australia

We are thrilled to share some exciting news with you! Thanks to the incredible generosity of the McCusker Charitable Foundation, and their commitment to advancing medical research, we are embarking on an unprecedented journey that promises to revolutionize the care of people with ME/CFS and Long...

Abstract Background: Some investigators believe that a proportion of chronically unwell patients, many with fatigue, have an underlying rickettsial disease. Aim: To investigate the prevalence of markers of rickettsial infection in patients with chronic illnesses. Design: Observational study...

job ad Australia https://www.jobs4physios.com.au/job//70043256/

Abstract Objective We examine deterioration in psychotherapies, as reported in the recent evaluation of the Australian Medicare Better Access initiative. Conclusion A focus on patients who experience poor clinical outcomes helps programs minimise harm and improve quality of care. The Better...

Abstract Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a multifaceted condition that affects most body systems. There is currently no known diagnostic biomarker; instead, diagnosis is dependent on application of symptom-based case criteria following exclusion of any...

Background The aim of this project was to identify the top 10 priorities for childhood chronic conditions and disability (CCD) research from the perspectives of children and young people with lived experience, their parents and caregivers and the professionals who work with them. Methods We...

The announcement of this study caused a firestorm on Twitter and continues to do so: With the exception of a "clever" acronym, nothing adds more to the credibility of a clinical trial than announcing "promising results" before it has even finished: Amid all the self-serving puffery and...

Moved posts Graded Exercise for Long Covid. How groundbreaking:

This paper is from 1995 Chronic fatigue syndrome and the athlete Abstract Chronic fatigue syndrome (CFS), previously known as myalgic encephalomyelitis, causes an athlete who was once energetic, competitive, and resourceful to become chronically exhausted, weak, and debilitated. The illness...

Full title: Multimodal MRI of myalgic encephalomyelitis/chronic fatigue syndrome: A cross-sectional neuroimaging study toward its neuropathophysiology and diagnosis Introduction: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), is a debilitating illness affecting up to 24 million...

https://www.aph.gov.au/Parliamentary_Business/Committees/House/Health_Aged_Care_and_Sport/LongandrepeatedCOVID Following a referral on 1 September 2022 from the Minister for Health and Aged Care, the Hon Mark Butler MP, the House Standing Committee on Health, Aged Care and Sport will inquire...

This pilot study will provide essential feasibility and acceptability data which will guide the use of active video games for people with ME/CFS to increase their physical activity levels. Physical activity promotion in this clinical population has been poorly and under-researched, and any...

Abstract Background ME/CFS is a disorder characterized by recurrent fatigue and intolerance to exertion which manifests as profound post-exertional malaise. Prevalence studies internationally have reported highly variable results due to the 20 + diagnostic criteria. For Australia, the prevalence...

Review pdf Question(s) Is exercise helpful in individuals with long COVID? Is post-exertional symptom exacerbation a risk in long COVID? https://aci.health.nsw.gov.au/__data/assets/pdf_file/0010/735562/Evidence-Check-Exercise-and-long-COVID.pdf

Details here: https://www.griffith.edu.au/__data/assets/pdf_file/0013/1523002/Recruitment-Neuroimaging-investigations-in-MECFS.pdf To facilitate sharing:

A chilling account by Robert Cockburn, an Australian journalist, of how he was harmed by unapproved experimental devices in an asthma trial at Sydney University’s Woolcock Institute of Medical Research. He sustained long-term respiratory and neurological injuries from one of the devices. When...

Aussie breakthrough on the long Covid condition that leaves sufferers with symptoms similar to 'traumatic brain injury (Daily Mail - no really) (Kynurenine) ETA: Dr Bruce Brew recently co-authored Recent advances in clinical trials targeting the kynurenine pathway (Pires et al, 2021)

https://mecfssa.org.au/news-events/current-sa-research SAHMRI Biomarkers for ME/CFS Study 2: 'Good Day/Bad Day' Study This research is a multidisciplinary approach to investigate ME/CFS which aims to take some blood, urine and faecal samples from 60 people (including 20 healthy controls)...

Clinical practice guide for assessment and management of adults withpost-acute sequelae of COVID-19 Guidance for NSW health clinicians https://aci.health.nsw.gov.au/__data/assets/pdf_file/0011/726878/ACI-CPG-for-assessment-and-management-of-adults-with-post-acute-sequelae-of-COVID-19.pdf...

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