Daily Mirror article: "My body shut down" - Woman reveals her heartbreaking battle with Chronic Fatigue Syndrome

Not terrible, I suppose.

http://www.mirror.co.uk/news/real-life-stories/my-body-shut-down-woman-11620598

 

Hmm..still the old 'I worked hard to beat my ME' story that the papers love, lifestyle and management. Green smoothies and gluten avoidance and no mention of PEM in the symptom list at the end.

Overall it's a good piece to convey the seriousness of the disease and is sympathetic ...just all,the BS about hypnotherapy and meditation and stress/diet that is a bit off putting for me.

Perhaps I've just become a bitter cynic?

 

It's terrible. The word "recovered" is always bad in relation to ME/CFS. Maybe "doing better" or can "do more but not healthy".

Really, these people that get better because of what they did do so much damage to millions who have tried everything for decades.

 

It's always disappointing when it's worse than the crap you think it is.

 

I'd never heard of "iridology" before. Apparently, it's like phrenology, only for the iris.

https://en.wikipedia.org/wiki/Iridology


It seems like her onset dates to a virus in 2001, but she doesn't say exactly when she started to improve. The problem is that some people do seem to improve/recover in the first five years after onset. I've seen percentages of "recovery" in that period ranging from 5 to 20%. People who improve in that window are very likely to attribute their improvement to whatever they were doing at the time, but Dr. Bell has said that he couldn't find anything that separated those who improved from those who did not.

I know some dismiss the idea that it's possible to improve/recover from "real" ME/CFS, but it seems to happen in adolescents, so why not in some portion of adults?

The cruel thing about articles like this is that they suggest there's a path to recovery out there, if you'll just follow some "common sense" advice.

They should say that recovery is a high-odds crap shoot - that this person was just lucky - and that there are no good studies showing how to improve your chances.

 

I was one who improved in that 5-6 year window. I don't attribute it to anything. I didn't have the internet back then so saved a lot of money not trying 'hope in a bottle' stuff.

 

Yep, the standard psycho-morality play drivel. Just one more step and she will be blaming people born with Downs Syndrome or spina bifida for their plight because of some crime they committed in a past life.

 

There's always a bigger pile

 

Or a smellier one.