australia

Warnings that the Australian CFS guidelines were 'biased, out-of-touch and potentially harmful' were ignored. Thousands are receiving harmful medical treatment and denied disability support due to failure to update them back in 2012. Back in the 90s, the government saw a need for guidelines...

From their Facebook post https://www.facebook.com/MEAdvocacyNetworkAustralia/posts/2263143953753957

have only listened to the first 12 minutes. Not as trivialised as the description might suggest. Also has people phoning in. https://www.abc.net.au/radio/programs/the-hook-up-podcast/chronic-fatigue-syndrome-and-love/11218260

Moderator note: Thread moved from 'General ME/CFS News'. It’s interesting to listen to the last 2 minutes of this short 9 minute video, so starting at 7 minutes, where one of the doctors, the Chairman I believe, poses a question as if he is a ME patient. The response illustrates the...

Hi all, I'm trying to gather evidence for permanency of ME/CFS. The health minister says that the NDIA are using the Australia 2002 guidelines. They're are pretty old and 5 years is a long time to wait with little support. I'm using evidence in the guidelines provided by the NHMRC to try...

full blog here http://www.broadagenda.com.au/home/millionsmissing-gender-bias-adds-to-the-burden-of-disease/

A young woman with very severe ME contacted me to help tell her story. Over the past couple of months she’s told her harrowing story of mistreatment, including two visits to psychiatric facilities. Right now she is in an awful situation, so sick she can’t tolerate people in the same room and...

Next month Australia is holding a federal election, so it’s a final chance to push for funding commitments. Here’s a letter template to make it easier for people with ME to write to their House of Representatives and Senate candidates...

Architect Anthony Clarke and pwME Anna Kerr spoke recently at the Emerge conference about designing homes taking into account our disease. I found it really fascinating and asked Anthony to write about it. Anthony also teaches architecture and Anna has gone to his classes to talk to students...

Parliament of Australia from the Minister for Families and Social Services, Mr Fletcher...

We met with senior executives from the National Disability Insurance Agency, who administer the NDIS. Here’s what happened in the meeting: https://meaustralia.net/2019/03/30/disability-agency-consults-on-me-and-cfs/

Health Minister Greg Hunt announces $3 million for biomedical research funding for chronic fatigue syndrome!

The Australian Greens party announced their policy on ME and CFS, it’s great news that they have a policy in the lead up to the upcoming federal election. We hope the two major parties do the same. Former senator Scott Ludlam started this work, continued by Senator Steele-John. The policy...

Hello, A few people expressed interest in reading ME Australia’s response to the draft report from the NHMRC Advisory Committee, I finally put it online: https://meaustralia.net/2019/03/25/draft-report-wrongly-claims-99-recover-from-chronic-fatigue-syndrome-and-me/

(Don't ask me anything about this - I'm just copying an email I received) Source: Australian Government Date: February 27, 2019 URL: https://www.grants.gov.au/?event=public.GO.show&GOUUID=8E688A94-D501-6184-7128C473FE3CD789 Current Grant Opportunity View - GO2361...

https://www.scu.edu.au/engage/news/2019/chronic-fatigue-syndrome-participants-wanted-for-aquatic-exercise-trial.php "“Currently there is no cure for CFS, and in some cases, the condition can persist for several years,” said co-researcher Dr Suzanne Broadbent from the University of the Sunshine...

Paywalled at https://adc.bmj.com/content/early/2019/02/23/archdischild-2018-316450

Merged thread Dr Christopher Armstrong is an Australian scientist researching Myalgic Encephalomyelitis (ME). He moved to California late last year to take up a position at the Open Medicine Foundation. Previously Dr Armstrong worked on biochemistry and molecular biology in the Bio21 Molecular...

New paper from Andrew Lloyd (of Dubbo studies fame and, more recently, Australia’s leading proponent of the psychosocial school). “The Invisible Burden of Chronic Fatigue in the Community: a Narrative Review” Authors: Scott Fatt, Eric Cvejic, Andrew Lloyd, Ute Vollmer-Conner & Jessica Elise...

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