media

Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal their daily struggle with the crippling condition...

https://hubs.ly/H0lhw1C0 given that using the media to change perceptions about our illness has been the focus of quite a lot of campaigning, i was wondering whether this Could be used by our community? How to submit: https://hubs.ly/H0lhw1C0

article here: https://www.abc.net.au/news/2019-07-23/life-resolutions-psychology-franchise-liquidation/11285548

full article here https://www.theguardian.com/us-news/2019/may/23/fragrance-perfume-personal-cleaning-products-health-issues

From Recovery in the Bin full article here https://www.theguardian.com/commentisfree/2019/may/14/mental-health-services-crisis-patients-vulnerable-off-rolled?CMP=Share_iOSApp_Other

@Ravn brought this article in a NZ magazine to our attention in the New Zealand thread. Marc Wilson is a regular columnist in the Listener, a mainstream magazine in New Zealand that is currently claiming to be New Zealand's Bestselling Current Affairs Magazine (although I imagine a lot of...

Woman, 28, goes from keen runner to year in dark room because of severe disorder Jonathan admits he has seen his beloved fiancée’s character slowly slip away without any real support from the NHS in Wales. “The only things offered by the doctor were antidepressants, which made Natalie’s ME...

Merged threads "The charity, reMEmber, for people with ME (Chronic Fatigue Syndrome), has been awarded the grant by the Sussex Community Foundation for its Clinical Network and Children’s Service Project."...

Paywalled at https://www.tandfonline.com/doi/abs/10.1080/14680777.2019.1595694 Sci Hub, https://sci-hub.se/10.1080/14680777.2019.1595694

Not a particularly bad article that quotes #MEAction a lot (The Myalgic Encephalomyelitis Action Network). However, I question the bit at the end re Lady Gaga being an ME/CFS sufferer (I thought she had Fibromyalgia(?)) @JaimeS But then looking through it again, in the middle of the article is...

Tyler Wright Withdraws From First Half Of The 2019 Season https://motionsmag.com/news/tyler-wright-withdraws-from-first-half-of-the-2019-season/

not very well written (a couple of half-quotes that don't make much sense). Also, although it initially says a 'crippling rare illness', at the end it gives the 250,000 UK and 17m figure worldwide........'rare'?? there is also an instant poll to identify if readers are ME sufferers/know...

Jst scanning the front pages this mornin, to be sucker punched with this. i cant find the story online but i not too good so maybe someone ese can track it dowm https://www.bbc.co.uk/news/blogs-the-papers-47701676 scroll down to see it, bottom thumb nal on the i front page :(

Fréa Lockley: The establishment media has launched a vicious "war" on chronically ill people The media has upped the ante on a vicious and abusive war on chronically ill people. Doctors involved in the controversial PACE trial have lashed out, claiming they can’t continue their work because of...

https://www.theguardian.com/commentisfree/2019/mar/19/rod-liddle-disabled-people-hate-media-me

From last year but don't think it was posted. From the South China Morning post. https://www.scmp.com/lifestyle/health-wellness/article/2157439/why-me-or-yuppie-flu-aids-was-once-misunderstood-or also covers #MillionsMissing, Ron Davis, OMF shame we don't get coverage like this in UK. eta:

I often get the impression that Prof Simon Wessely, Prof Michael Sharpe and others from the Wessely School of psychiatrists prey on naive young journalists. I suspect these psychiatrists are using their skills in psychology to butter up the journalist, perhaps over a few beers in a bar, playing...

https://mrtopple.com/2019/03/18/the-media-is-waging-a-coordinated-war-against-chronically-ill-and-disabled-people/

Hi! This has been around for awhile yet I forgot about it til recently when I was looking for something simpler to send someone who kept commenting on how well I looked. I had given them a few examples how PEM in ME/CFS works (that I thought a person without ME would get) yet from their other...

https://www.theguardian.com/society/2019/feb/20/in-pain-all-the-time-will-there-ever-be-relief-for-women-with-chronic-life-changing-utis