media

  1. Sly Saint

    North Bristol NHS - Grieving parents become detectives after suspecting cover-up on son’s death

    https://www.mirror.co.uk/news/uk-news/grieving-parents-forced-hire-detective-13977167
  2. Sly Saint

    N. Bristol NHS: Grieving husband calls for full inquiry after mother-of-two, 49, dies of cervical cancer - despite being given the all-clear SIX times

    https://www.dailymail.co.uk/health/article-6691259/Family-demand-hospital-wide-cervical-cancer-inquiry-nurse-died-doctors-failed-spot-it.html
  3. ladycatlover

    University Times, An Unhealthy Mind can lead to an Unhealthy Brain (2019) Tadjine

    http://www.universitytimes.ie/2019/02/an-unhealthy-mind-can-lead-to-an-unhealthy-brain-lets-not-forget-that/ :eek: :rolleyes: :jawdrop: @Tom Kindlon, seeing as "The University Times is Ireland’s largest student newspaper" might this be of interest to you? And other Advocates from Eire.
  4. Andy

    The Mirror: Veterans with debilitating Gulf War Syndrome may have passed it on to children

    https://www.mirror.co.uk/news/uk-news/veterans-debilitating-gulf-war-syndrome-13911872
  5. Sly Saint

    Schoolboy, 14, struck down by ME during a football match – yet doctors dismissed his symptoms as him being a ‘lazy teenager’

    https://inews.co.uk/news/real-life/schoolboy-14-struck-chronic-fatigue-syndrome-cfs-myalgic-encephalomyelitis-me-football-match/
  6. Sly Saint

    (not a recommendation) What it’s like to live with chronic fatigue and depression

    As retweeted by AfME some bits are good, but " Action for ME continue to say that having a well informed GP to assist with both depression and ME is important. Having appropriate and different treatments are vital, so that the mental health treatments don’t make the neurological side of ME...
  7. Sly Saint

    Listening to your Body – A Cautionary Tale

    Article. " It’s 2019 and still very little is known about Chronic fatigue syndrome (CFS), also referred to as myalgic encephalomyelitis (or ME for short). It’s a medical condition that results in long-term fatigue and other symptoms that prohibit someone’s ability to carry out ordinary daily...
  8. Sly Saint

    A woman, 28, was left bed-ridden after her leaking breast implants made her hair fall out in clumps

    Article: January 8th 2019 " In brief Emma Owen had breast enlargement surgery aged 19 But soon after the operation she felt fatigued She suffered from pain, dizziness, hair loss and memory problems for nine years After learning her implants were leaking she decided to have them out Emma Owen’s...
  9. Cheshire

    Improving images used to depict ME/CFS

    Merged thread: 'Stock photos are terrible at depicting illness' http://www.slate.com/articles/health_and_science/medical_examiner/2017/11/stock_photos_are_terrible_at_depicting_mental_and_physical_illness.html They are particularly deplorable for ME... More threads on this topic Psychosocial...
  10. Sly Saint

    Bake-off Kim-Joy experience of working in NHS mental health

    Interview in the Guardian. full article here: https://www.theguardian.com/tv-and-radio/2018/nov/12/i-was-preety-much-mute-at-school-the-bake-offs-kim-joy
  11. Sly Saint

    Spain plans to ban alternative medicine in health centres

    Article in Guardian: full article here: https://www.theguardian.com/world/2018/nov/14/spain-plans-ban-alternative-medicine-health-centres
  12. Sly Saint

    The mould dodgers: How Australians are moving out of their homes and living in tents miles from civilisation to avoid coming into contact with fungus

    " Australians are going to extreme lengths to avoid coming into contact with mould. Known as 'mould avoiders', they are a group of individuals who become severely sick when they are around mould. Richard Barry, 32, has had to spend most of his days constantly aware of his surroundings in...
  13. Sly Saint

    Daily Mail article : Are you tired all the time? You could be ill

    " A quarter of the population claim to suffer from fatigue. But sometimes extreme tiredness can be hiding a more serious illness. It is easy to blame exhaustion on the stresses of an increasingly demanding lifestyle or work. But if after six months those feelings of exhaustion haven't gone...
  14. Simone

    Episode of Australian current affairs program, “Insight”, on ME/CFS on October 16, 2018

    There will be an episode of the Australian current affairs program, “Insight”, on ME/CFS on October 16. Insight is a panel discussion program which tends to try to highlight all sides of an issue. As such, the guests on the ME/CFS episode range from athletes who claim to have recovered, a...
  15. Barry

    Suggesting an additional advocacy direction

    I’m wondering if we might be missing a trick. I’m sure history will show us to be in a period of considerable and rapid change (even though it may not feel like it to us). Change means that advocacy opportunities can arise, but possibly easy to overlook when in the midst of such changes. We...
  16. Sly Saint

    (not a recommendation) Brave Mark hopes TV show appearance will inspire others - Ulster Herald

    from the Ulster Herald: " A BRAVE Omagh boy who has ME hopes his upcoming appearance on Children in Need will help inspire young people to ‘live life to the fullest’. Even though Mark McAnulla is only 13-years-old, he has courageously battled the side-effects of his ‘myalgic encephalomyelitis’...
  17. Joh

    Great German radio feature on ME

    (I'm a little late with sharing this as I was very unwell.) :emoji_headphones: An amazing German radio feature on ME was broadcasted on July 5. :) We don't get many media reports on ME and most talk about tiredness (as the official ICD term is in German "Chronic Tiredness Syndrome"), so that's...
  18. MSEsperanza

    BBC Wales are planning a story on ME

    BBC Wales are planning a story on ME: WAMES homepage: http://wames.org.uk/cms-english/
  19. Sly Saint

    Challenges I’ve Faced in Health Care as a Person with ME by Kate Singleton

    Speech she gave on May 12, 2018, at the Washington, DC Millions Missing Rally, with a few details added. ".......Prior to my ME diagnosis, I worked in healthcare for a decade as a healthcare social worker. I was a hospital trauma social worker, a case manager at a clinic for people with...
  20. Sly Saint

    My doctor told me I was just tired: 13 years later and ME has taken over my life

    Sally DohertySaturday 25 Aug 2018 2:06 pm " I wake late, drag myself out from under my duvet and stumble to the kitchen. It would be a relief to have breakfast in bed but my husband works full time. He’s left me a bowl and a spoon on the side, and a sandwich awaits me in the fridge for lunch...
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