video

Split from this thread: UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion _____________ @dave30th talks to @adambeyoncelowe about the guideline review and his part in it. https://www.facebook.com/530121828/videos/938121200416367/

A friend on mine (Evelien) has succeeded in getting a petition on ME accepted by the EU Parliament [link below*]. The petition highlights the impact of ME on 2 million people in the EU and the lack of EU funding for ME Research. I'd be grateful if you would consider supporting it (and ask...

This public thread is for general discussion of the much anticipated NICE 2021 ME/CFS Guideline including media and social media responses and other organisations' press releases. The NICE ME/CFS Guideline Project documents page gives links to: the Final Guideline the Evidence Review the...

This thread has been moved from the News subforum and renamed following a published paper based on Cheston's work. Respect and Shame in Healthcare and Bioethics Workshop: Peter Schaber, University of Zurich – “Respect for the Patient’s Wishes.” + ECR presentation from Katharine Cheston...

Moved from Six-month sequelae of post-vaccination SARS-CoV-2 infection: a retrospective cohort study of 10,024 breakthrough infections, 2021, Taquet et al @Hutan thank you, I believe it's all coming together and Long Covid will have been instrumental. The Pretorius micro-clot finding is...

New interview by Vincent Racaniello with David Tuller! - David Tuller returns to TWiV to revisit his work to expose the methodological and ethical problems with the PACE trial, and the post-acute sequelae to SARS-CoV-2 infection, also known as long COVID.

"Interview with Dr. Lucinda Bateman, founder and medical director of the Bateman Horne Center in Salt Lake City, Utah. She is recognized worldwide as an expert in the diagnosis and treatment of ME/CFS. In this episode, Llewellyn King talks with Dr. Bateman about how she became involved in the...

" Inflammatory micro clots in blood of individuals suffering from Long COVID Date: October 4, 2021 Source: Stellenbosch University Summary: Researchers have found an overload of various inflammatory molecules, 'trapped' inside insoluble microscopic blood clots (micro clots), in the blood of...

Trigger warning: exercise (I suggest watching from 2:07 to 10:57, then 12:05 to 12:30.) This video from NHS cardiologist Dr Rohin Francis presents cardiovascular exercise testing in patients with heart failure (HF). The purpose is to assess whether they require a heart transplant. Shown in...

In August 2021, Dr. Bateman delivered a didactic to Nurse Practitioners and Physician Assistants where she addressed post-acute sequelae of COVID-19 (PASC), Long Haul COVID, ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome), and orthostatic intolerance/dysautonomia. In this lecture...

"THIS EVENT IS ONLINE ONLY. It will be held on Zoom, hosted by OMEGA. You will be sent a link to the meeting shortly before the start time to the email address you sign up with. This event is FREE. Any enquiries, please email enquire.omega@gmail.com. OMEGA is a support group for people with ME...

"Phil Murray had M.E. / Chronic Fatigue Syndrome for 8 years in his 30's. He's now living an active life in his 50's, running & rock climbing. Chat starts: 0:24 Interview starts: 0:48. He shares powerful & practical recovery insights and his passion for biomedical research. TIMESTAMPS...

David had read some of Leonard's publications including the study regarding problems with CBT when used with patients with ME/CFS. David also appreciated the research Leonard had done over the years examining case definitions. David believed that the work Leonard has done should be a foundation...

Unbelievable..............

"A wonderfully illustrated comic to explain Myalgic Encephalomyelitis/Encephalopathy (M.E) also known as Chronic Fatigue Syndrome (CFS) to other people." The video is 6 minutes long but easy to understand. Posted by ME Association. Full description on YouTube, below the video. I chuckled a...

The German/French TV channel ARTE premiered a documentary yesterday: "Living with Chronic Fatigue Syndrome". German and French can be chosen as languages, subtitles are available in English, Italian and Spanish. It can be viewed online here and will also come to YouTube...

Video: Fatigue, Pacing and PEM Management | Lessons from ME/CFS - With Dr Ben Marsh I know this video has been mentioned on another thread but I think it might have been missed by many and deserves a thread of its own. In Episode 3 of our expert interviews series, Dr Asad Khan talks to Dr Ben...