patient experience

See also News from Scotland _________________ Moved from the News from the MEA thread. not news from MEA as such; but anyone know about this person https://www.wandabelisle.com/ according to her website " FEATURED on

Posts moved from Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al On the negotiating bit. With lifestyle changes, as I think "getting patient to exercise more" can be described as, there is a method that is encouraged to...

‘I am just a shadow of who I used to be’—Exploring existential loss of identity among people living with chronic conditions of Long COVID Chao Fang; Sarah Akhtar Baz; Laura Sheard; JD Carpentieri Identity loss and (re)construction forms a central debate in sociology of chronic illness. Living...

“We’re drowning and we’re alone”: a qualitative study of the lived experience of people experiencing persistent post-COVID-19 symptoms Donna Goodridge; Thomas N. Lowe; Shuang Cai; Flinn N. Herriot; Rachel V. Silverberg; Michael Heynen; Kelly C. Hall; Jaimie Peters; Scotty Butcher; Taofiq...

Abstract Objectives We explore the experiences of people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (pwME/CFS) during the first UK COVID-19 lockdown period. We specifically probe perceived commonalities and departures in experience between government- and health-imposed lockdowns...

Copied post Not specifically about ME Awareness Day but as it was posted today... Anil van der Zee on Twitter "Since I've been living isolated from the world since 2013, and from 2015, one visitor per year has not been uncommon. I've decided to film my current life with M.E. Not that my days...

Aims and Objectives In this study, we aimed to characterize the impact of long COVID on quality of life and approaches to symptom management among Black American adults. Background As a novel condition, qualitative evidence concerning long COVID symptoms and their impact on quality of life can...

Full title: Do diagnostic criteria for ME matter to patient experience with services and interventions? Key results from an online RDS survey targeting fatigue patients in Norway Abstract: Public health and welfare systems request documentation on approaches to diagnose, treat, and manage...

Background Long COVID is a rapidly evolving global health crisis requiring interdisciplinary support strategies that incorporate the lived experience of patients. Currently, there is a paucity of research documenting the day-to-day experiences of patients living with Long COVID. Objective To...

Diane Shipley: Knowledge of Missing Out Absolutely LOVED this piece. She talks about having ME/CFS and what it was like watching able-bodied people whine about what they were missing during lockdown while she (and the rest of us sickies) have been missing out for years. It so captured my own...

BACKGROUND: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating chronic illness that impacts pediatric populations. OBJECTIVE: The current study aimed to better understand adult perceptions of their experiences leading up to their diagnosis of ME/CFS. METHOD: Patients...

Abstract Long COVID is a novel chronic illness with a variety of symptoms that people who have labelled themselves ‘long-haulers’ experience for an extended duration following a COVID-19 infection. We draw on in-depth interviews conducted in March–April 2021 with 20 working-aged adults in the...

"Rugby had defined Burton's life, but she was soon given a "new perspective". Burton, who made her England debut aged 18, says she first noticed a change in her behaviour when she started to feel "really down" and had no energy." "She remembers being put on anti-depressants because "the first...

Source: University of Bristol Date: December 6, 2022 URL: https://research-information.bris.ac.uk/en/studentTheses/a-narrative-inquiry-into-the-school-experiences-of-teenagers-livi https://research-information.bris.ac.uk/ws/portalfiles/portal/349168131/Final_Copy_2022_12_06_Lewis_M_L_DEdPsy.pdf...

Abstract Introduction: After contracting COVID-19, many people have continued to experience various symptoms for several weeks and months, even after a mild acute phase. These people with 'long COVID' faced difficulties when confronted with the healthcare system. Purpose of research: In order...

Research Objectives To capture symptom experiences of persons living with ME/CFS to increase clinicians’ understanding of this complex illness. Design Case Series. Setting Multi-institutional collaboration. Participants A convenience sample of 12 persons with mild (n=16.7%), moderate...

This post and some subsequent posts have been split from Denmark: A short report from 19 home visits, August 2022, by Peter la Cour and Susanna la Cour https://www.reddit.com/r/covidlonghaulers/comments/wr4fqj/how_to_talk_to_doctors_in_order_for_them_to_work/

Moderation note: Abstract and link to the English version are in this later post - link ****** Yesterday the Danish Clinic Mehlsen by professor and psychologist Peter la Cour, PhD and Susanne la Cour, GP published a report based on home visits and interviews with 19 severe ME patients and...

I'm sure that the basic content of this article comes as no surprise to most people here, but I think it's really good to have such an extensive and accurate article published in the New York Times. If these practices are going to end, publicity like this is going to play a major role. Women...

https://www.thetimes.co.uk/article/hospital-has-left-my-daughter-in-me-agony-claims-mother-3kvrdzwjl Hospital has left my daughter in ME agony, claims mother July 17 2022, 12.01am Ella Copley with her mother, Joanne McKee, before her illness Ella Copley, 17, from Tingley, West Yorkshire, has...