United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

Discussion in 'Regional news' started by Sly Saint, Sep 8, 2022.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    See also News from Scotland
    _________________

    Moved from the News from the MEA thread.


    not news from MEA as such; but anyone know about this person https://www.wandabelisle.com/
    according to her website "
    FEATURED on upload_2022-9-8_11-17-24.png
     
    Last edited by a moderator: Dec 1, 2022
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  2. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Merged thread

    New M.E Support Group @ Dunston, Gateshead


    Contact Person
    Pauline Dillon

    Email
    admin@dunstondrop-in.org.uk
    Organisation Address
    Dunston Drop-In CIO
    Unit 2,
    Clockmill Road
    Dunston
    NE8 2QX
    United Kingdom

    (I don't know any more about this group)
     
    Last edited by a moderator: Sep 8, 2022
  3. Trish

    Trish Moderator Staff Member

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    Last edited: Sep 8, 2022
  4. BrightCandle

    BrightCandle Senior Member (Voting Rights)

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    The electrolyte drink sounds quite interesting, D-ribose often gets thrown in (does nothing for me) but 5g of L-Glutamine is quite a bit and this is twice a day, that will have an impact. Since the ME/CFS body appears to run on this protein for energy I can imagine that might very well help.

    Another individual set back and hurt by GET, its a sad repeated story at this point.
     
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  5. Trish

    Trish Moderator Staff Member

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    Do you have a link to the sources of this?
     
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  6. TigerLilea

    TigerLilea Senior Member (Voting Rights)

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    Why, if someone has truly had ME, would they not be offering their information for free for everyone to read? Most people who have found something that helps with their particular medical condition usually are shouting it from the rooftop trying to get everyone to listen to them. They aren't writing books about it and charging you for the information.
     
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  7. NelliePledge

    NelliePledge Moderator Staff Member

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    I think there’s a small subset who are writing books or doing “training courses” and charging.
     
  8. TiredSam

    TiredSam Committee Member

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    Not too keen on the stock image of a model in bed:
    https://www.istockphoto.com/de/foto/foto-einer-frau-die-aufwacht-gm1257805561-368739078

    Although I must grudgingly admit I liked her video on toxic positivity:

    https://www.instagram.com/reel/Ch2b5GRJ0ST/embed/?autoplay=1
     
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  9. NelliePledge

    NelliePledge Moderator Staff Member

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    That image vibe is post coital rather than post viral
     
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  10. Kitty

    Kitty Senior Member (Voting Rights)

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    :laugh::laugh:
     
  11. bobbler

    bobbler Senior Member (Voting Rights)

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  12. Suffolkres

    Suffolkres Senior Member (Voting Rights)

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    Moved post

    Today Woman's Hour Radio 4


    10.30ish Arrogance in doctors and mother blame……Cultural issues….

    Gina CYP Consultant comment… 'Arrogance leads to death…..'


    https://www.bbc.co.uk/programmes/p0d514ry


    Today Woman's Hour Radio 4Exclusive: My 13-year-old daughter’s death was preventable. Here’s why I’m speaking out
    Merope Mills describes her anger at her daughter Martha's preventable death in hospital.

    loss of "relationship medicine"... patient safety....at risk with loss of continuity of care...
     
    Last edited by a moderator: Oct 18, 2022
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  13. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Merged thread

    WAMES WordPress Volunteer for the Welsh Association of ME and CFS Support


    https://ceredigion.volunteering-wales.net/volunteers/opportunity/10174346?searchqs=
     
    Last edited by a moderator: Dec 1, 2022
  14. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Northern Ireland

    Michael Watt: Review finds 'significant failures' in patient treatment

    https://www.bbc.co.uk/news/uk-northern-ireland-63784995
     
    Last edited by a moderator: Dec 1, 2022
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  15. CRG

    CRG Senior Member (Voting Rights)

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    Sajid Javid to stand down as MP at next general election


    Wasn't sure where to put this - but Sajid Javid will cease to be an advocate for ME/CFS in Parliament after the next election - date unspecified but has to be within the next two years.

    https://inews.co.uk/news/politics/sajid-javid-stand-down-next-general-election-2006219

    "Former Cabinet minister Sajid Javid has announced he will stand down as an MP at the next General Election.

    Mr Javid, who held six Cabinet posts under three prime ministers including Chancellor, Home Secretary and Health Secretary, announced on Twitter: “After much reflection I have decided that I will not be standing again at the next General Election.

    “Serving as the Member of Parliament for Bromsgrove remains an incredible privilege, and I will continue to support the Government and the causes I believe in.”
     
    Last edited by a moderator: Dec 2, 2022
  16. Shadrach Loom

    Shadrach Loom Senior Member (Voting Rights)

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    We have several supporters in the Lords, as well, who may be replaced with democratically elected scrutinisers of legislation under an incoming Labour government. Plus ca change!
     
  17. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Funding boost to open long COVID services up to people with long term conditions

    Health Minister Eluned Morgan has today announced increased funding to widen access to Wales’ long-Covid services, including for people experiencing other long-term conditions.

    https://www.gov.wales/funding-boost-open-long-covid-services-people-long-term-conditions
     
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  18. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

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    The MEA shared this Parliamentary petition on their Facebook page recently, it may have been shared elsewhere, so sorry if this is a duplicate

    Urgent funding for research into Long Covid and ME/CFS treatments and cures

    “Around a quarter of a million people are suffering with ME/CFS in the UK and over 2 million with long Covid. Many of these people are severely disabled. There are no cures of specific medicines for these conditions. Urgent funding is needed for research to find effective treatments and cures.”
    https://petition.parliament.uk/petitions/630551

    Can only be shared by UK citizens and/or UK residents.

    For discussion of this, go to the petition thread:
    Petition: UK Funding for ME & Long Covid research into treatment
     
    Last edited by a moderator: Mar 14, 2023
  19. Dolphin

    Dolphin Senior Member (Voting Rights)

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  20. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Merged thread

    Article in several papers UK: Health expert lists six reasons you might feel tired all the time


    also
    Doctor shares six little-known reasons you may feel tired 'all the time'


    so far I've found 2

    https://www.nottinghampost.com/news/health/health-expert-lists-six-medical-8551059

    https://www.dailyrecord.co.uk/news/health/doctor-shares-six-little-known-30321593

    only local but.......
     
    Last edited by a moderator: Jun 26, 2023

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