australia

  1. Sly Saint

    Australia: RACGP: GET for CFS

    Very PACE trial based information. eg" Adverse effects Surveys by patient groups of their members have suggested that GET may be harmful to some people with CFS. However, this finding is believed to be due to inappropriately planned or progressed exercise programs, possibly undertaken...
  2. Sly Saint

    'Faceless monster, secret society': Women's experiences navigating ... Australia's National Disability Insurance Scheme (NDIS), 2021, Yates et al

    ‘Faceless monster, secret society’: Women's experiences navigating the administrative burden of Australia's National Disability Insurance Scheme Abstract Previous research has indicated that administrative burdens are particularly high in personalised funding schemes such as the Australian...
  3. Sly Saint

    Australia and New Zealand clinics: Specialised Health

    Copied post
  4. J

    National Centre for Neuroimmunology and Emerging Diseases ME/CFS conference, Griffith University, Australia, 2021

    NCNED 2021 Conference Thread
  5. Sly Saint

    Potential Implications of Mammalian Transient Receptor Potential Melastatin 7 in the Pathophysiology of ME/CFS, 2021, Du Preez, Staines et al

    Abstract The transient receptor potential (TRP) superfamily of ion channels is involved in the molecular mechanisms that mediate neuroimmune interactions and activities. Recent advancements in neuroimmunology have identified a role for TRP cation channels in several neuroimmune disorders...
  6. Sly Saint

    Impact of Life Stressors on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Symptoms: An Australian Longitudinal Study, 2021, Balinas,Staines et al

    Abstract (1) Background: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a complex, multifaceted illness. The pathomechanism, severity and progression of this illness is still being investigated. Stressors have been implicated in symptom exacerbation for ME/CFS, however, there is...
  7. Andy

    Properties of the Sickness Questionnaire in an Australian sample with chronic medically unexplained symptoms, 2021, Andreasson et al

    Abstract Sickness behavior including malaise, fatigue and increased pain sensitivity is thought to be adaptive and facilitate recovery from disease. However, it may also reduce functioning and health if symptoms persists, which is why validated instruments for its assessment are needed. We...
  8. J

    IACFSME 2021 Virtual Conference

    Live Twitter feed here
  9. ME/CFS Skeptic

    Characterising DSCATT: A case series of Australian patients with debilitating symptom complexes attributed to ticks, 2021, Schnall et al.

    Objectives(s): To characterise the clinical profile, aetiology and treatment responsiveness of ‘Australian Lyme’, or Debilitating Symptom Complexes Attributed to Ticks. Methods: Single-centre retrospective case analysis of patients referred to the Infectious Diseases Unit at Austin Health – a...
  10. Sly Saint

    Health, Wellbeing and Prognosis of Australian Adolescents with(ME/CFS): A Case-Controlled Follow-up Study, 2021, Josev et al

    Health, Wellbeing, and Prognosis of Australian Adolescents with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): A Case-Controlled Follow-Up Study Abstract Background: The purpose of this study was to follow-up an Australian cohort of adolescents newly-diagnosed with ME/CFS at a...
  11. Sly Saint

    ... atopy and autoimmune diseases are associated with functional dyspepsia and IBS, independent of psychological distress, 2019, Kolowski et al

    Population based study: atopy and autoimmune diseases are associated with functional dyspepsia and irritable bowel syndrome, independent of psychological distress Summary Background The pathogenesis of functional GI disorders (FGIDs) is uncertain. However, underlying immune activation and...
  12. Andy

    ..investigation of nutritional intake & supplement use in Australians with [ME/CFS] .. implications on health-related QOL, 2021, Weigel et al

    Full title: A preliminary investigation of nutritional intake and supplement use in Australians with myalgic encephalomyelitis/chronic fatigue syndrome and the implications on health-related quality of life Background: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex...
  13. DMissa

    Closed Recruiting: La Trobe University mitochondrial research.

    Hello everybody. I hope I haven't breached any formatting requirements for this forum category! I also hope that it's okay for me to post this directly. In an effort to find more recruits (Melbourne, VIC, Australia) I'm sharing the pwME recruitment flyer for some current and future work here...
  14. Hoopoe

    Immunological dysfunction persists for 8 months following initial mild-moderate SARS-CoV-2 infection, 2021, Phetsouphanh et al

    Preprint Abstract A proportion of patients surviving acute COVID-19 infection develop post-COVID syndrome (long COVID) encompassing physical and neuropsychiatric symptoms lasting longer than 12 weeks. Here we studied a prospective cohort of individuals with long COVID (the ADAPT study) compared...
  15. Andy

    The relationship between psychosocial trauma type and conversion (functional neurological) disorder symptoms: a cross-sectional study, 2021, Morsy

    Abstract Objective: Psychosocial trauma was associated with developing conversion disorder (also known as functional neurological disorder) before Freud, though why a particular symptom should arise is unknown. We aimed to determine if there was a relationship between trauma type and symptom...
  16. Hutan

    Spironolactone as a treatment for CFS in patients with positive Epstein Barr virus serology, 2020, Campo and Taylor

    https://onlinelibrary.wiley.com/doi/full/10.1111/imj.11_14849 (It's free access but I think it's just a poster) Jorge do Campo 1 and Vivienne Taylor 2 1 Noosa Hospital, Queensland, Australia 2 Ibuki Medical Centre, Noosa, Queensland, Australia Abstract Background: Epstein Barr Virus (EBV) is a...
  17. Andy

    Emerge Australia launch their online community [groups and forum]

    https://www.emerge.org.au/online-community
  18. Sean

    Australia – ME/CFS doctors

    Any recommendations for a good doctor/clinic in the SE corner of NSW (Monaro region), for a newly diagnosed patient in that area? Thanks.
  19. Dolphin

    Telepresence Robot Use for Children with Chronic Illness in Australian Schools: A Scoping Review and Thematic Analysis, 2020, Page et al

    https://link.springer.com/article/10.1007/s12369-020-00714-0 Published: 06 November 2020 Telepresence Robot Use for Children with Chronic Illness in Australian Schools: A Scoping Review and Thematic Analysis International Journal of Social Robotics (2020)Cite this article 9 Accesses...
  20. T

    Symptoms, function and quality of life in myalgic encephalomyelitis/CFS: an Australian based, cross-sectional study, 2019, Donnelly

    From: Dr. Marc-Alexander Fluks B.Sc. Thesis Kate Donnelly Source: University of Tasmania Date: December 2019, online September 2020 URL: https://eprints.utas.edu.au/35168/ https://eprints.utas.edu.au/35168/1/Donnelly_whole_thesis.pdf
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