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australia

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  1. rvallee
    Thread

    How chronic fatigue syndrome, also called ME/CFS, left Tony Wallace a shell of his former self - ABC News (Australian Broadcasting Corporation)

    A personal account of one man's life with ME. It lacks depth but it gives a good idea of the impact on quality of life. Some technical bits are a...
    Thread by: rvallee, Jan 13, 2020, 6 replies, in forum: General ME/CFS News
  2. Simone
    Thread

    Australian ME/CFS neuroimaging project receives $1.2m govt grant

    Dr Zack Shan (who has been working with the NCNED group at Griffith University, and is now based at University of Sunshine Coast) has been awarded...
    Thread by: Simone, Dec 9, 2019, 8 replies, in forum: BioMedical ME/CFS News
  3. MyalgicE
    Thread

    Australia due to get ICC guidelines by 2014

    From Clinicalguidelines.gov.au: Myalgic Encephalomyelitis - Adult & Paediatric: International Consensus Primer for Medical Practitioners 2012...
    Thread by: MyalgicE, Nov 29, 2019, 0 replies, in forum: Diagnostic Guidelines
  4. Simone
    Thread

    Applications open for Australian government’s $3m ME/CFS grant

    The Australian government is calling for applications for its $3m Targeted Call for Research (TCR) into ME/CFS. TCR’s function similarly to NIH’s...
    Thread by: Simone, Oct 22, 2019, 8 replies, in forum: BioMedical ME/CFS News
  5. MyalgicE
    Thread

    Anyone else’s submission to NHMRC (Australia) missing from website?

    A few people have reported that they made submissions to the NHMRC (Australia) on the draft advisory committee report, but their submission is...
    Thread by: MyalgicE, Oct 21, 2019, 1 replies, in forum: General Advocacy Discussions
  6. MyalgicE
    Thread

    Meet the Scientists: ACU occupational therapists

    Occupational therapist Dr Julie Hughes, who has published two papers on CFS, is supervising students at the Australian Catholic University doing...
    Thread by: MyalgicE, Oct 7, 2019, 0 replies, in forum: General ME/CFS News
  7. MyalgicE
    Thread

    Meet the Scientists: Dr Elisha Josev

    Hello, Dr Elisha Josev is clinician-researcher at the Murdoch Children’s Research Institute, Royal Children’s Hospital, studying investigating...
    Thread by: MyalgicE, Oct 7, 2019, 2 replies, in forum: BioMedical ME/CFS Research
  8. Sly Saint
    Thread

    Psychologists financially ruined after joining failed counselling franchise - July 2019 ABC Australia

    As a psychologist, Nihal Kucuk has spent the last 16 years helping clients overcome stress, but now the Gold Coast practitioner is the one under...
    Thread by: Sly Saint, Jul 24, 2019, 5 replies, in forum: Health News and Research unrelated to ME/CFS
  9. Sly Saint
    Thread

    ABC: Love and Chronic Fatigue Syndrome

    We all get tired of the whole dating game at times, but for people with Chronic Fatigue Syndrome (CFS) or Myalgic Encephalomyelitis (ME), it’s a...
    Thread by: Sly Saint, Jun 19, 2019, 11 replies, in forum: Relationships
  10. anniekim
    Thread

    Video clip of a Australasian conference on MUS, mentions ME.

    Moderator note: Thread moved from 'General ME/CFS News'. It’s interesting to listen to the last 2 minutes of this short 9 minute video, so...
    Thread by: anniekim, Jun 16, 2019, 109 replies, in forum: PsychoSocial ME/CFS News
  11. Sly Saint
    Thread

    Article - Dr Heidi Nicholl explains what we need to know about chronic fatigue syndrome - 7News June 2019

    "When people have MECFS, what most people are really surprised to hear is that about 25 per cent of people with it are either housebound or...
    Thread by: Sly Saint, Jun 11, 2019, 3 replies, in forum: General ME/CFS News
  12. MyalgicE
    Thread

    Australian teenager tells story of threats and mistreatment

    A young woman with very severe ME contacted me to help tell her story. Over the past couple of months she’s told her harrowing story of...
    Thread by: MyalgicE, May 10, 2019, 28 replies, in forum: General ME/CFS News
  13. MyalgicE
    Thread

    Letter template for Australia’s election

    Next month Australia is holding a federal election, so it’s a final chance to push for funding commitments. Here’s a letter template to make it...
    Thread by: MyalgicE, Apr 25, 2019, 2 replies, in forum: Advocacy Action Alerts
  14. MyalgicE
    Thread

    Architect designs home for severe ME

    Architect Anthony Clarke and pwME Anna Kerr spoke recently at the Emerge conference about designing homes taking into account our disease. I found...
    Thread by: MyalgicE, Apr 12, 2019, 1 replies, in forum: Lifestyle Management
  15. Sly Saint
    Thread

    Parliament of Australia - petitions and questions

    Parliament of Australia from the Minister for Families and Social Services, Mr Fletcher Thursday, 4 April 2019 Page: 87 Myalgic...
    Thread by: Sly Saint, Apr 5, 2019, 13 replies, in forum: General ME/CFS News
  16. MyalgicE
    Thread

    Australian biobank proposals sought

    The Mason Foundation are offering $1m over 5 years for a biobank or patient registry. The Mason Foundation are one of the biggest funders of...
    Thread by: MyalgicE, Apr 3, 2019, 0 replies, in forum: BioMedical ME/CFS News
  17. MyalgicE
    Thread

    NDIS: NDIA meeting with Emerge and ME Australia

    We met with senior executives from the National Disability Insurance Agency, who administer the NDIS. Here’s what happened in the meeting:...
    Thread by: MyalgicE, Mar 30, 2019, 18 replies, in forum: General disability topics and advocacy
  18. MyalgicE
    Thread

    Australia’s Health Minister Greg Hunt announces $3m for medical research

    Health Minister Greg Hunt announces $3 million for biomedical research funding for chronic fatigue syndrome!
    Thread by: MyalgicE, Mar 27, 2019, 37 replies, in forum: BioMedical ME/CFS News
  19. MyalgicE
    Thread

    Australian Greens party announce ME and CFS policy

    The Australian Greens party announced their policy on ME and CFS, it’s great news that they have a policy in the lead up to the upcoming federal...
    Thread by: MyalgicE, Mar 25, 2019, 13 replies, in forum: General ME/CFS News
  20. MyalgicE
    Thread

    ME Australia’s submission to the National Health and Medical Research Council on their draft report

    Hello, A few people expressed interest in reading ME Australia’s response to the draft report from the NHMRC Advisory Committee, I finally put it...
    Thread by: MyalgicE, Mar 25, 2019, 7 replies, in forum: Open Letters and Replies
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