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  1. Binkie4
    Thread

    Implementation of the NICE Guideline [NG206] on [ME/CFS] in England - Freedom of Information Findings Report - Action for ME, May 2023

    Posts have been moved from 3 threads: UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward UK NICE 2021 ME/CFS Guideline, published...
    Thread by: Binkie4, May 29, 2023, 57 replies, in forum: UK clinics and doctors
  2. Sly Saint
    Thread

    FOI Documents relating to NICE response to the US IOM report on ME/CFS in 2015

    NOT a recent FOI but from 2015 following the IOM report; many familiar names, thought it might be of interest here....
    Thread by: Sly Saint, Nov 16, 2021, 15 replies, in forum: 2020 UK NICE ME/CFS Guideline
  3. Sly Saint
    Thread

    NICE and Cochrane sign collaborative agreement to deliver ‘living’ guideline recommendations

    NICE and Cochrane have today (01st September 2021) signed a collaborative agreement which will help to deliver ‘living’ recommendations across the...
    Thread by: Sly Saint, Sep 1, 2021, 147 replies, in forum: Other health news and research
  4. JohnTheJack
    Thread

    REC advice on PACE trial data changed in favour of release

    I pursued this after the failure of PLOSONE to make the researchers hand over the data in compliance with the journal policy. The researchers...
    Thread by: JohnTheJack, Jul 11, 2019, 46 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  5. Kalliope
    Thread

    Trial By Error: FOI Response from Bristol about LP Study; Correction in BJGP about MUS

    FOI Response from Bristol about LP Study; Correction in BJGP about MUS Tuller has received a response to his FOI request with the University of...
    Thread by: Kalliope, Jul 1, 2019, 9 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  6. Andy
    Thread

    Monitoring treatment harm in [ME/CFS]: A freedom-of-information study of National Health Service specialist, 2019, McPhee et al

    Abstract The use of graded exercise therapy and cognitive behavioural therapy for myalgic encephalomyelitis/chronic fatigue syndrome has attracted...
    Thread by: Andy, Jun 27, 2019, 99 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  7. JohnTheJack
    Thread

    More PACE trial data released

    I first applied back in 2016. I went through review and then a complaint to the ICO and then all through last year I was in the process of an...
    Thread by: JohnTheJack, May 7, 2019, 238 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  8. JohnTheJack
    Thread

    KCL and the PACE data

    KCL also claimed that it doesn't hold the data in terms of the FOIA. The ICO upheld the KCL decision, so I appealed to the FTT. In the course of...
    Thread by: JohnTheJack, May 1, 2019, 8 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  9. JohnTheJack
    Thread

    Appeal to the FTT for information from QMUL rejected

    Decision here. https://www.dropbox.com/s/kc9ezxfk51t1eu5/014%20040419%20Decision.pdf?dl=0
    Thread by: JohnTheJack, Apr 4, 2019, 58 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  10. JohnTheJack
    Thread

    SMILE trial data to be released

    EA/2018/ 0142 John Peters v the ICO and University of Bristol. The First Tier Tribunal finds for the Appellant. And orders the release of the...
    Thread by: JohnTheJack, Mar 12, 2019, 135 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  11. daftasabrush
    Thread

    Canadian Consensus Criteria not suitable: PACE trial minutes

    Anyone got the follow-up info on this? A record of the communication and issues with the CCC (according to the author's views)? Which authors were...
    Thread by: daftasabrush, Mar 1, 2019, 4 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  12. Suffolkres
    Thread

    'Benchmarking' exercise by our local NHS

    Our local NHS provider and lead commissioner have stated they will be going through a 'Benchmarking' exercise... So I thought I would do a little...
    Thread by: Suffolkres, Feb 5, 2019, 7 replies, in forum: General Advocacy Discussions
  13. JohnTheJack
    Thread

    FOI request re PACE Cost-Effectiveness Analysis

    In response to the Expression of Concern, the Statement of the Authors says:...
    Thread by: JohnTheJack, Jan 3, 2019, 47 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  14. Esther12
    Thread

    FOI request to QMUL on how they decided it would take too long to release information on the PACE trial

    Only just seen this (I google less frequently than I used to):...
    Thread by: Esther12, May 21, 2018, 1 replies, in forum: General ME/CFS news
  15. AR68
    Thread

    FoI request regarding an 'activist list' in the Sunday Times Magazine in May 2013

    I recently asked the Metropolitan Police Service about the existence of an 'activist list', alleged in an article by the late Michael Hanlon, that...
    Thread by: AR68, May 9, 2018, 55 replies, in forum: General ME/CFS news
  16. AR68
    Thread

    A series of PACE funding FoI requests

    Hello, First post, here goes... I recently placed a number of Freedom of Information requests with the funders of the PACE trial, named on the...
    Thread by: AR68, Apr 28, 2018, 61 replies, in forum: General ME/CFS news
  17. Esther12
    Thread

    (Not very interesting) Tracey Brown/SAS 2015 submission to Independent Commission on Freedom of Information

    I was looking for something else and found this. Only really of interest because Brown/SAS are arguing here against restrictions to the use of the...
    Thread by: Esther12, Apr 15, 2018, 2 replies, in forum: Other health news and research
  18. JohnTheJack
    Thread

    Correspondence from the DWP for 2003

    I have previously shared the correspondence for 2004. Here it is for 2003. I am getting these as and when I can. There is a limit to how much...
    Thread by: JohnTheJack, Feb 28, 2018, 22 replies, in forum: General ME/CFS news
  19. JohnTheJack
    Thread

    PACE trial TSC and TMG minutes ordered released

    Just received decision in the post. Not read it all but ICO has ordered release of TSC and TMG minutes.
    Thread by: JohnTheJack, Feb 21, 2018, 58 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  20. Kalliope
    Thread

    Trial By Error: QMUL and FOI; Nature and Cochrane; the Pineapple Fund

    QMUL and FOI; Nature and Cochrane; the Pineapple Fund
    Thread by: Kalliope, Feb 13, 2018, 89 replies, in forum: General ME/CFS news
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