1. Guest, our 'News in Brief' post for w/c 10th June can be found by clicking here.
    Dismiss Notice

Media articles on Westminster debate June 2018

Discussion in 'Advocacy Projects and Campaigns' started by Sly Saint, Jun 20, 2018.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    3,045
    Likes Received:
    25,639
    Location:
    UK
    For years dismissed as 'laziness', but now cruel disease is finally getting attention it deserves
    Rochdale News:
    "Now a three-hour Westminster Hall debate on Thursday afternoon (21 June, 1.30 to 4.30 pm), supported by the ME Association and other charities, will discuss treatments and research into the disease, which is estimated to cost the UK economy around £3.5billion in lost taxes, healthcare and benefit costs."
    "
    The debate, led by Carol Monaghan MP (SNP, Glasgow NW) and Nicky Morgan (Con), has had cross-party support and will be attended by local MP for Middleton and Heywood, Liz McInnes, who confirmed she intends to speak during the debate.

    Rochdale MP, Tony Lloyd confirmed that due to his role as a Shadow Cabinet member, he cannot participate in the debate, but will be watching closely.

    He said: “Unfortunately it is a Westminster Hall debate, I cannot participate as a member of the Shadow Cabinet. However, I will of course be watching the debate closely and with interest.”

    Ms Monaghan will call for more funding for medical research into the causes and mechanisms of the illness, which affects all ages, races and genders, and speak of the absence of effective treatment programmes."

    full article here:
    http://www.rochdaleonline.co.uk/new...ease-is-finally-getting-attention-it-deserves
     
    Inara, janice, MEMarge and 20 others like this.
  2. MeSci

    MeSci Senior Member (Voting Rights)

    Messages:
    1,606
    Likes Received:
    10,089
    Location:
    Cornwall, UK
    Is that per year?
     
    alktipping likes this.
  3. Andy

    Andy Committee Member & Outreach

    Messages:
    6,487
    Likes Received:
    48,184
    Location:
    Hampshire, UK
    janice, MEMarge, Dolphin and 5 others like this.
  4. alktipping

    alktipping Senior Member (Voting Rights)

    Messages:
    272
    Likes Received:
    1,376
    still being very polite about the abysmal pace trial why are journalists so reluctant to show this pseudo science is pure fraud with malicious intent.
     
    Inara, Wonko and Gecko like this.
  5. Andy

    Andy Committee Member & Outreach

    Messages:
    6,487
    Likes Received:
    48,184
    Location:
    Hampshire, UK
    English libel laws.

    If the journalist did make that claim in an article, and was then taken to court over it by somebody who could reasonably claim that they were defamed by it, the journalist would have to prove that the claim was correct, and being able to prove that 1. actual fraud took place, and 2. there was malicious intent would be very difficult to do.

    https://en.wikipedia.org/wiki/English_defamation_law
     
  6. Andy

    Andy Committee Member & Outreach

    Messages:
    6,487
    Likes Received:
    48,184
    Location:
    Hampshire, UK
    https://www.loughboroughecho.net/news/local-news/parliament-debate-treatment-patients-14801745
     
  7. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

    Messages:
    1,497
    Likes Received:
    10,139
    This in a nutshell. Note that you can also technically be sued for this if you say the same on Twitter, but journalists are a more obvious target. UK libel law is a nasty mess.
     
  8. Sean

    Sean Senior Member (Voting Rights)

    Messages:
    1,545
    Likes Received:
    12,793
    Sadly, and quite apart from libel laws, that is the smart position for them to take at this point. They cannot be seen to prejudge it, which I agree with. I would do the same in their position at this point.

    The media have a lot to answer for over this whole shit show, but now is not the time to be holding them to account for their part. They can be your worst enemy, but they can also be a powerful ally.

    One step at a time.
     
  9. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

    Messages:
    756
    Likes Received:
    7,568
  10. Diwi9

    Diwi9 Senior Member (Voting Rights)

    Messages:
    160
    Likes Received:
    1,413
    Is there no requirement to prove damages in the UK?
     
    alktipping, Sean and Esther12 like this.
  11. Andy

    Andy Committee Member & Outreach

    Messages:
    6,487
    Likes Received:
    48,184
    Location:
    Hampshire, UK
    Press release from the MEA
    http://www.meassociation.org.uk/201...or-cruel-death-sentence-disease-22-june-2018/
     
    alktipping, Jan, Inara and 16 others like this.
  12. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    3,026
    Likes Received:
    24,991
    Jan, Inara, MeSci and 17 others like this.
  13. BurnA

    BurnA Senior Member (Voting Rights)

    Messages:
    302
    Likes Received:
    2,413
  14. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    3,026
    Likes Received:
    24,991
  15. NelliePledge

    NelliePledge Senior Member (Voting Rights)

    Messages:
    2,890
    Likes Received:
    20,706
    Location:
    UK East Midlands
    It is written by John Siddle who is presumably the new part time PR adviser they were looking to recruit in the winter.
     
    Graham, Jan, Inara and 8 others like this.
  16. BurnA

    BurnA Senior Member (Voting Rights)

    Messages:
    302
    Likes Received:
    2,413
  17. Daisymay

    Daisymay Senior Member (Voting Rights)

    Messages:
    391
    Likes Received:
    4,389
    Compare and contrast the level of media coverage we've got so far with the media coverage for say a BPS brigade paper falsely claiming we can recover by merely changing thoughts and a bit of exercise or about vexatious patients harassing doctors who are bravely struggling against the odds to save these patients from themselves.

    We need the media dam to break big time.
     
    janice, Cheshire, EzzieD and 16 others like this.
  18. chrisb

    chrisb Senior Member (Voting Rights)

    Messages:
    1,801
    Likes Received:
    12,546
    Perhaps it just shows what the press can do if not spoon fed by the SMC. Very little.
     
    EzzieD, alktipping, Graham and 6 others like this.
  19. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    3,045
    Likes Received:
    25,639
    Location:
    UK
    From FB:
    "Luke Pollard
    Yesterday at 03:29 ·
    Hello #Plymouth - yesterday I spoke in the debate on Myalgic encephalomyelitis (ME), in Westminster Hall.

    First of all, I want to thank each and every one of you that sent me your experiences on ME ahead of the debate - we received countless emails, Facebook and Twitter messages.

    I did not have time to read them all out but I hope that the ones I read out reflect your views. In my speech I spoke about the need to address the invisibility of ME. That means better funding of research and education, an end to the PACE trials and more genuine effort by health professionals and Government to correctly diagnose and support those people with ME and their families. I used some of my speech to talk about ME in young people as many people shared with me their experiences of their children with ME.
    A common message interpreted when it comes to this illness is that individuals feel invisible and partly unfulfilled by the Government’s ignorance in relation to ME. This is why I believe we must do more and fight for the individuals that are struggling with Myalgic encephalomyelitis.

    The ME debate was really important and I was left in no doubt having sat through all three hours of it that this is a subject where there is cross-party pressure on Ministers to do the right thing. I will continue to stand up for people with ME in Plymouth.

    Can I thank you again for taking the time to send me your views, thoughts, experiences and suggestions. Keep in touch."
     
  20. Daisymay

    Daisymay Senior Member (Voting Rights)

    Messages:
    391
    Likes Received:
    4,389
    Thank you very much Luke Pollard and to everyone who got their MPs on board with the debate, sadly mine wasn't interested and just came out with the usual government type garbage.

    It's very heartening to hear Luke is wanting to continue to help too.

    Is it the case that we can't write to other MPs, that it is only our own MPs who we can correspond with? Or is that wrong?
     
    janice, alktipping, Inara and 6 others like this.

Share This Page