This is a beautiful piece about becoming chronically ill, learning to cope under the extreme burden, and accepting a new reality. It was written...
I'm a bit late sharing this, since it was published on March 8, and I keep forgetting to post! But I really enjoyed this essay written by...
M.E. In BC [British Columbia]: How the healthcare system for M.E. impacts clinicians and patients This is a preliminary study assessing the unmet...
Spanish title: Síndrome de fatiga crónica: experiencias de las personas afectadas, práctica clínica y justicia epistémica Looks like it might be...
Reverend Joe Haward shares his experiences of having ME and explores the challenges patients face in getting the reality of their lives with the...
The Norwegian ME Association just published an impressive survey on 5.822 ME patients in Norway. An English summary is available here:...
Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex, only partially understood multi-system disease whose onset and...
They talk, in the abstract, about chronic fatigue only, but the patients they discuss have gone through a "CFS/ME" assessment, so may or may not...
https://www.theguardian.com/lifeandstyle/2021/feb/06/my-personal-lockdown-has-been-much-longer-on-chronic-illness-before-and-after-covid Not sure...
Abstract Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) is a rare disease with no known etiology. It affects 0.4% of the population,...
From Jamison Hill's blog, Jamison Writes: https://jamisonwrites.com/2021/01/26/my-book-is-officially-published/ MY BOOK IS OFFICIALLY PUBLISHED!...
On Monday afternoon, I had an e-mail exchange with Christine Hill, a spokeswoman for the Hennepin Healthcare in Minnesota. Thane Fredrickson, an...
Reading quotes from ME patients in George Monbiot’s article on ME/CFS and long covid in the Guardian gave me an idea: could S4ME set up a thread...
Persistent symptoms lasting longer than 3 weeks are thought to affect 10–20% of patients following SARS-CoV-2 infection. No formal guidelines...
Abstract Background and objectives: To explore the impacts that Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has on the patient and...
The Finnish Ministry of Social Affairs and Health defines ME/CFS officially as a “functional disorder” and the University Hospital of Helsinki...
Background: Cognitive behavioral therapy (CBT) is recommended in guidelines for people with refractory irritable bowel syndrome (IBS). However,...
'Results of probably the largest-ever survey of opinion among people with ME/CFS and their carers about what treatments and therapies work for...
Abstract Introduction Myalgic encephalomyelitis is a complex systemic condition, causing severe symptoms that limit the quality of life of the...
Free full text: https://bjgpopen.org/content/early/2020/10/12/bjgpopen20X101143 Finding the 'right' GP: a qualitative study of the experiences of...
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