Several related threads have been merged. Link to the research protocol for the literature review here.
Story in the Australian news:
SAHMRI researchers in hunt to find cure for Chronic Fatigue Syndrome
WORLD-first research in Adelaide that involves taking the blood samples of donors every...
Open Medicine Foundation Canada:
https://www.omfcanada.ngo/?utm_source=email&utm_medium=news
I donate to the OMF - can now receive a Canadian tax receipt
ETA: It would be great to see some OMF funds going to Canadian ME researchers - there are collaborations, but I don't know if funds are...
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cell deformity
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history
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me/cfs
moreau
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organisation thread
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ron davis
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stanford mecfs initiative
usa
ABC - Finding hope for those living with Chronic Fatigue Syndrome - interview with Sue Collins, dr. Heidi Nicholl and prof. Ken Walder
Imagine going for a short walk one day and then the next morning you can't even get out of bed.
That's what life is like for some people living with what's...
The successful applicants for Australia’s $3m ME/CFS Targeted Call for Research (TCR) have been announced.
The successful projects:
Professor Sonya Marshall-Gradisnik
Griffith University
Grant: $1.46m
Project title: Ion channel dysfunction in the pathophysiology of Myalgic Encephalomyelitis/...
(I'm not entirely sure where to post this since it's neither biomedical nor psychosocial research...)
The Economic Impacts of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in an Australian Cohort
Shara Close, Sonya Marshall-Gradisnik, Joshua Byrnes, Peter Smith, Son Nghiem and Don...
https://www.abc.net.au/news/2020-06-13/flu-cases-drop-amid-coronavirus-restrictions-statistics-show/12332204
Interesting article social distancing has substantially reduced flu cases compared to previous years during winter season in Australia.
https://pursuit.unimelb.edu.au/articles/science-needs-to-look-inward-to-move-forward
I thought that the article was unduly positive about some of the attempts to improve things, but found the background on where things are now of interest, eg:
Ketra has been forced to live in an aged care facility due to her severe chronic fatigue syndrome. Unable to find suitable accommodation elsewhere, Ketra has had no choice but to stay, and now she's trapped inside as the coronavirus pandemic continues.
full article...
Australian Govt Dept of Health
What are other chronic conditions?
Some chronic conditions do not fit into larger condition groups such as respiratory, musculoskeletal or cardiovascular conditions.
Examples of other chronic conditions we are addressing include:
chronic fatigue syndrome (also...
Say No to the Cashless Debit Card!
If the cashless debit card (CDC) is rolled out across Australia, this will affect YOU!
The cashless debit card (CDC) is an income management program that has been trialled in a handful of sites around the country. The CDC is compulsory for all Centrelink...
"Join the Medically Unexplained Symptoms Reference Group
Date published: Feb 6, 2020, 18:45 PM
Summary
Contribute to producing a set of guiding principles on the clinical management of Medically Unexplained Symptoms (MUS).
Description
The following positions are available:
1x AFOEM Group...
Posted by Emerge Australia Apr 2019
Daniel Missailidis & Amber Jaa-Kwee - La Trobe University, Victoria University, Australia
transcript here:
https://mecfsconference.org.au/wp-content/uploads/2019/04/Day1Report.pdf
eta: video has english subtitles
eta2: Daniel Missailidis paper here...
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