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patient experience

Page 4 of 10
  1. Andy
    Thread

    Elements of Suffering in [ME/CFS]: The Experience of Loss, Grief, Stigma, and Trauma in the Severely and Very Severely Affected, 2021, Fennell et al

    Full title: Elements of Suffering in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: The Experience of Loss, Grief, Stigma, and Trauma in the...
    Thread by: Andy, Jun 1, 2021, 14 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  2. Dolphin
    Thread

    “It’s not all nice and fun”: Narrating contested illness on YouTube and Instagram, 2021, Groenevelt

    https://journals.sagepub.com/doi/full/10.1177/13634593211017187 Health: An Interdisciplinary Journal for the Social Study of Health, Illness and...
    Thread by: Dolphin, May 29, 2021, 6 replies, in forum: Other psychosomatic news and research
  3. Wyva
    Thread

    Cambridgeshire Live article: Cambridge Dad living with ME becomes so exhausted he can't walk downstairs

    https://www.cambridge-news.co.uk/news/health/me-cfs-personal-story-20562798 Another local article with Dr Mark Harper, chair of the Cambridge ME...
    Thread by: Wyva, May 23, 2021, 17 replies, in forum: General ME/CFS news
  4. Sly Saint
    Thread

    Article: The Mysterious Condition Leaving Women Home-Bound Years Before Long Covid

    Gym at 6.30am followed by a G&T 12 hours later. For women who want to live life at their optimum, energy is currency. So, when an illness strikes...
    Thread by: Sly Saint, May 12, 2021, 3 replies, in forum: General ME/CFS news
  5. Dolphin
    Thread

    What is it like to live with medically unexplained physical symptoms? A qualitative meta-summary, 2021, Polakovská & Řiháček

    This looks sympathetic, though I haven't read it through. https://www.tandfonline.com/doi/full/10.1080/08870446.2021.1901900 Psychology &...
    Thread by: Dolphin, Apr 23, 2021, 4 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  6. Andy
    Thread

    Blog: M.E. myself and I, "How baffling that I’m happy with my lot"

    https://the-slow-lane.com/2021/04/11/happy-with-my-lot/ "I seem to baffle some people, because I’m upbeat despite my situation; a situation that...
    Thread by: Andy, Apr 11, 2021, 11 replies, in forum: General ME/CFS news
  7. Andy
    Thread

    Blog: A Journey Through The Fog: "How the World Became More Accessible During the Covid-19 Pandemic"

    https://www.ajourneythroughthefog.co.uk/2021/04/how-the-world-more-accessible-covid-19-pandemic/ "Over the past year through the lockdowns and...
    Thread by: Andy, Apr 11, 2021, 0 replies, in forum: General disability topics and advocacy
  8. InitialConditions
    Thread

    [Blog] How Singer-Songwriter John Prine Helped Me Accept A Life of Illness

    This is a beautiful piece about becoming chronically ill, learning to cope under the extreme burden, and accepting a new reality. It was written...
    Thread by: InitialConditions, Apr 8, 2021, 11 replies, in forum: Relationships and coping
  9. ahimsa
    Thread

    Essay in Hippocampus Magazine: "Salisbury Steak Day"

    I'm a bit late sharing this, since it was published on March 8, and I keep forgetting to post! But I really enjoyed this essay written by...
    Thread by: ahimsa, Apr 5, 2021, 8 replies, in forum: General ME/CFS news
  10. Milo
    Thread

    M.E. In BC [British Columbia]: How the healthcare system for M.E. impacts clinicians and patients

    M.E. In BC [British Columbia]: How the healthcare system for M.E. impacts clinicians and patients This is a preliminary study assessing the unmet...
    Thread by: Milo, Apr 2, 2021, 1 replies, in forum: ME/CFS research news
  11. Andy
    Thread

    Chronic fatigue syndrome: Patients' experiences, clinical practice and epistemic justice, 2021, Oter-Quintana et al

    Spanish title: Síndrome de fatiga crónica: experiencias de las personas afectadas, práctica clínica y justicia epistémica Looks like it might be...
    Thread by: Andy, Apr 1, 2021, 0 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  12. Sly Saint
    Thread

    Article: ME & Long COVID; When Will Our Exhausted Cries Be Heard?, Revd Joe Haward, 24 March 2021

    Reverend Joe Haward shares his experiences of having ME and explores the challenges patients face in getting the reality of their lives with the...
    Thread by: Sly Saint, Mar 24, 2021, 0 replies, in forum: General ME/CFS news
  13. ME/CFS Skeptic
    Thread

    The course of the illness for ME patients in Norway, 2021, Schei and Angelsen

    The Norwegian ME Association just published an impressive survey on 5.822 ME patients in Norway. An English summary is available here:...
    Thread by: ME/CFS Skeptic, Mar 11, 2021, 42 replies, in forum: ME/CFS research
  14. Andy
    Thread

    Three Cases of Severe ME/CFS in Adults, 2021, Williams and Issacson-Barash

    Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex, only partially understood multi-system disease whose onset and...
    Thread by: Andy, Mar 7, 2021, 3 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  15. Andy
    Thread

    Caught up in Care: Crafting Moral Subjects of Chronic Fatigue, Risor and Lillevoll, 2021

    They talk, in the abstract, about chronic fatigue only, but the patients they discuss have gone through a "CFS/ME" assessment, so may or may not...
    Thread by: Andy, Feb 18, 2021, 21 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  16. Jonathan Edwards
    Thread

    Book: A Still Life: A Memoir, 2021, Josie George

    https://www.theguardian.com/lifeandstyle/2021/feb/06/my-personal-lockdown-has-been-much-longer-on-chronic-illness-before-and-after-covid Not sure...
    Thread by: Jonathan Edwards, Feb 6, 2021, 8 replies, in forum: General ME/CFS news
  17. John Mac
    Thread

    Experiences of Living with Severe Chronic Fatigue Syndrome/Myalgic Encephalomyelitis, 2021, Strassheim et al

    Abstract Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) is a rare disease with no known etiology. It affects 0.4% of the population,...
    Thread by: John Mac, Feb 5, 2021, 13 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  18. Trish
    Thread

    Book: When Force Meets Fate by Jamison Hill, published January 2021

    From Jamison Hill's blog, Jamison Writes: https://jamisonwrites.com/2021/01/26/my-book-is-officially-published/ MY BOOK IS OFFICIALLY PUBLISHED!...
    Thread by: Trish, Jan 27, 2021, 25 replies, in forum: General ME/CFS news
  19. Andy
    Thread

    Trial By Error: My Exchange with Minnesota Medical Center Holding ME/CFS Patient

    On Monday afternoon, I had an e-mail exchange with Christine Hill, a spokeswoman for the Hennepin Healthcare in Minnesota. Thane Fredrickson, an...
    Thread by: Andy, Jan 27, 2021, 15 replies, in forum: General ME/CFS news
  20. Robert 1973
    Thread

    Suggestion for S4ME thread of ME testimonies

    Reading quotes from ME patients in George Monbiot’s article on ME/CFS and long covid in the Guardian gave me an idea: could S4ME set up a thread...
    Thread by: Robert 1973, Jan 23, 2021, 23 replies, in forum: General Advocacy Discussions
Showing results 61 to 80 of 186
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