media

" A charity has been forced to cut its services for hundreds of young people - many of whom are housebound. ME North East says it has been unable to find the cash it needs and is desperately seeking new funding so it can continue to offer support to help youngsters stay in education, fight...

" Myalgic Encephalomyelitis, chronic fatigue syndrome, CFS/ME. These are just a few terms to describe one of the most destructive illnesses known to man. Manifesting as unrelenting fatigue and profound pain, ME/CFS is destroying the lives of 250,000 people in the UK. One in four are so...

For years dismissed as 'laziness', but now cruel disease is finally getting attention it deserves Rochdale News: "Now a three-hour Westminster Hall debate on Thursday afternoon (21 June, 1.30 to 4.30 pm), supported by the ME Association and other charities, will discuss treatments and research...

The Institute of Social and Cultural Anthropology (University of Hamburg) shared this video on facebook today. "John Oliver discusses how and why media outlets so often report untrue or incomplete information as science."

well that's a new name! Liverpool Echo article "A young hairdresser who “loved life” said he lost everything after ME robbed him of his ability to do his job and left him housebound. Brendan Boyd developed the condition, characterised by relentless exhaustion, in 2011 after he caught a virus...

May 13 2018 "Christchurch resident Melissa Bailey shares how she copes with the debilitating disease M.E." "I've learned a lot about the human heart and how terribly judgmental people are. Many years ago I was one of those judgmental people who on a school camp, came across a parent lying on...

" A young mum who described herself as a party animal adrenaline junkie was left unable to cook, clean or wash herself by a disease some doctors don't think is real. Chantelle Parry, 31, fell ill with glandular fever two years ago. This set in motion a downward spiral that eventually led her...

" LOUGHBOROUGH MP Nicky Morgan has said she will work in Parliament to raise awareness of the devastating illness, ME. She spoke after joining viewers at a town screening of Unrest, an Oscar-shortlisted film by Harvard graduate Jen Brea which documents her life as a patient with Myalgic...

" THIS week marks ME Awareness Week, culminating in a campaign day called ‘Millions Missing’ in cities across the world. Leamington and Stratford Observer deputy editor Laura Kearns is using this as a chance to speak out about her battle with the illness and talk to others with the condition...

" 1st May 18 Libby is one of the youngest people in the UK to develop the chronic fatigure condition. A mum has spoken out about her 11-year-old daughter’s heartbreaking loneliness, after chronic fatigue condition ME transformed her from a sport-loving livewire into a virtual recluse. One of...

"By Charlie Moore For Daily Mail Australia Published: 06:46, 30 April 2018 | Updated: 08:23, 30 April 2018 Burning skin, forgetting how to speak and chronic exhaustion: Push for national inquiry into mystery disease - that could be hiding in your home A leading doctor is calling for a...

" What is Lyme disease? How ticks spread the disease, and the symptoms to watch out for Natasha Holt Lyme disease is an infectious illness spread by the bite of ticks, with around 3,000 new cases in the UK every year. But the symptoms of the disease can often be mistaken for other conditions...

So many things I don't like about this article but thought I would leave it up to Australian advocates to pick up on. " Running to raise awareness Shepparton chronic fatigue sufferers have joined forces and will take part in a weekly parkrun event ahead of a national awareness day next...

" A 25-year-old beauty queen Elisha Hudson from Norfolk met with an unfortunate fate as she recently got diagnosed with an untreatable brain tumor following a series of terrible headaches. After often feeling exhausted and depressed for days that led her to quit her job, the recently crowned...

http://www.pbs.org/video/chronic-fatigue-syndrome-7rquhm/ I can’t find this posted....sorry if it is. It’s around 25 minutes and includes an ME advocate. Ron Davis is mentioned and a brief history of ME, including cluster outbreaks.

"ABSTRACT ME (also known as chronic fatigue syndrome), a medical disorder of unknown aetiology, generated considerable media attention in the late 1980s and during the 1990s. Patients insisted they suffered from an organic disease, while certain lay and medical commentators construed the...

" Journalism’s a funny old trade. It’s sometimes difficult to get a sense of what difference, if any at all, your reporting is having. Indeed, in my experience, a lengthy and difficult investigation that uncovers a scandal or wrongdoing can illicit less feedback than a quirky ‘and finally’...

"Fibromyalgia/CFS patients fighting for awareness of career-ending illness For years medical profession has questioned if fibromyalgia or chronic fatigue syndrome are real Peter Dawe says fibromyalgia and chronic fatigue syndrome — diseases that can cause debilitating exhaustion, joint and...

(mods: if this is the wrong forum please move it. wasn't sure where it belongs.) Stumbled on this artist and thought some of Avogado6's illustrations would be so helpful in media coverage in place of the usual limp female holding her head...

Not terrible, I suppose. http://www.mirror.co.uk/news/real-life-stories/my-body-shut-down-woman-11620598