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patient experience

Page 5 of 10
  1. Andy
    Thread

    Developing services for long COVID: lessons from a study of wounded healers, Ladds, Greenhalgh et al, 2021

    Persistent symptoms lasting longer than 3 weeks are thought to affect 10–20% of patients following SARS-CoV-2 infection. No formal guidelines...
    Thread by: Andy, Jan 23, 2021, 11 replies, in forum: Long Covid research
  2. John Mac
    Thread

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Major Impact on Lives of Both Patients and Family Members, Brittain et al, 2021

    Abstract Background and objectives: To explore the impacts that Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has on the patient and...
    Thread by: John Mac, Jan 7, 2021, 3 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  3. Sly Saint
    Thread

    Finland: Helsinki University Hospital’s Outpatient Clinic for Functional Disorders treats ME/CFS patients

    The Finnish Ministry of Social Affairs and Health defines ME/CFS officially as a “functional disorder” and the University Hospital of Helsinki...
    Thread by: Sly Saint, Dec 15, 2020, 11 replies, in forum: Other clinics and doctors
  4. Andy
    Thread

    Patients’ Experiences of Telephone-Based & Web-Based [CBT] for Irritable Bowel Syndrome: Longitudinal Qualitative Study, 2020, Bishop, Chalder et al

    Background: Cognitive behavioral therapy (CBT) is recommended in guidelines for people with refractory irritable bowel syndrome (IBS). However,...
    Thread by: Andy, Nov 21, 2020, 6 replies, in forum: Other psychosomatic news and research
  5. Hutan
    Thread

    UK: 'Managing my ME', 2010, ME Association

    'Results of probably the largest-ever survey of opinion among people with ME/CFS and their carers about what treatments and therapies work for...
    Thread by: Hutan, Nov 16, 2020, 12 replies, in forum: General ME/CFS news
  6. Sly Saint
    Thread

    Lived experiences in daily life with myalgic encephalomyelitis: 2020, Sandhu et al

    Abstract Introduction Myalgic encephalomyelitis is a complex systemic condition, causing severe symptoms that limit the quality of life of the...
    Thread by: Sly Saint, Nov 5, 2020, 2 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  7. Dolphin
    Thread

    Finding the 'right' GP: a qualitative study of the experiences of people with long-COVID, 2020, Kingstone/Chew-Graham/et al

    Free full text: https://bjgpopen.org/content/early/2020/10/12/bjgpopen20X101143 Finding the 'right' GP: a qualitative study of the experiences of...
    Thread by: Dolphin, Oct 17, 2020, 6 replies, in forum: Long Covid research
  8. Kalliope
    Thread

    Trial By Error by David Tuller: How Professor Lubet's Nightmare Began...

    A few years ago, my friend and colleague Steven Lubet, a law professor and scholar at Northwestern University, wrote the following account of the...
    Thread by: Kalliope, Oct 14, 2020, 1 replies, in forum: General ME/CFS news
  9. Dx Revision Watch
    Thread

    Persistent symptoms after Covid-19: qualitative study of 114 long Covid patients and draft quality criteria for services, 2020, Greenhalgh et al.

    [MEDIA] Preprint paper here: Persistent symptoms after Covid-19: qualitative study of 114 long Covid patients and draft quality criteria for...
    Thread by: Dx Revision Watch, Oct 14, 2020, 35 replies, in forum: Long Covid research
  10. Andy
    Thread

    Rebuilding a tolerable life: narratives of women recovered from fibromyalgia, 2020, Eik et al

    Introduction: Fibromyalgia syndrome (FMS) is a chronic musculoskeletal pain and fatigue condition. Despite extensive research, there is currently...
    Thread by: Andy, Oct 10, 2020, 10 replies, in forum: 'Conditions related to ME/CFS' news and research
  11. shak8
    Thread

    UK writer with ME Susanna Clarke - press articles

    This thread includes posts from threads on articles in the New Yorker and the Guardian. Any new articles should be posted here. Quote from the...
    Thread by: shak8, Sep 10, 2020, 36 replies, in forum: General ME/CFS news
  12. Sly Saint
    Thread

    Blog: M.E. myself and I Living life in the slow lane with an invisible,chronic illness

    By other people’s standards my health is never Good. So it can be hard to convince them what I mean when I say things are Bad. There are no...
    Thread by: Sly Saint, Sep 5, 2020, 1 replies, in forum: General ME/CFS news
  13. Sly Saint
    Thread

    Patients’ experiences with fluctuations in persistent physical symptoms: a qualitative study - Barends et al July 2020

    Abstract Objectives To explore patients’ experiences with fluctuations in persistent physical symptoms (PPS) and to understand which factors—from...
    Thread by: Sly Saint, Jul 14, 2020, 16 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  14. Sly Saint
    Thread

    Personal stories of CBT for ME, blogs videos

    New thread created for posting any videos and blogs about people with ME experiences of CBT the first three posts have been moved from CBT for...
    Thread by: Sly Saint, Jul 13, 2020, 4 replies, in forum: Psychosomatic theories and treatments discussions
  15. Sly Saint
    Thread

    Open Canada (BC) Calling all physicians, specialists, allied health, clinical operations leads, and other clinicians!July 2020

    Dr. Hilary Robertson (ME|FM Society of BC) and Dr. Luis Nacul (BC Women’s Hospital’s Complex Chronic Diseases Program) would like to invite you to...
    Thread by: Sly Saint, Jul 8, 2020, 0 replies, in forum: Recruitment into current ME/CFS research studies
  16. Andy
    Thread

    The experience of living with severe ME/CFS, Newton et al, study starts July 2020

    The plight of patients with severe ME/CFS has been the subject of a series of studies funded by ME Research UK over the last few years, and...
    Thread by: Andy, Jun 5, 2020, 0 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  17. Kalliope
    Thread

    Patient's experiences and effects of non-pharmacological treatment for ME/CFS - a scoping mixed method review - 2020 - Mengshoel et al

    International Journal of Qualitative Studies on Health and Wellbeing Patient's experiences and effects of non-pharmacological treatment for...
    Thread by: Kalliope, May 20, 2020, 19 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  18. Andy
    Thread

    Blog: The fear in my doctor’s eyes by Anil van der Zee

    Before becoming ill, my relationship with the medical world was always great. It was pretty much straightforward really. During my profession as...
    Thread by: Andy, May 19, 2020, 12 replies, in forum: General ME/CFS news
  19. shak8
    Thread

    My mom is limited by a disability but still shows up in all ways that matter-Washington Post article

    https://www.washingtonpost.com/lifestyle/2020/05/08/what-i-learned-watching-my-mom-parent-with-disability/ Brittany Collins, author The mom has...
    Thread by: shak8, May 8, 2020, 10 replies, in forum: General ME/CFS news
  20. Dolphin
    Thread

    Patient experiences and the psychosocial benefits of group aquatic exercise to reduce symptoms of ME/CFS: a pilot study, 2020, Broadbent et al

    https://www.tandfonline.com/doi/full/10.1080/21641846.2020.1751455 Australian research Articles Patient experiences and the psychosocial...
    Thread by: Dolphin, Apr 18, 2020, 54 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
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