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  1. Sly Saint
    Thread

    TV Program: Clapped Out: Is the NHS Broken?, Dispatches, Channel 4, UK

    "After 18 months of Covid, award-winning journalist Matthew Syed travels the country asking some tough questions about the performance of our...
    Thread by: Sly Saint, Oct 19, 2021 at 12:12 PM, 8 replies, in forum: Health News and Research unrelated to ME/CFS
  2. Suffolkres
    Thread

    United Kingdom: Petition, Create a Task Force to Oversee Drug Procurement for ALL Post Viral Conditions - deadline 20 November 2021

    Moved post The great majority of doctors will not get to hear about this. However, quite a high proportion of GPs are likely to take note since it...
    Thread by: Suffolkres, Oct 19, 2021 at 11:18 AM, 0 replies, in forum: Petitions
  3. Sly Saint
    Thread

    Royal College of General Practitioners Conference, Oct 14th - 15th, 2021

    https://www.rcgpac.org.uk/programme/ speakers include Dr Amy Small Professor Chew-Graham Dr Julia Newton https://www.rcgpac.org.uk/speakers-2021/
    Thread by: Sly Saint, Oct 14, 2021, 2 replies, in forum: Health News and Research unrelated to ME/CFS
  4. Sly Saint
    Thread

    Bristol Chronic Fatigue Syndrome/ME Service changes its name to Bristol M.E. Service

    Bristol M.E. Service: Supporting people with M.E./CFS and PVFS across Gloucestershire, Bristol and North Somerset We have renamed our Service...
    Thread by: Sly Saint, Oct 4, 2021, 9 replies, in forum: General ME/CFS News
  5. Esther12
    Thread

    [NIHR/MRC document] Framework for the development and evaluation of complex interventions, 2021, Skivington et al

    I thought it could be of interest to some people here, though I only had a very quick look myself. 172 pages....
    Thread by: Esther12, Oct 3, 2021, 2 replies, in forum: Health News and Research unrelated to ME/CFS
  6. Sly Saint
    Thread

    House of Lords: Govt discussions with NICE on ME/CFS (Main Chamber) Tuesday, 12 October 2021

    "Government discussions with the National Institute for Health and Care Excellence about myalgic encephalomyelitis and chronic fatigue syndrome –...
    Thread by: Sly Saint, Sep 15, 2021, 41 replies, in forum: 2020 UK NICE ME/CFS Guideline
  7. Adrian
    Thread

    How useful are the United Kingdom NHS ME/CFS clinics?

    Posts moved from NICE pauses publication of updated ME/CFS guideline hours before publication was due - 17th August 2021 They may claim data...
    Thread by: Adrian, Sep 11, 2021, 2 replies, in forum: General ME/CFS News
  8. Sly Saint
    Thread

    An Audit of UK Hospital Doctors’ Knowledge and Experience of Myalgic Encephalomyelitis, 2021, Hng, Geraghty & Pheby

    Abstract Background and Objectives: There is some evidence that knowledge and understanding of ME among doctors is limited. Consequently, an audit...
    Thread by: Sly Saint, Aug 27, 2021, 1 replies, in forum: General ME/CFS News
  9. Andy
    Thread

    Long Covid – The illness narratives, 2021, Rushforth, Greenhalgh et al

    Highlights • Long Covid is a patient-defined illness which gained legitimacy in online communities. • We analysed long Covid narratives using...
    Thread by: Andy, Aug 24, 2021, 21 replies, in forum: Epidemics (including Covid-19)
  10. MSEsperanza
    Thread

    The new NICE Guideline for ME/CFS: Ten Questions Answered (Brian Hughes)

    https://thesciencebit.net/2021/08/15/the-new-nice-guideline-for-me-cfs-ten-questions-answered/ This has been posted already, but I thought...
    Thread by: MSEsperanza, Aug 18, 2021, 1 replies, in forum: 2020 UK NICE ME/CFS Guideline
  11. Andy
    Thread

    Long Covid in adults discharged from UK hospitals after Covid-19: A prospective, multicentre cohort study..., 2021, Sigfrid et al

    Full title: Long Covid in adults discharged from UK hospitals after Covid-19: A prospective, multicentre cohort study using the ISARIC WHO...
    Thread by: Andy, Aug 14, 2021, 1 replies, in forum: Epidemics (including Covid-19)
  12. Sly Saint
    Thread

    Royal London Hospital for Integrated Medicine: Physiotherapy for Chronic Fatigue (CFS), Aug 5 2021

    Unbelievable.............. [MEDIA]
    Thread by: Sly Saint, Aug 6, 2021, 36 replies, in forum: General ME/CFS News
  13. Andy
    Thread

    Open ME Association: The UK ME/CFS Post Mortem Tissue Bank and Tissue Donation

    "The ME Association is the only M.E. charity involved in the collection of post mortem tissue samples from people diagnosed with the disease in...
    Thread by: Andy, Jul 27, 2021, 1 replies, in forum: Recruitment into current ME/CFS research studies
  14. Andy
    Thread

    UK: ME/CFS and Long Covid Group for Black Communities

    "This is an online group for Black and Black-mixed adults living with ME/CFS or Long-Covid in the UK. It is a safe space to share experiences and...
    Thread by: Andy, Jul 16, 2021, 5 replies, in forum: Advocacy Projects and Campaigns
  15. Andy
    Thread

    Office of National Statistics: Prevalence of ongoing symptoms following coronavirus (COVID-19) infection in the UK: Updates

    "Main points At 2 May 2021, an estimated 1.0 million people living in private households in the UK (1.6%) were experiencing self-reported long...
    Thread by: Andy, Jun 4, 2021, 13 replies, in forum: Epidemics (including Covid-19)
  16. Andy
    Thread

    UK: News from ME Research UK

    A thread for news from ME Research UK, starting with Funding: Investigating brain-stem dysfunction in ME/CFS using 7-Tesla MRI...
    Thread by: Andy, May 10, 2021, 11 replies, in forum: News from Organisations
  17. Sly Saint
    Thread

    Trial By Error: Why Have Experts in MUS Spent Ten Years Mis-Citing a Study about Costs to the NHS? David Tuller

    What does it mean that the top investigators in a field of research have collectively and consistently misrepresented a seminal figure in their...
    Thread by: Sly Saint, Apr 24, 2021, 11 replies, in forum: General ME/CFS News
  18. Sly Saint
    Thread

    UK: Exeter - temporary job researching family carers of people with ME/CFS, 2021

    Job advert: This part-time (0.5 FTE) post is available from 1st June 2021 on a fixed-term basis until 30th November 2021. The post The College...
    Thread by: Sly Saint, Apr 24, 2021, 6 replies, in forum: PsychoSocial ME/CFS News
  19. Andy
    Thread

    A Multidisciplinary NHS COVID-19 Service to Manage Post-COVID-19 Syndrome in the Community, 2021, Parkin et al

    Abstract The National Institute for Health and Care Excellence (NICE) describe “post COVID-19 syndrome” or “Long COVID” as a set of persistent...
    Thread by: Andy, Apr 22, 2021, 4 replies, in forum: Epidemics (including Covid-19)
  20. Tom Kindlon
    Thread

    United Kingdom: The Gibson Inquiry, (Inquiry into the status of CFS/M.E. and research into causes and treatment), 2006

    This post copied from the members only thread in memory of Dr Ian Gibson Invest in ME Research report that their advisor and friend Dr Ian Gibson...
    Thread by: Tom Kindlon, Apr 10, 2021, 4 replies, in forum: General ME/CFS News
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