful film.

My only problem with it was the subtitles were too small for me to read easily, so I stopped the film after about 10 minutes and read the transcript instead.
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You can jack up the subtitles if you click on Settings, then on Subtitles, and then on Options.

@Grigor, you might like to put that in your post, because I also struggled with the small subtitles until I discovered that trick.

I'm only partway through but I desperately want someone to copy you in the UK!
 
Kitty said:
It sounds amazing, @Grigor, what an achievement! I've bookmarked it for when my eyes are up to video.
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Same here - it's on my "Watch later" list.

Grigor said:
I invite you to watch, leave a like, drop a comment on YouTube to help boost the algorithm, and share it far and wide.
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Liking the video and leaving a comment on YouTube really does boost the algorithm.
 
This is very good @Grigor. Thank you.

It was moving to see people whose names we know, yourself, Mark Vink, and to see Philip Corsius's name there as one of the people who did the filming. It must have been a lot of work from many people. Of course, thank you especially to the people with ME/CFS who appear on the film and to you.

If you feel like it, perhaps you could tell us something about how the film came to be, and who contributed in different ways. And what plans there are to get the video seen by people.

Turtle said very well:
Turtle said:
Go conquer the world! Educate all !!!
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Wouldn't it be great if we could have the French edition, the Canadian edition, the Australian edition, the UK edition...
 
Hutan said:
This is very good @Grigor. Thank you.

It was moving to see people whose names we know, yourself, Mark Vink, and to see Philip Corsius's name there as one of the people who did the filming. It must have been a lot of work from many people. Of course, thank you especially to the people with ME/CFS who appear on the film and to you.

If you feel like it, perhaps you could tell us something about how the film came to be, and who contributed in different ways. And what plans there are to get the video seen by people.

Turtle said very well:
Wouldn't it be great if we could have the French edition, the Canadian edition, the Australian edition, the UK edition...
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Thanks! Maybe an interview somewhere? I'm open to it.

And yes, every country should interview their MDs with IACI. I'm totally for it!
 
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