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media

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  1. ahimsa
    Thread

    “Science Journalism & Disability” Pop-up Panel & Discussion on Tuesday, November 15

    [I didn't know where to put this - please move if needed] Seen on twitter: a “Science Journalism & Disability” Pop-up Panel & Discussion is...
    Thread by: ahimsa, Nov 13, 2022, 0 replies, in forum: Research methodology news and research
  2. Andy
    Thread

    Reporting on chronic, and particular energy-limiting, conditions - Ed Yong

    The American reporter Ed Yong, who has recently written a number of well received articles on ME and Long Covid, has written a Twitter thread...
    Thread by: Andy, Sep 29, 2022, 1 replies, in forum: General Advocacy Discussions
  3. Esther12
    Thread

    Empathetic verification: covering ‘Long COVID’ in Norwegian newsrooms By Hanne Østli Jakobsen. 2022. Reuters Institute Oxford

    https://reutersinstitute.politics.ox.ac.uk/sites/default/files/2022-07/RISJ%20Paper_HanneO_Final.pdf?utm_campaign=Future%20of%20Journalism&utm_medi...
    Thread by: Esther12, Sep 20, 2022, 2 replies, in forum: Long Covid news
  4. ahimsa
    Thread

    Journalist Primer: How to Report on ME/CFS (from MEAction)

    I'm not sure how exactly our forum members might use this type of guideline, but I came across this recently and found it interesting. Link to...
    Thread by: ahimsa, Aug 20, 2022, 3 replies, in forum: Resources
  5. Andy
    Thread

    United Kingdom 2022: Action for ME (AfME) Consultation on media guidelines

    Post copied and some subsequent posts moved from United Kingdom: Action for ME (AfME) news Consultation on Media Guidelines for M.E. "This...
    Thread by: Andy, Aug 18, 2022, 23 replies, in forum: Advocacy Projects and Campaigns
  6. Sly Saint
    Thread

    Long Covid in the media and social media 2022

    Sian Griffiths is desperate to get back to work but feels "ashamed" the "fog of long Covid" has kept her off for the past 18 months. "I can't...
    Thread by: Sly Saint, Feb 8, 2022, 1,143 replies, in forum: Long Covid news
  7. PeterW
    Thread

    A Picture of_ME: media images of ME

    Hi All, Thank-you to those who completed a trial survey regarding images portraying ME in the media. Following yesterday's feedback, we have made...
    Thread by: PeterW, Feb 16, 2022, 7 replies, in forum: Advocacy Projects and Campaigns
  8. Sly Saint
    Thread

    Article Express: ‘I lost half my blood’: Woman recalls diagnosis of ‘mystery illness’ - it affects millions

    Pamela had to be hospitalised after she started regularly feeling under the weather. It wasn’t until later that Pamela was diagnosed with Chronic...
    Thread by: Sly Saint, Dec 14, 2021, 10 replies, in forum: General ME/CFS news
  9. Sly Saint
    Thread

    Misrepresentation of ME/CFS in Media Images: A Picture Tells a 1,000 Words. What Story Are We Telling?, 2021, McMillan et al

    August 2021 DOI:10.13140/RG.2.2.30505.72806 Conference: 2021 IACFS/ME Virtual Conference Authors Penelope McMillan, Penelope Del Fante,...
    Thread by: Sly Saint, Sep 18, 2021, 40 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  10. Dolphin
    Thread

    “It’s not all nice and fun”: Narrating contested illness on YouTube and Instagram, 2021, Groenevelt

    https://journals.sagepub.com/doi/full/10.1177/13634593211017187 Health: An Interdisciplinary Journal for the Social Study of Health, Illness and...
    Thread by: Dolphin, May 29, 2021, 6 replies, in forum: Other psychosomatic news and research
  11. Robert 1973
    Thread

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    Links to posts linking to articles/videos: Jan 2021 article in the Guardian Apr 2021 article in the Guardian Jul 2021 interview video...
    Thread by: Robert 1973, Jan 8, 2021, 343 replies, in forum: General ME/CFS news
  12. Sly Saint
    Thread

    “That's why they don't believe you, you don't look sick!”: Creating Medical Credibility and patient visibility for ME/CFS through Television

    by Giada Da Ros Abstract: Since the end of the 20th century, the Myalgic Encephalomyelitis / Chronic Fatigue Syndrome community tried to create...
    Thread by: Sly Saint, Jul 4, 2020, 8 replies, in forum: General ME/CFS news
  13. Andy
    Thread

    The Times view on taking myalgic encephalomyelitis seriously: Chronic Condition

    It has taken a long time for myalgic encephalomyelitis (ME), or chronic fatigue syndrome as it is also known, to be treated with the seriousness...
    Thread by: Andy, Jun 24, 2020, 24 replies, in forum: General ME/CFS news
  14. Sly Saint
    Thread

    Article: Wrexham woman's tribute to "brilliant" police officers who rushed to her aid amid medical emergency

    A WREXHAM woman has praised "brilliant" police officers who rushed to her aid in a medical emergency. Donna Vicary, from Rhos, has myalgic...
    Thread by: Sly Saint, Apr 28, 2020, 0 replies, in forum: General ME/CFS news
  15. MEMarge
    Thread

    Functional Neurological Disorders (FNDs) in the media

    Hospital, BBC 1, 19 March 2020 FND not ME On now, this is covering FND
    Thread by: MEMarge, Mar 19, 2020, 38 replies, in forum: Other psychosomatic news and research
  16. Sly Saint
    Thread

    UK media articles about Esther Rantzen (TV journalist) self-isolating with daughter who has ME

    Daily Mail article She's a broadcasting legend and a doting mother of three. And, Esther Rantzen, 79, has revealed she is self-isolating at her...
    Thread by: Sly Saint, Mar 16, 2020, 11 replies, in forum: Epidemics (including Covid-19, not Long Covid)
  17. Eagles
    Thread

    Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal

    Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients...
    Thread by: Eagles, Feb 29, 2020, 74 replies, in forum: General ME/CFS news
  18. Cinders66
    Thread

    Lancet photo competition for “original photographs that bring a fresh focus to a health story” -potential opportunity for awareness?

    https://hubs.ly/H0lhw1C0 given that using the media to change perceptions about our illness has been the focus of quite a lot of campaigning, i...
    Thread by: Cinders66, Oct 22, 2019, 4 replies, in forum: Advocacy Projects and Campaigns
  19. Sly Saint
    Thread

    Psychologists financially ruined after joining failed counselling franchise - July 2019 ABC Australia

    As a psychologist, Nihal Kucuk has spent the last 16 years helping clients overcome stress, but now the Gold Coast practitioner is the one under...
    Thread by: Sly Saint, Jul 24, 2019, 5 replies, in forum: Other health news and research
  20. Sly Saint
    Thread

    Guardian - "Why smelling good could come with a cost to health" May 2019

    About 4,000 chemicals are currently used to scent products, but you won’t find any of them listed on a label. Fragrance formulations are...
    Thread by: Sly Saint, May 29, 2019, 4 replies, in forum: Other health news and research
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