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George Monbiot on ME/CFS, PACE, BPS and Long Covid

Discussion in 'General ME/CFS News' started by Robert 1973, Jan 8, 2021.

  1. Robert 1973

    Robert 1973 Senior Member (Voting Rights)

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    Links to posts linking to articles/videos:
    Jan 2021 article in the Guardian

    Apr 2021 article in the Guardian
    Jul 2021 interview video



    ************************
    Not sure if these have been posted in other threads but I think they are significant so I’m posting them in their own thread. For those who don’t know, this is what Wikipedia says about George Monbiot (who has over 393,000 followers on Twitter):









    George has also been asking for links to info on PACE etc. He’s had a lot of helpful replies, and @dave30th has tweeted and emailed him.

    Like Dave, I have emailed George in the past to try to get him to write about the SMC’s bias towards ME/CFS as George has previously been critical of the SMC on other issues (see http://www.lobbywatch.org/lm_george_monbiot.html). He didn’t reply to me then but it’s good to see him lending us his voice now.
     
    Last edited by a moderator: Jul 23, 2021
    Louie41, Ash, alex3619 and 48 others like this.
  2. Robert 1973

    Robert 1973 Senior Member (Voting Rights)

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    Update:


     
    Louie41, rainy, Agapanthus and 37 others like this.
  3. InitialConditions

    InitialConditions Senior Member (Voting Rights)

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    George is a great journalist with huge reach. He is mostly involved with Double Down News (also very good) these days, so an article may appear there.
     
    Louie41, Yessica, Forestvon and 21 others like this.
  4. strategist

    strategist Senior Member (Voting Rights)

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    Is anyone still skeptical that long covid would help ME/CFS gain visibility and credibility?
     
    Louie41, Yessica, Hutan and 17 others like this.
  5. Tia

    Tia Senior Member (Voting Rights)

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    Very pleased to see this. Great to have another person from the Guardian willing to actually listen and I really respect George Monbiot as a journalist.

    I'm not sure it will result in more funding or support long term but I do think it will help more people understand ME/CFS better which is a small win.
     
    Louie41, Forestvon, DokaGirl and 16 others like this.
  6. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    Louie41, Forestvon, DokaGirl and 15 others like this.
  7. John Mac

    John Mac Senior Member (Voting Rights)

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    It is helping but we only have a window of opportunity. People are fearful of catching the virus now but once the danger has passed they will look at long covid patients the way they looked at ME/CFS patients, people who are not as strong as them and just need to pull themselves together.
     
    Last edited: Jan 8, 2021
  8. Kalliope

    Kalliope Senior Member (Voting Rights)

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  9. Andy

    Andy Committee Member (& Outreach when energy allows)

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    Louie41, alktipping, Hutan and 19 others like this.
  10. Robert 1973

    Robert 1973 Senior Member (Voting Rights)

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    Yes, see tweet above. I also sent this:


    (Link for anyone who can’t access Twitter: https://www.dropbox.com/s/jroffc18kizqzzn/fiona_fox_ME_RCP_with_links.pdf?dl=0)

    I’ve also emailed him about these issues. He will have so much info now the challenge will be deciding what to include in a 900 word article. Maybe he could be persuaded to write a book.
     
  11. Barry

    Barry Senior Member (Voting Rights)

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    Jury's out, will have to wait and see.
     
  12. NelliePledge

    NelliePledge Moderator Staff Member

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    Just to say if anyone doesn’t normally do social media there are many positive comments in response to George Monbiot’s posts. but also as ever the usual mix of people who are advocating various “approaches” to ME including Lightning Process GET and so on. And the cynics and nasty people as well.

    So consider if you want to see the dodgy comments before going into the links.
     
  13. strategist

    strategist Senior Member (Voting Rights)

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    What appears to be happening is that patients are naturally recovering and the intervention is being given credit instead.
     
  14. Kalliope

    Kalliope Senior Member (Voting Rights)

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  15. Tia

    Tia Senior Member (Voting Rights)

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    Has George Monbiot shared that he is suffering from long covid? (Just curious.)
     
    Louie41, DokaGirl, Kitty and 2 others like this.
  16. Robert 1973

    Robert 1973 Senior Member (Voting Rights)

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  17. Tia

    Tia Senior Member (Voting Rights)

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    aha, thank you. That's good, I was hoping he wasn't unwell himself.
     
  18. strategist

    strategist Senior Member (Voting Rights)

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    I admit that I'm slightly worried that Monbiot will have the best intentions but make some mistake due to the complexity of the topic. Hopefully he'll send the article to an independent expert for review before the publication.
     
  19. Esther12

    Esther12 Senior Member (Voting Rights)

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    I think this is a difficult topic for a columnist to cover after a couple of weeks reading... and I have massive worries about the sort of 'expert' the UK Guardian would suggest.
     
  20. Barry

    Barry Senior Member (Voting Rights)

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    But at the same time we have been highly critical (correctly so) about the lack of, or extremely misguided, coverage in the mainstream UK media. So we have to run with this, albeit the noted concerns are very valid.

    Is it necessarily for the Guardian to designate which experts a journalist can consult? Or can a journalist still be a journalist and do their own research for who to consult?

    And yes, to expect someone to get everything right after just a few weeks to "tune in" would be unrealistic. The hope would be that for anything they get wrong, they do not get it seriously wrong. Would @dave30th be able to assist here?

    Might just possibly mark a change in UK media coverage ... long shot I know.
     

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