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  1. Andy
    Thread

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    Statement My Rt Hon Friend the Secretary of State for Health and Social Care (Sajid Javid) has made the following written statement: Myalgic...
    Thread by: Andy, May 12, 2022, 102 replies, in forum: General ME/CFS news
  2. Wyva
    Thread

    Preprint: Does pre-infection stress increase the risk of long COVID? Longitudinal associations between adversity worries (...), 2022, Paul, Fancourt

    Full title: Does pre-infection stress increase the risk of long COVID? Longitudinal associations between adversity worries and experiences in the...
    Thread by: Wyva, May 3, 2022, 3 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  3. InitialConditions
    Thread

    United Kingdom: Nottingham ME/CFS Service

    Copied post. This thread has been created to discuss the Nottingham service and their online materials. "The clinical leader of the Nottingham...
    Thread by: InitialConditions, Apr 20, 2022, 3 replies, in forum: UK clinics and doctors
  4. Andy
    Thread

    To the emergency room and back again: Circular healthcare pathways for acute functional neurological disorders, 2022, Williams et al

    Highlights We prospectively identified acute FND referrals in a UK city hospital. Dynamic, moving maps of patient pathways show loops around...
    Thread by: Andy, Apr 19, 2022, 2 replies, in forum: Other psychosomatic news and research
  5. rvallee
    Thread

    University of York, UK - STIMULATE-ICP - Online questionnaire based study about Integrated Care Pathways for chronic illnesses

    Copied from the Long Covid thread This BPS-focused questionnaire is open to everyone with a long-term chronic illness. Its explicit aim is to...
    Thread by: rvallee, Apr 8, 2022, 11 replies, in forum: Recruitment into current ME/CFS research studies
  6. rvallee
    Thread

    United Kingdom: Long Covid Kids

    [MEDIA] [MEDIA] Edit: another one [MEDIA] Did the BBC ever cover the Millions Missing protests? Not mad about this coverage, but the only...
    Thread by: rvallee, Apr 1, 2022, 3 replies, in forum: News from organisations
  7. Ian NeuroProActive
    Thread

    UK company Neuro ProActive

    Dear all, It’s great to be part of this forum. Neuro ProActive is a web and app based, therapist led digital platform for the rehabilitation and...
    Thread by: Ian NeuroProActive, Mar 20, 2022, 36 replies, in forum: UK clinics and doctors
  8. Jonathan Edwards
    Thread

    Implementation statement in support of ME/CFS diagnosis and management, NICE, draft published for consultation

    Moved from the UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion thread. Dear Jonathan Further to the email...
    Thread by: Jonathan Edwards, Mar 14, 2022, 69 replies, in forum: 2020 UK NICE ME/CFS Guideline
  9. MarianaLewis
    Thread

    Open 2022 UK Recruiting: narrative inquiry exploring the school experiences of teenagers with ME/CFS (doctoral research)

    Hello, Thank you for being so welcoming on this forum. My name is Mariana, I'm currently doing a professional doctorate in Educational...
    Thread by: MarianaLewis, Mar 12, 2022, 21 replies, in forum: Recruitment into current ME/CFS research studies
  10. livinglighter
    Thread

    UK: Specialist Rehabilitation Medicine Services for ME/CFS and Long Covid

    Moved post BJGP Life: Opinion Piece: Reflections on NICE, CFS/ME, and the Lightning Process "Anna Chellamuthu is a GP Specialty Doctor in...
    Thread by: livinglighter, Mar 4, 2022, 59 replies, in forum: UK clinics and doctors
  11. Andy
    Thread

    UK: Office of National Statistics: COVID-19 Schools Infection Survey, England: mental health and long COVID reports

    COVID-19 Schools Infection Survey, England: mental health and long COVID, November to December 2021 "1.Main points Since March 2020, 1.0% of...
    Thread by: Andy, Feb 28, 2022, 6 replies, in forum: Long Covid news
  12. Andy
    Thread

    Burnout and long COVID among the UK nephrology workforce: results from a national survey...., 2022, Selvaskandan et al

    Full title: Burnout and long COVID among the UK nephrology workforce: results from a national survey investigating the impact of COVID-19 on...
    Thread by: Andy, Feb 25, 2022, 3 replies, in forum: Long Covid research
  13. Andy
    Thread

    What ME/CFS research, funded by UK sources, is currently in process (as of end Jan 2022)?

    This is an update to this thread, What ME/CFS research, funded by UK sources, is currently in process (as of end June 2019)?, this time looking at...
    Thread by: Andy, Jan 28, 2022, 8 replies, in forum: ME/CFS research news
  14. lunarainbows
    Thread

    Housing help for PwME in the U.K.: some links

    This is some of the information gathered when discussing my personal housing situation. thanks especially to the other members who knew a lot more...
    Thread by: lunarainbows, Jan 21, 2022, 2 replies, in forum: Home adaptations, mobility and personal care
  15. Robert 1973
    Thread

    United Kingdom: Independent SAGE

    Split from this thread Independent SAGE is discussing Long Covid on Friday. I’ve emailed to suggest they invite some people like Jonathan who are...
    Thread by: Robert 1973, Jan 18, 2022, 63 replies, in forum: Advocacy Projects and Campaigns
  16. Sly Saint
    Thread

    BBC article: Specialist mental health unit failures exposed by patients

    There are serious concerns over the standards of specialist care being provided to patients with the most complex mental health needs, a BBC...
    Thread by: Sly Saint, Jan 18, 2022, 2 replies, in forum: Other health news and research
  17. Andy
    Thread

    UK: Call for action on ‘unique’ barriers facing people with energy-limiting impairments

    "A major survey has shown the significant – and often unique – barriers faced by people with energy-limiting conditions (ELC). Nearly every...
    Thread by: Andy, Dec 20, 2021, 1 replies, in forum: General disability topics and advocacy
  18. SNT Gatchaman
    Thread

    UK Parliamentary Office for Science and Technology briefing paper on Long Covid, December 2021

    UK Government Rapid Response on Long COVID Long COVID: The long-term health effects of COVID-19 (17/12/21). (Not sure the "rapid response" label...
    Thread by: SNT Gatchaman, Dec 18, 2021, 1 replies, in forum: Long Covid news
  19. Sarah
    Thread

    UK: Science and Technology Select Committee inquiry on Reproducibility and research integrity, Opened 22 July 2021

    Science and Technology Select Committee inquiry on Reproducibility and research integrity Opened 22 July 2021. Written submissions and videos for...
    Thread by: Sarah, Dec 16, 2021, 4 replies, in forum: Research methodology news and research
  20. JohnTheJack
    Thread

    Fiona Watt, Chief Executive of MRC (UK), apologizes for bullying

    MRC is now part of UKRI. On UKRI website: https://www.ukri.org/news/ukri-issues-statement-on-bullying-complaint/ News article (paywalled):...
    Thread by: JohnTheJack, Dec 16, 2021, 5 replies, in forum: Other health news and research
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