Highlights • Long Covid is a patient-defined illness which gained legitimacy in online communities. • We analysed long Covid narratives using...
Jennie Jacques on living with ME: ‘I am a shadow of my former self physically’ , The Times, August 18 2021 by Sean O' Neill As her 30th birthday...
I have no idea what this is like. Free full text https://journals.sagepub.com/doi/full/10.1177/23743735211034962 Successful Psychological...
Is this more likely due to an immune system problem? For me there came a point where after many years with very severe ME where resting finally...
Full title: “Because the country, it seems though, has turned their back on me”: Experiences of institutional betrayal among veterans living with...
A young person who thinks there are effective treatments for cfs. https://bmjpaedsopen.bmj.com/content/5/1/e001165
The German/French TV channel ARTE premiered a documentary yesterday: "Living with Chronic Fatigue Syndrome". German and French can be chosen as...
A performer (actress, singer), leader, mentor, and community volunteer with her hands on a number of projects, Madeline is a joy to know. She...
This is long. If any one reads it, and have any information about some of the questions i have in there, especially if anyone have information...
Abstract In the present study we conduct a systematic review to evaluate the needs and experience of people with pediatric multiple sclerosis (MS)...
I’m ashamed to say I have M.E. I’ve collapsed in the street and when I’ve managed to explain that I don’t need an ambulance, it’s just M.E, I...
Abstract Objective: How can it be that a disease as serious as CFS affecting such a large number of people could be so unknown to the general...
Video: Fatigue, Pacing and PEM Management | Lessons from ME/CFS - With Dr Ben Marsh I know this video has been mentioned on another thread but I...
Full title: Elements of Suffering in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: The Experience of Loss, Grief, Stigma, and Trauma in the...
https://journals.sagepub.com/doi/full/10.1177/13634593211017187 Health: An Interdisciplinary Journal for the Social Study of Health, Illness and...
https://www.cambridge-news.co.uk/news/health/me-cfs-personal-story-20562798 Another local article with Dr Mark Harper, chair of the Cambridge ME...
Gym at 6.30am followed by a G&T 12 hours later. For women who want to live life at their optimum, energy is currency. So, when an illness strikes...
This looks sympathetic, though I haven't read it through. https://www.tandfonline.com/doi/full/10.1080/08870446.2021.1901900 Psychology &...
https://the-slow-lane.com/2021/04/11/happy-with-my-lot/ "I seem to baffle some people, because I’m upbeat despite my situation; a situation that...
https://www.ajourneythroughthefog.co.uk/2021/04/how-the-world-more-accessible-covid-19-pandemic/ "Over the past year through the lockdowns and...
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