australia

Australian Draft Report Seeks Comments In an eagerly awaited draft report, an Australian advisory committee on ME/CFS has called for the development of up-to-date domestic clinical guidelines and an increase in biomedical research into the pathophysiology of the illness. The draft report, which...

Australia’s National Health and Medical Research Council (NHMRC) established an ME/CFS Advisory Committee in late 2017. The terms of reference for the committee were to report to the CEO about: the status of national and international research into ME/CFS gaps in research on ME/CFS. This will...

Announcement on Facebook from NCNED https://www.facebook.com/permalink.php?story_fbid=1453570698108723&id=301252900007181 Not yet available online from the journal as far as my Google skills could tell me.

Australia’s Health Minister, Greg Hunt, has met with us (ME Australia) twice about the urgent need for biomedical research funding and updated treatment guidelines. Minister Hunt had a second meeting with recently with ME Australia, this time along with Prof Paul Fisher, head of microbiology at...

Edit: This thread includes several other threads merged with it. Some earlier threads on this team's work: The Courier Mail: Australian scientists prove CFS is real and have discovered a test for it Dec 2017 to Jan 2018 Don Staines and Griffith Aug 2018 Australia - Parliamentarians learn...

Another good article by Sasha Nimmo: OZ Guidelines – Disability can be defeated through treatment full article here: https://meaustralia.net/2018/11/30/difference-between-australian-chronic-fatigue-syndrome-guidelines-and-me/

Emerge Australia CEO, Heidi Nicholl, and Sydney patient, Jade Barclay, appeared on the Today show on Channel 9 in Australia this morning. The segment runs for just over 10 mins. (Sorry, I can’t figure out how to embed the clip. Feel free to let me know if you do!)...

" Australians are going to extreme lengths to avoid coming into contact with mould. Known as 'mould avoiders', they are a group of individuals who become severely sick when they are around mould. Richard Barry, 32, has had to spend most of his days constantly aware of his surroundings in...

Australian government tender for clinical pathway development for tick related diseases https://www.tenders.gov.au/?event=public.atm.show&ATMUUID=04A87C7D-0E3F-EB19-7ABD47FD0E8FA550&fbclid=IwAR0BJ6W5-LXFY8tz0XySjVsJFHKoPE8ueJ1N8Ct24FhvXVgj9JO6sqJnjKs

An Australian Exchange with Professor Sharpe Below is an exchange between members of the Australian ME/CFS community and Professor Michael Sharpe. The open letter from patients and advocates was prompted by a tweet this week from Professor Sharpe that many considered offensive. He has since...

Sarah Jenette Knight1,2,3*, Jennifer Politis1,4, Christine Garnham1,4, Adam Scheinberg1,2,3,5 and Michelle Anne Tollit1,2,4,6 1Murdoch Children's Research Institute, Melbourne, VIC, Australia 2The Royal Children's Hospital, Melbourne, VIC, Australia 3Department of Pediatrics, The University of...

Article: " Bioglan homeopathic melatonin Big pharmaceutical companies, or 'big pharma', are synonymous with big medical production, big money and a big impact on the type of healthcare products we can access. One thing that's rarely expected from big pharma is homeopathic cures, which are more...

There will be an episode of the Australian current affairs program, “Insight”, on ME/CFS on October 16. Insight is a panel discussion program which tends to try to highlight all sides of an issue. As such, the guests on the ME/CFS episode range from athletes who claim to have recovered, a...

I was surprised to find this article posted on the ME/CFS Australia (SA) Inc site: http://www.sacfs.asn.au/ Sep 18, 2018 by Ernie Schramayr Hamilton Spectator " Exercise leads to a release of “feel good” hormones that makes most people feel energized, clear headed, invigorated. ............"...

Recently registered study https://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=375190

Excerpt from this article which appeared in a Australian mainstream newspaper today, to publicise the release of the findings of Emerge’s Health and Welfare patient survey. “Controversially, some Australian doctors are still prescribing a type of exercise treatment no longer recommended by the...

Emerge Australia conducted a health and welfare survey of 600 Australians with ME/CFS, and has released a 77 page report of the findings. The survey covers a range of topics, including time to diagnosis, key symptoms experienced, treatments which were useful. Link to report...

Adam Bandt 19 September at 16:53 · The effects of myalgic encephalomyelitis, or ME for short, are devastating enough to leave 25 per cent of sufferers housebound or bedbound and an estimated 75 per cent unable to work. But, there are no government programs supporting ME awareness in Australia...

A member of the Australian ME/CFS community was networking at a medical writers’ conference recently, and met Felicity Nelson, a medical writer who later expressed an interest in writing about issues with clinical guidelines for ME/CFS. This is the resulting article. “The tide is slowly turning...

" What should be considered in the design of a clinic to treat complex health conditions? By Cathie Powell Copyright © 2018 Bridges & Pathways. We have an urgent request for you to respond to this State Health Survey about ‘the need for a one-stop clinic for people with chronic and complex...