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united kingdom

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  1. Andy
    Thread

    UK: ME/CFS and Long Covid Group for Black Communities

    "This is an online group for Black and Black-mixed adults living with ME/CFS or Long-Covid in the UK. It is a safe space to share experiences and...
    Thread by: Andy, Jul 16, 2021, 5 replies, in forum: Advocacy Projects and Campaigns
  2. Sly Saint
    Thread

    Trial By Error: Why Have Experts in MUS Spent Ten Years Mis-Citing a Study about Costs to the NHS? David Tuller

    What does it mean that the top investigators in a field of research have collectively and consistently misrepresented a seminal figure in their...
    Thread by: Sly Saint, Apr 24, 2021, 7 replies, in forum: General ME/CFS News
  3. Sly Saint
    Thread

    UK: Exeter - temporary job researching family carers of people with ME/CFS, 2021

    Job advert: This part-time (0.5 FTE) post is available from 1st June 2021 on a fixed-term basis until 30th November 2021. The post The College...
    Thread by: Sly Saint, Apr 24, 2021, 6 replies, in forum: PsychoSocial ME/CFS News
  4. Andy
    Thread

    A Multidisciplinary NHS COVID-19 Service to Manage Post-COVID-19 Syndrome in the Community, 2021, Parkin et al

    Abstract The National Institute for Health and Care Excellence (NICE) describe “post COVID-19 syndrome” or “Long COVID” as a set of persistent...
    Thread by: Andy, Apr 22, 2021, 4 replies, in forum: Epidemics (including Covid-19)
  5. Tom Kindlon
    Thread

    United Kingdom: The Gibson Inquiry, (Inquiry into the status of CFS/M.E. and research into causes and treatment), 2006

    This post copied from the members only thread in memory of Dr Ian Gibson Invest in ME Research report that their advisor and friend Dr Ian Gibson...
    Thread by: Tom Kindlon, Apr 10, 2021, 4 replies, in forum: General ME/CFS News
  6. Sly Saint
    Thread

    Medical School Education on Myalgic Encephalomyelitis: 2021 Muirhead,Marsh et al

    Preprint " Abstract Background and objectives: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome ME/CFS is a common complex multi-system...
    Thread by: Sly Saint, Mar 17, 2021, 4 replies, in forum: BioMedical ME/CFS Research
  7. rvallee
    Thread

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    I imagine there is supposed to be a point somewhere in there but all I read is people saying if they had been tasked with it they would have done...
    Thread by: rvallee, Feb 25, 2021, 285 replies, in forum: 2020 UK NICE ME/CFS Guideline
  8. Sly Saint
    Thread

    UK disability benefits (ESA and PIP) updates, news and articles, 2021

    Audio recording option set to be introduced for all PIP assessments, says DWP Feb 2021 The Department for Work and Pensions (DWP) has finally...
    Thread by: Sly Saint, Feb 22, 2021, 36 replies, in forum: Work, Finances and Disability Insurance
  9. Dolphin
    Thread

    The influence of the biopsychosocial (BPS) view of ME/CFS in government guidelines and medical practice in different countries (past and present)

    This thread has been split from a thread discussing a book about Ron Davis: The Puzzle Solver by Tracie White I've been following ME/CFS...
    Thread by: Dolphin, Feb 21, 2021, 32 replies, in forum: General ME/CFS News
  10. Andy
    Thread

    United Kingdom: NICE National Institute for Health and Care Excellence

    Join us for the launch of our bold and ambitious new strategy. At the event, you'll hear directly from our leadership team. They'll be discussing...
    Thread by: Andy, Feb 15, 2021, 11 replies, in forum: News from Organisations
  11. Andy
    Thread

    UK: Petition: Specify ME/CFS on the list of neurological conditions under group 6 for UK Covid19 vaccine

    ME (or CFS as some still call it) is a chronic neurological condition that affects around 250,000 people across the UK, 75% are too unwell to work...
    Thread by: Andy, Feb 13, 2021, 21 replies, in forum: Petitions
  12. Peter Trewhitt
    Thread

    United Kingdom: ME Association news

    Copied from this thread The British ME Association are requesting people to send them accounts of their experiences of health and social care as...
    Thread by: Peter Trewhitt, Feb 8, 2021, 22 replies, in forum: News from Organisations
  13. John Mac
    Thread

    BBC: Philippa Day: Benefit errors 'predominant factor' in mum's death

    Not ME but nevertheless... Authorities who dealt with a benefits claim from a single mother, who took a fatal overdose after her payments were...
    Thread by: John Mac, Jan 27, 2021, 2 replies, in forum: General disability topics and advocacy
  14. rvallee
    Thread

    United Kingdom: Multiple Symptoms Study 3 (ScHARR) - NIHR funded MUS treatment trial

    https://www.sheffield.ac.uk/scharr/research/centres/ctru/mss3 I don't see a thread on this. The list of contributors imply a very expensive price...
    Thread by: rvallee, Jan 17, 2021, 21 replies, in forum: Health News and Research unrelated to ME/CFS
  15. Sarah94
    Thread

    UK: Department of Work and Pensions (DWP) medical evidence

    Two questions: (1) Does the DWP accept reports from private consultants as medical evidence? I mean like, will they be snobby about it and not...
    Thread by: Sarah94, Jan 16, 2021, 9 replies, in forum: Work, Finances and Disability Insurance
  16. Andy
    Thread

    UK: NICE Blog: How NICE is improving patient safety, Nov 2020

    The role of the senior responsible officer for patient safety was established to bring together strands of patient safety across NICE, providing a...
    Thread by: Andy, Dec 30, 2020, 2 replies, in forum: General disability topics and advocacy
  17. Kalliope
    Thread

    U.K. trial Rehabilitation exercise and psychological support after Covid 19 infection (REGAIN) Warwick University

    This post and all to post #12 have been moved here from the BPS attempts at psychologising Long Covid thread. Links to Warwick University and...
    Thread by: Kalliope, Dec 11, 2020, 29 replies, in forum: Epidemics (including Covid-19)
  18. Hutan
    Thread

    UK: 'Managing my ME', 2010, ME Association

    'Results of probably the largest-ever survey of opinion among people with ME/CFS and their carers about what treatments and therapies work for...
    Thread by: Hutan, Nov 16, 2020, 12 replies, in forum: General ME/CFS News
  19. Hutan
    Thread

    The 2018 UK NHS Digital annual report on the Improving Access to Psychological Therapies programme: a brief commentary, 2019, Moller et al

    https://bmcpsychiatry.biomedcentral.com/articles/10.1186/s12888-019-2235-z Naomi Petra Moller, Gemma Ryan, Jasmine Rollings & Michael Barkham...
    Thread by: Hutan, Nov 8, 2020, 5 replies, in forum: PsychoSocial ME/CFS Research
  20. Hutan
    Thread

    Predicting patient engagement in IAPT services: a statistical analysis of electronic health records, 2019, Davis et al

    doi:10.1136/ebmental-2019-300133 Sci-Hub Alice Davis, Theresa Smith, Jenny Talbot, Chris Eldridge, David Betts ABSTRACT Background Across...
    Thread by: Hutan, Nov 8, 2020, 0 replies, in forum: PsychoSocial ME/CFS Research
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