benefitsandwork.co.uk has just published a new guide for those claiming PIP for ME/CFS. The full guide is only available to paid members, but the...
There’s a special kind of irony to GP appointments these days. You must overcome countless obstacles to secure one: waiting on hold even when you...
Abstract Long covid (persistent COVID-19) is a new disease with contested aetiology and variable prognosis. We report a 2-year ethnography of UK...
In the UK something similar happened. The Medical Research Council (MRC) up to at least 1995 tried to pretend they were funding ME research while...
From the #MEAction website: Questions to Ask Prospective MPs About ME/CFS...
Programme on fabricated or induced illness (FII) on at 11:00 am UK time. Will be on website and app after broadcast. Trailer suggests includes...
This thread is for a list of sub-national UK ME/CFS and Long Covid organisations. National organisations are listed in ME/CFS and Long Covid...
Copied post From: Dr. Marc-Alexander Fluks Source: British Association of Clinicians in ME/CFS (BACME) Date: October 23, 2023 URL:...
Abstract Purpose The complexity of long COVID and its diverse symptom profile contributes to unprecedented challenges for patients, clinicians,...
https://www.bmj.com/content/382/bmj.p1983
What is the Bodily Distress Disorder Service? One-Stop-Shop The Bodily Distress Disorder (BDD) Wellbeing Service offers a “One-Stop-Shop” service...
A thread to collate studies and reports on the historical (or current) level of ME/CFS research funding in the UK. I'm primarily interested in...
ONS Health state life expectancies, UK: 2018 to 2020 1. Main Points Healthy life expectancy (HLE) at birth in the UK showed no significant...
The Kings Fund How does the NHS compare to the health care systems of other countries ? Siva Anandaciva *Comparing the health care systems...
Institute for Government "This report – written jointly report by the Institute for Government and Public First, and funded by the Health...
I'm still not spending much time online unfortunately so this may have been discussed elsewhere. Apologies if it has. As those of us in the UK...
Updated 2nd May 2023. "Apply for funding to research myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS). You can get...
I saw this post by @MEFoggyDog on Mastodon so I thought I'd share. This same hashtag - #MPDoYourJobForME - is also being used on twitter so you...
Does anyone know when the old GP training video from Kings with Chalder/Gerada was published? Or any ideas how I could find out. [MEDIA] The...
Split from the 2021-2 thread From today’s Politico newsletter: Shadow Work and Pensions Secretary Jonathan Ashworth will deliver a speech to the...
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