Video: Fatigue, Pacing and PEM Management | Lessons from ME/CFS - With Dr Ben Marsh
I know this video has been mentioned on another thread but I think it might have been missed by many and deserves a thread of its own.
In Episode 3 of our expert interviews series, Dr Asad Khan talks to Dr Ben...
asad khan
cbt
darren brown
get
gez medinger
long covid
management
marsh
me/cfs
pacing
patient experience
pem
physiotherapy
sue pemberton
symptoms
todd davenport
video
Presentation from Dr Cyndya Shibao including apparent early data from an unpublished pilot study into autonomic regulation of glucose in POTS.
Very interesting video for those of us here that experience postprandial (after eating) problems, I know these issues have been discussed a fair bit...
6th Annual Scientific Conference of the European Association of Psychosomatic Medicine (EAPM 2018) incl. several CFS studies
via Dr. Marc-Alexander Fluks
- In this episode, Llewellyn King and Dr. Walter Koroshetz, Director of the National Institute of Neurological Disorders at the National Institutes of Health, discuss the new goverment funding for long-haul Covid and its impact on ME/CFS research. Dr. Koroshetz is hopeful that the $1.15 billion...
Really just adding this to the calendar:
Topic: ‘Medically unexplained symptoms’: my clinical and research journey over 30 years
13th March 2019
Visiting speaker: Prof Trudie Chalder (King’s College London)
Chair: Prof Patrick Luyten
Location: G12, 1-19 Torrington Place...
"The Commons Work and Pensions Committee is investigating the gap between the employment rates of disabled and non-disabled people and how the Department for Work and Pensions can better support disabled people in the labour market.
This evidence session is expected to cover issues around...
Rivka on Twitter: "Tonight, the @PBS @NewsHour w/ @JudyWoodruff airs a piece on #MEcfs. Thx to an amazing @MassMECFS volunteer for this graphic. (Pix is of an @unrestfilm event yrs ago. Slide behind me is a statement of support for people w/ ME fr the entire Massachusetts Congressional...
Gunnar Olsson
Fatigue, exhaustion, ME and ACT
About psychology, energy and mitochondria - a new holistic view
This webinar (in Swedish) took place on 14 April 2021, and the recording has now been published. It's part of a series of free so called educational seminars presented by Bragée...
Links to posts linking to articles/videos:
Jan 2021 article in the Guardian
Apr 2021 article in the Guardian
Jul 2021 interview video
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Not sure if these have been posted in other threads but I think they are significant so I’m posting them in their own thread. For...
Description:
In this episode, Dr. Nina Muirhead, an Oxford-educated dermatologic surgeon and an ME patient, talks frankly with Llewellyn King about the diagnosis hole she fell into in Britain, how she coped with her deteriorated health, her wrenching private life (having to stay away from her...
Description:
Jessica Maya, a graduate student in the Genetics, Genomics, and Development Program at Cornell University in Maureen Hanson’s lab, talks about ME/CFS, the immune system response, and the fuels that energize immune cells to properly defend the body. This talk was adapted from...
Expert Forum on secondary COVID-19 impacts
Virtual Expert Forum with internal and external experts addressed the diagnosis, management, and prognosis of the most common lasting symptoms of COVID-19
14:10
Long-haulers and chronic fatigue
Trends in fatigue due to Secondary COVID Syndrome...
This is a 6 minute film created by Inga Topolnicki. I thought it was moving and impressively well made!
From the description:
An Existence Project is a short stop-motion animation about what it is like to live with mild or moderate Myalgic encephalomyelitis or chronic fatigue syndrome...
Graeme Jones and Annie Pettersson at Nordic Clinic Stockholm has interviewed Jonas about ME/CFS and his unique research. You can view or listen to the full interview below.
https://nordicclinic.se/interview-with-me-researcher-jonas-bergquist/
also on youtube
eta: in english
Hey
Someone anonymous from Norway have produced a very thorough two part series on different topics (PACE, Lightning Process etc.)
It has english subtitles so everyone can watch
In this episode Oved Amitay, who is the new CEO of the Solve ME/CFS Initiative and a pharmacologist by training, talks about the organization's research into the underlying causes of ME/CFS through the Ramsey Grant Program, and its data registry -- which he calls "a resource pool at the Solve...
We are excited to invite you to our International Health Tech Equity Conference brought to you by Students for Global Health Bristol held on Zoom.
A ticket will allow you to attend 3 plenary sessions and 2 interactive workshops from a choice of 12.
Certificates will be provided.
Please send...
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