australia

  1. MyalgicE

    Australia: Medical research council asking for feedback on draft report

    Released on the Friday before Christmas, the Australia’s National Health and Medical Research Advisory Commission’s draft report on Myalgic Encephalomyelitis and Chronic Fatigue Syndrome is open for comment until Monday 18 February...
  2. Andy

    Australia: News from Emerge Australia

    Post on Facebook from Emerge. https://www.facebook.com/EmergeAustraliaInc/videos/10156541270639111/
  3. Simone

    ME/CFS International Research Symposium, March 2019, Australia

    Emerge Australia is hosting an international research symposium, 12-15 March 2019, in Melbourne, Australia. This symposium, “ME/CFS: The biological basis, diagnosis, treatment and management” is supported by funding from the Department of Health. Key speakers include Dr. Neil McGregor, Professor...
  4. Kalliope

    David Tuller: Trial By Error: Australian Draft Report Seeks Comment

    Australian Draft Report Seeks Comments In an eagerly awaited draft report, an Australian advisory committee on ME/CFS has called for the development of up-to-date domestic clinical guidelines and an increase in biomedical research into the pathophysiology of the illness. The draft report, which...
  5. Simone

    Australia’s NHMRC ME/CFS Advisory Committee draft report released for public consultation

    Australia’s National Health and Medical Research Council (NHMRC) established an ME/CFS Advisory Committee in late 2017. The terms of reference for the committee were to report to the CEO about: the status of national and international research into ME/CFS gaps in research on ME/CFS. This will...
  6. Andy

    A Systematic Review of Enteric Dysbiosis in CFS/ME, 2018, Du Preez et al

    Announcement on Facebook from NCNED https://www.facebook.com/permalink.php?story_fbid=1453570698108723&id=301252900007181 Not yet available online from the journal as far as my Google skills could tell me.
  7. MyalgicE

    Australian Health Minister meetings

    Australia’s Health Minister, Greg Hunt, has met with us (ME Australia) twice about the urgent need for biomedical research funding and updated treatment guidelines. Minister Hunt had a second meeting with recently with ME Australia, this time along with Prof Paul Fisher, head of microbiology at...
  8. H

    Australia: News from Griffith University, National Centre for Neuroimmunology and Emerging Diseases (NCNED)

    Edit: This thread includes several other threads merged with it. Some earlier threads on this team's work: The Courier Mail: Australian scientists prove CFS is real and have discovered a test for it Dec 2017 to Jan 2018 Don Staines and Griffith Aug 2018 Australia - Parliamentarians learn...
  9. Sly Saint

    Difference between Australian chronic fatigue syndrome guidelines and ME

    Another good article by Sasha Nimmo: OZ Guidelines – Disability can be defeated through treatment full article here: https://meaustralia.net/2018/11/30/difference-between-australian-chronic-fatigue-syndrome-guidelines-and-me/
  10. Simone

    ME/CFS segment on Australian Today Show Nov 13, 2018

    Emerge Australia CEO, Heidi Nicholl, and Sydney patient, Jade Barclay, appeared on the Today show on Channel 9 in Australia this morning. The segment runs for just over 10 mins. (Sorry, I can’t figure out how to embed the clip. Feel free to let me know if you do!)...
  11. Sly Saint

    The mould dodgers: How Australians are moving out of their homes and living in tents miles from civilisation to avoid coming into contact with fungus

    " Australians are going to extreme lengths to avoid coming into contact with mould. Known as 'mould avoiders', they are a group of individuals who become severely sick when they are around mould. Richard Barry, 32, has had to spend most of his days constantly aware of his surroundings in...
  12. M

    Tick-borne diseases in Australia

    Australian government tender for clinical pathway development for tick related diseases https://www.tenders.gov.au/?event=public.atm.show&ATMUUID=04A87C7D-0E3F-EB19-7ABD47FD0E8FA550&fbclid=IwAR0BJ6W5-LXFY8tz0XySjVsJFHKoPE8ueJ1N8Ct24FhvXVgj9JO6sqJnjKs
  13. Kalliope

    David Tuller: Trial By Error: An Australian Exchange with Professor Sharpe

    An Australian Exchange with Professor Sharpe Below is an exchange between members of the Australian ME/CFS community and Professor Michael Sharpe. The open letter from patients and advocates was prompted by a tweet this week from Professor Sharpe that many considered offensive. He has since...
  14. Sly Saint

    School Functioning in Adolescents With Chronic Fatigue Syndrome, 2018, Knight et al

    Sarah Jenette Knight1,2,3*, Jennifer Politis1,4, Christine Garnham1,4, Adam Scheinberg1,2,3,5 and Michelle Anne Tollit1,2,4,6 1Murdoch Children's Research Institute, Melbourne, VIC, Australia 2The Royal Children's Hospital, Melbourne, VIC, Australia 3Department of Pediatrics, The University of...
  15. Sly Saint

    Australian 'Big Pharma' company selling homeopathic products

    Article: " Bioglan homeopathic melatonin Big pharmaceutical companies, or 'big pharma', are synonymous with big medical production, big money and a big impact on the type of healthcare products we can access. One thing that's rarely expected from big pharma is homeopathic cures, which are more...
  16. Simone

    Episode of Australian current affairs program, “Insight”, on ME/CFS on October 16, 2018

    There will be an episode of the Australian current affairs program, “Insight”, on ME/CFS on October 16. Insight is a panel discussion program which tends to try to highlight all sides of an issue. As such, the guests on the ME/CFS episode range from athletes who claim to have recovered, a...
  17. Sly Saint

    (not a recommendation) What if exercise makes you worse?

    I was surprised to find this article posted on the ME/CFS Australia (SA) Inc site: http://www.sacfs.asn.au/ Sep 18, 2018 by Ernie Schramayr Hamilton Spectator " Exercise leads to a release of “feel good” hormones that makes most people feel energized, clear headed, invigorated. ............"...
  18. Andy

    Epidemiology of Multiple Somatic Symptoms in the community, and its association with illness related cognitions,2018,Jones et al

    Recently registered study https://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=375190
  19. Simone

    “Chronic fatigue syndrome - the 'missing people' enigma” - Australian news article

    Excerpt from this article which appeared in a Australian mainstream newspaper today, to publicise the release of the findings of Emerge’s Health and Welfare patient survey. “Controversially, some Australian doctors are still prescribing a type of exercise treatment no longer recommended by the...
  20. Simone

    Emerge Australia Health and Welfare Survey results

    Emerge Australia conducted a health and welfare survey of 600 Australians with ME/CFS, and has released a 77 page report of the findings. The survey covers a range of topics, including time to diagnosis, key symptoms experienced, treatments which were useful. Link to report...
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