Edit: Now published, see post #4 in this thread. Abstract Background: Stigma can be experienced as perceived or actual disqualification from...
For years I was told to doubt my own body. My own pain levels. I was put to sleep and cut open, only to be told I didn’t have a disease I did...
New online course on Medbridge: Lessons From Myalgic Encephalomyelitis for Long COVID presented by Todd Davenport, PT, DPT, MPH, OCS...
A new website was launched today in Norway; LP-fortellinger (LP-stories). For now it has 32 stories about ME patients' negative experiences with...
Abstract Objective: To explore the lived experience of ‘brain fog’—the wide variety of neurocognitive symptoms that can follow COVID-19. Design...
Highlights • Functional seizures remains a complex neuropsychiatric condition to identify and treat. • Practitioners must address management of...
Abstract Background: Long COVID, an illness affecting a subset of individuals after COVID-19, is distressing and poorly understood. Exploring the...
Abstract Long-Covid (LC), as a patient-defined illness, has rapidly emerged as both a medical and social issue since 2020, drawing headlines in...
Pamela had to be hospitalised after she started regularly feeling under the weather. It wasn’t until later that Pamela was diagnosed with Chronic...
In this series: Getting to Know ME, we will explore what it's like living with a life-limiting condition ME (Myalgic Encephalomyelitis). We will...
Long Covid/Post-Acute-Covid Syndrome as a‘hybrid condition’-A common framework for patients’ experience and pathophysiology AUTHORS Dirk...
ABSTRACT Introduction: Research regarding students with myalgic encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) has been limited. This...
This thread has been moved from the News subforum and renamed following a published paper based on Cheston's work. Respect and Shame in...
‘Reimagining a self’: an evocative autoethnography of living alongside Myalgic Encephalomyelitis(ME) Orlagh Farrell Delaney RGN, MA A thesis...
SAGE Open Nursing "Can Someone as Young as You Really Feel That Much Pain?" - A Survey on How People With Fibromyalgia Experience Healthcare in...
Full title: The impact of Post-COVID-Syndrome on functioning – results from a community survey in patients after mild and moderate...
This thread contains excerpts from and links to all of Veronica's published poems. Veronica Ashenhurst, a friend of mine who is a Canadian lawyer...
2 of their interviewees have/had CFS...
Chronic diseases like Ehlers-Danlos Syndrome, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), and Fibromyalgia have long been...
Very good writing here….(cancer, not ME/CFS). “Are you someone who enjoys the unsolicited opinions of strangers and acquaintances? If so, I can’t...
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