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Australian Greens party announce ME and CFS policy

Discussion in 'General ME/CFS News' started by MyalgicE, Mar 25, 2019.

  1. MyalgicE

    MyalgicE Senior Member (Voting Rights)

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    The Australian Greens party announced their policy on ME and CFS, it’s great news that they have a policy in the lead up to the upcoming federal election. We hope the two major parties do the same.

    Former senator Scott Ludlam started this work, continued by Senator Steele-John.

    The policy platform is:
    $15m for biomedical research
    A national ME and CFS summit
    More funding for patient advocacy
    Better access to the national disability insurance scheme (NDIS)

    https://jordon-steele-john.greensmps.org.au/sites/default/files/ME and CFS Policy Doc.pdf
     
  2. Sean

    Sean Senior Member (Voting Rights)

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    :cool:
     
    MeSci and andypants like this.
  3. strategist

    strategist Senior Member (Voting Rights)

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    Is this the first political party to make ME/CFS part of its platform?
     
    rvallee, Medfeb, Hutan and 4 others like this.
  4. Michiel Tack

    Michiel Tack Senior Member (Voting Rights)

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    It says:
    So that would be 2.825 million per year. That seems like a lot for advocacy organizations. Is the 15 million figure also for a 4-year period?
     
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  5. pteropus

    pteropus Senior Member (Voting Rights)

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    it's a wonderful policy. extra gold stars for ex-senator Scott Ludlam, who got the ball rolling many years ago.

    three cheers for the collaborative efforts of many many australian advocacy groups & individuals, who contacted their local politicians, attended advocacy events, etc.
     
    Last edited: Mar 25, 2019
    MyalgicE, Sean, Snow Leopard and 8 others like this.
  6. Andy

    Andy Committee Member & Outreach

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    As far as I know, but I'm not really into politics.

    It may be useful to inspire others to do so though
     
    MyalgicE, Hutan, andypants and 2 others like this.
  7. Sunshine3

    Sunshine3 Senior Member (Voting Rights)

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    Any idea when this money will be released so that research can get going
     
  8. pteropus

    pteropus Senior Member (Voting Rights)

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    it's a proposal, not a done deal.

    the date for the next federal elections hasn't been announced yet (will be soon) - and it would need support from other parties, in both houses, because Greens are a minority party.

    there are other national issues that need to be addressed urgently, and any changeover of government will take time.
     
    Last edited: Mar 25, 2019
  9. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

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    Didn't the Scottish National Party have a conference motion on ME relatively recently? I seem to remember they rejected GET but fudged their response to CBT.
     
    Last edited: Mar 25, 2019
  10. Simone

    Simone Senior Member (Voting Rights)

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    As @pteropus said, it’s not a done deal. This is a policy platform by one of our minor parties. Its main benefit is political, because it allows advocates to challenges our major parties to match or better it.
     
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  11. BruceInOz

    BruceInOz Senior Member (Voting Rights)

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    In reality, the probabality that the Greens will actually ever be in a position to implement this is close to zero. They currently have one member out of 150 in the lower house. Their best case scenario is holding the balance of power in a minority government situation that may give them more influence.

    But nevertheless, it is wonderful to see a political party put something like this in their reelection platform (next election will be sometime this May).

    ETA. Sorry, managed to crosspost with @Simone .
     
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  12. MyalgicE

    MyalgicE Senior Member (Voting Rights)

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    Michiel Tack and rvallee like this.
  13. Andy

    Andy Committee Member & Outreach

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    Blog on this.
    https://ishoblog.com/2019/04/01/369/
     
  14. MyalgicE

    MyalgicE Senior Member (Voting Rights)

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    Unfortunately some misleading info from Emerge today said Labor matched Liberals’ election commitments.

    In fact their letter said they’ll wait for NHMRC advice, following advisory committee report, before deciding.

    No election commitment from either Liberals or Labor.

    The Budget already allocated $3m for research and $600k for Emerge, so we didn’t expect any further announcement from the Libs but were hoping from one from Labor.

    Emerge’s mistake unfortunately takes the pressure off Labor just when it should be on. Mistake.

    Here’s Labor’s letter to Emerge.
     

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