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Lessons from Myalgic Encephalomyelitis for Long Covid, 2022, Davenport et al

New online course on Medbridge: Lessons From Myalgic Encephalomyelitis for Long COVID presented by Todd Davenport, PT, DPT, MPH, OCS...

Thread by: ahimsa, Mar 2, 2022, 0 replies, in forum: Resources
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The Most Underfunded Disease at the NIH (Advocacy video by Winston Blick)

[MEDIA] Great video - one of the best I've seen. Winston has real skill. Maybe we can use it to our advantage. I'd like to see a UK version.

Thread by: InitialConditions, Feb 3, 2022, 1 replies, in forum: General Advocacy Discussions
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Online survey of the use of Transcutaneous Nerve Stimulation for ME/CFS, 2022, Physios for ME

This post has been copied and following posts moved from this thread: Physios for ME [MEDIA]

Thread by: Wyva, Jan 14, 2022, 24 replies, in forum: Recruitment into current ME/CFS research studies
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ME/CFS Alert with Llewellyn King and Deborah Waroff - Interview with Rivka Solomon, Episode 130

- In this episode Llewellyn King talks with Rivka Solomon, a longtime ME advocate and patient who lives in western Massachusetts. [MEDIA]

Thread by: Kalliope, Jan 3, 2022, 0 replies, in forum: General ME/CFS news
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John Chia Interview by Amy Proal and Enteroviruses in ME (Blogpost)

Hello Guys, I wrote a blogpost on enteroviruses in myalgic encephalomyelitis focusing on John Chia's research and with a section on historical...

Thread by: johnnydme, Dec 28, 2021, 0 replies, in forum: ME/CFS research news
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Dr Ron Tompkins interviewed by Gez Medinger, December 2021

Worth watching. [MEDIA]

Thread by: Jaybee00, Dec 15, 2021, 7 replies, in forum: ME/CFS research news
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Physio-pedia

physio-pedia pretty awful entry under chronic fatigue syndrome. the good news is it says that it is currently under review....

Thread by: Sly Saint, May 2, 2019, 4 replies, in forum: Resources
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The secondary school experiences of pupils with chronic fatigue syndrome; A retrospective account from young adults aged 18-25 (Winter 2020-2021)

The secondary school experiences of pupils with chronic fatigue syndrome; A retrospective account from young adults aged 18-25 (Winter 2020-2021)...

Thread by: Sly Saint, Dec 10, 2021, 1 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
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Differences between Autoimmune diseases vs Autonomic Nervous System disorders

[MEDIA]

Thread by: Mij, Nov 27, 2021, 0 replies, in forum: Other health news and research
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David Tuller interviews Adam Lowe about his experience as a lay member of the NICE ME/CFS guideline committee

Split from this thread: UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion _____________ @dave30th talks to...

Thread by: Andy, Nov 26, 2021, 45 replies, in forum: 2020 UK NICE ME/CFS Guideline
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EU Petition 2019 - opportunity to lobby for funding for ME research

A friend on mine (Evelien) has succeeded in getting a petition on ME accepted by the EU Parliament [link below*]. The petition highlights the...

Thread by: FMMM1, Jul 12, 2019, 150 replies, in forum: Petitions
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UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

This public thread is for general discussion of the much anticipated NICE 2021 ME/CFS Guideline including media and social media responses and...

Thread by: Science For ME, Oct 28, 2021, 958 replies, in forum: 2020 UK NICE ME/CFS Guideline
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Event: Respect and Shame in Healthcare and Bioethics, Dec 3rd 2021

Respect and Shame in Healthcare and Bioethics Workshop: Peter Schaber, University of Zurich – “Respect for the Patient’s Wishes.” + ECR...

Thread by: Sly Saint, Nov 8, 2021, 15 replies, in forum: General ME/CFS news
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The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

Moved from Six-month sequelae of post-vaccination SARS-CoV-2 infection: a retrospective cohort study of 10,024 breakthrough infections, 2021,...

Thread by: SNT Gatchaman, Nov 2, 2021, 166 replies, in forum: Blood (e.g. coagulation, cell stiffness)
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New Video: NICE pause ME/CFS guideline

[MEDIA]

Thread by: Adam pwme, Oct 18, 2021, 13 replies, in forum: General Advocacy Discussions
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This Week in Virology: Long COVID and ME/CFS with David Tuller

New interview by Vincent Racaniello with David Tuller! - David Tuller returns to TWiV to revisit his work to expose the methodological and...

Thread by: Kalliope, Oct 15, 2021, 0 replies, in forum: General ME/CFS news
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ME/CFS Alert with Llewellyn King and Deborah Waroff - Episode 128: Interview with Dr. Lucinda Bateman, Bateman Horne Center

"Interview with Dr. Lucinda Bateman, founder and medical director of the Bateman Horne Center in Salt Lake City, Utah. She is recognized worldwide...

Thread by: ahimsa, Oct 9, 2021, 0 replies, in forum: General ME/CFS news
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Interview with Dr. John Greally on his ME/CFS research he is fundraising for (ME/CFS advocate Liz Carlson also talks)

[MEDIA] Physician, geneticist, and researcher Dr. John Greally shares the groundbreaking chronic fatigue syndrome (ME/CFS) research that he and...

Thread by: Dolphin, Oct 6, 2021, 18 replies, in forum: ME/CFS research news
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Persistent clotting protein pathology in Long COVID/PASC is accompanied by increased levels of antiplasmin, 2021, Pretorius et al

" Inflammatory micro clots in blood of individuals suffering from Long COVID Date: October 4, 2021 Source: Stellenbosch University Summary:...

Thread by: Sly Saint, Oct 5, 2021, 34 replies, in forum: Long Covid research
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PEM - post exertional malaise very short video 2019

[MEDIA]

Thread by: Sly Saint, Sep 19, 2021, 3 replies, in forum: Post-Exertional malaise and fatigue

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