australia

https://research.flinders.edu.au/rp/Blog/14483-A/new-opportunities-heart-foundation-partnership-engagement-grants-round-one-2020-now-open

Australian lifestyle https://www.theguardian.com/lifeandstyle/2020/jan/28/the-way-of-the-tired-person-life-rules-for-the-perpetually-exhausted Sometimes weariness is inevitable, but as one chronic fatigue sufferer has learned, when you can’t hit snooze on life there are ways of getting through...

Health-related quality of life in patients with myalgic encephalomyelitis/chronic fatigue syndrome: an Australian cross-sectional study https://link.springer.com/article/10.1007/s11136-019-02411-6

A personal account of one man's life with ME. It lacks depth but it gives a good idea of the impact on quality of life. Some technical bits are a bit off but it still adds up to a fair account of life with ME, how it unfolds, how much if affects, the social consequences, etc. I can say it very...

Interview starts at 2 hours 5 minutes: https://www.abc.net.au/radio/programs/rhiannapatrick/rhianna-patrick/11831752 Tweet from Mark Guthridge for those on twitter https://twitter.com/Dr_M_Guthridge/status/1214570526687006721

Dr Zack Shan (who has been working with the NCNED group at Griffith University, and is now based at University of Sunshine Coast) has been awarded a $1.2m grant to undertake an ME/CFS neuroimaging project. This is an NHMRC grant (NHMRC is the equivalent of NIH here in Australia), and it’s the...

From Clinicalguidelines.gov.au: Myalgic Encephalomyelitis - Adult & Paediatric: International Consensus Primer for Medical Practitioners 2012 Why are you developing this guideline?: The International guidelines are being reviewed to modify the content to suit the Australian medical context...

http://www.virology.ws/2019/11/07/viruses-that-jump-around/

The Australian government is calling for applications for its $3m Targeted Call for Research (TCR) into ME/CFS. TCR’s function similarly to NIH’s Request for Applications (RFA) in that they guarantee the funds go to the focus of the TCR and are designed to stimulate research in that area...

A few people have reported that they made submissions to the NHMRC (Australia) on the draft advisory committee report, but their submission is missing from the list published on the NHMRC website. Has this happened to your submission?

Occupational therapist Dr Julie Hughes, who has published two papers on CFS, is supervising students at the Australian Catholic University doing research into people with ME and CFS, conducting interviews on the impact. Chelsea Bartlett is the student doing the research and Rachel Makepeace...

Hello, Dr Elisha Josev is clinician-researcher at the Murdoch Children’s Research Institute, Royal Children’s Hospital, studying investigating short-term and long-term effects of paediatric ME and CFS (Jason et al definition) on brain structure and function...

Posts on this thread have been moved from different threads links added at the end of the posts The GP education program was possible thanks to a grant from ME/CFS Australia. Emerge Australia worked with ThinkGP, an organisation that offers free, continuing professional education for GPs in...

https://emerge.org.au/medical-research-future-fund-win-for-emerge-australia-epidemiology-and-health-economic-impacts-of-me-cfs/#.XYxesKjYo3E

http://www.virology.ws/2019/08/19/trial-by-error-my-interview-with-melbournes-dr-don-lewis/

article here: https://www.abc.net.au/news/2019-07-23/life-resolutions-psychology-franchise-liquidation/11285548

The final report from the NHMRC ME/CFS Advisory Committee has been released. There were more than 250 submissions received on the draft report during the public consultation process in Jan/Feb, which is one of the highest number of submissions they’ve received for a public consultation process...

Warnings that the Australian CFS guidelines were 'biased, out-of-touch and potentially harmful' were ignored. Thousands are receiving harmful medical treatment and denied disability support due to failure to update them back in 2012. Back in the 90s, the government saw a need for guidelines...

From their Facebook post https://www.facebook.com/MEAdvocacyNetworkAustralia/posts/2263143953753957

have only listened to the first 12 minutes. Not as trivialised as the description might suggest. Also has people phoning in. https://www.abc.net.au/radio/programs/the-hook-up-podcast/chronic-fatigue-syndrome-and-love/11218260