1. Guest, the 'News in Brief' for the week beginning 7th June 2021 is here.
    Dismiss Notice
  2. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice
  3. Contribute to feedback on the CDC Evidence Review, for more details click here
    Dismiss Notice

foi

  1. Sly Saint
    Thread

    UK : Government hands Amazon free access to NHS information Dec 2019

    Amazon has been given access to all “healthcare information” of the NHS in England except patients’ records, shows a government contract obtained...
    Thread by: Sly Saint, Dec 10, 2019, 1 replies, in forum: Health News and Research unrelated to ME/CFS
  2. JohnTheJack
    Thread

    REC advice on PACE trial data changed in favour of release

    I pursued this after the failure of PLOSONE to make the researchers hand over the data in compliance with the journal policy. The researchers...
    Thread by: JohnTheJack, Jul 11, 2019, 46 replies, in forum: PsychoSocial ME/CFS Research
  3. Kalliope
    Thread

    Trial By Error: FOI Response from Bristol about LP Study; Correction in BJGP about MUS

    FOI Response from Bristol about LP Study; Correction in BJGP about MUS Tuller has received a response to his FOI request with the University of...
    Thread by: Kalliope, Jul 1, 2019, 9 replies, in forum: General ME/CFS News
  4. JohnTheJack
    Thread

    More PACE trial data released

    I first applied back in 2016. I went through review and then a complaint to the ICO and then all through last year I was in the process of an...
    Thread by: JohnTheJack, May 7, 2019, 238 replies, in forum: PsychoSocial ME/CFS Research
  5. JohnTheJack
    Thread

    KCL and the PACE data

    KCL also claimed that it doesn't hold the data in terms of the FOIA. The ICO upheld the KCL decision, so I appealed to the FTT. In the course of...
    Thread by: JohnTheJack, May 1, 2019, 8 replies, in forum: PsychoSocial ME/CFS Research
  6. JohnTheJack
    Thread

    Appeal to the FTT for information from QMUL rejected

    Decision here. https://www.dropbox.com/s/kc9ezxfk51t1eu5/014%20040419%20Decision.pdf?dl=0
    Thread by: JohnTheJack, Apr 4, 2019, 58 replies, in forum: PsychoSocial ME/CFS News
  7. JohnTheJack
    Thread

    SMILE trial data to be released

    EA/2018/ 0142 John Peters v the ICO and University of Bristol. The First Tier Tribunal finds for the Appellant. And orders the release of the...
    Thread by: JohnTheJack, Mar 12, 2019, 135 replies, in forum: PsychoSocial ME/CFS News
  8. daftasabrush
    Thread

    Canadian Consensus Criteria not suitable: PACE trial minutes

    Anyone got the follow-up info on this? A record of the communication and issues with the CCC (according to the author's views)? Which authors were...
    Thread by: daftasabrush, Mar 1, 2019, 4 replies, in forum: PsychoSocial ME/CFS News
  9. JohnTheJack
    Thread

    FOI request re PACE Cost-Effectiveness Analysis

    In response to the Expression of Concern, the Statement of the Authors says:...
    Thread by: JohnTheJack, Jan 3, 2019, 47 replies, in forum: PsychoSocial ME/CFS News
  10. Esther12
    Thread

    FOI request to QMUL on how they decided it would take too long to release information on the PACE trial

    Only just seen this (I google less frequently than I used to):...
    Thread by: Esther12, May 21, 2018, 1 replies, in forum: General ME/CFS News
  11. AR68
    Thread

    FoI request regarding an 'activist list' in the Sunday Times Magazine in May 2013

    I recently asked the Metropolitan Police Service about the existence of an 'activist list', alleged in an article by the late Michael Hanlon, that...
    Thread by: AR68, May 9, 2018, 43 replies, in forum: General ME/CFS News
  12. AR68
    Thread

    A series of PACE funding FoI requests

    Hello, First post, here goes... I recently placed a number of Freedom of Information requests with the funders of the PACE trial, named on the...
    Thread by: AR68, Apr 28, 2018, 60 replies, in forum: General ME/CFS News
  13. JohnTheJack
    Thread

    PACE trial TSC and TMG minutes ordered released

    Just received decision in the post. Not read it all but ICO has ordered release of TSC and TMG minutes.
    Thread by: JohnTheJack, Feb 21, 2018, 58 replies, in forum: PsychoSocial ME/CFS Research
  14. Kalliope
    Thread

    Trial By Error: QMUL and FOI; Nature and Cochrane; the Pineapple Fund

    QMUL and FOI; Nature and Cochrane; the Pineapple Fund
    Thread by: Kalliope, Feb 13, 2018, 89 replies, in forum: General ME/CFS News
  15. Kalliope
    Thread

    UK Columns News - about false harassment accusations by ME-patients

    About Tymes Trust's FOI-request revealing Wesseley and Crawley with false claims of harassment by ME-patients. From 37.30 - 39.33 [MEDIA]
    Thread by: Kalliope, Nov 12, 2017, 14 replies, in forum: General ME/CFS News
  16. Liv aka Mrs Sowester
    Thread

    Tymes Trust - No reported harassment of staff at Bristol University

    Esther Crawley seems to have been caught telling porkies: [MEDIA] Report here: http://www.tymestrust.org/pdfs/noharassmentbristol.pdf James Coyne...
    Thread by: Liv aka Mrs Sowester, Oct 29, 2017, 177 replies, in forum: PsychoSocial ME/CFS News
Showing results 1 to 16 of 16