$50,000 for Australia’s Favourite Charities
Being Funded by MyGivingCircle and UBank
In 2018 we're giving $50,000 to Australian Charities, not-for-profits and community groups based on your votes! Voting in our current round closes June 30th and we give $22,000 to 40 of Australia's most loved...
The Young ME/CFS Australians 18-40 group are a group which get together online for regular video chats. They invited David Tuller to join them for a Q&A whilst he is in Australia. This is a recording of that chat. It lasts for approximately 1hr 15mins.
Thanks to Carla for organising the Q&A...
Social Justice interview with David Tuller on his ongoing Trial by Error series. Hour long.
2pm Sun 15 Apr 2018
http://radioadelaide.org.au/program/a-peace-of-the-action/
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Mason Foundation ME CFS Biobank Survey
The Mason Foundation is a charitable trust that supports medical and scientific research on myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). The Mason Foundation has engaged the Nous Group (Nous) to investigate the viability of establishing...
Trial By Error: My Australian Tour, Continued
11 APRIL 2018
By David Tuller, DrPH
http://www.virology.ws/2018/04/11/trial-by-error-my-australian-tour-continued/
So many things I don't like about this article but thought I would leave it up to Australian advocates to pick up on.
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Running to raise awareness
Shepparton chronic fatigue sufferers have joined forces and will take part in a weekly parkrun event ahead of a national awareness day next...
Video from University of Tasmania of lecture held by David Tuller April 4, 2018
Chronic Fatigue Syndrome (aka ME) - Challenging the accepted dogma through research journalism
Duration: 1 hour
Latest blog post:
Read the whole thing at:
http://www.virology.ws/2018/04/04/trial-by-error-a-terrific-piece-about-me-cfs-on-australian-tv/
I highly recommend watching the video, which is a lot easier to watch on YouTube (thanks, Andy!) - I couldn't control the Oz TV one:
In the interview...
Trial by Error: My time in Canberra
I’m in Sydney now, but last week I had a busy few days in Canberra. My hosts were the wonderful duo of Libby Steeper and Eleanor Flowers. They treated me like royalty and shepherded me around town to the various appointments they and others had organized.
https://www.griffith.edu.au/griffith-health/events/ncned-cfsme-2018
CFS/ME International Conference
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National Centre for Neuroimmunology and Emerging Diseases
26-27 November 2018
Crowne Plaze, Surfers Paradise, Queensland, Austraia
Earlybird Registration...
Trial By Error: Checking in from Melbourne and Canberra…
21 March 2018
By David Tuller, DrPH
http://www.virology.ws/2018/03/21/trial-by-error-checking-in-from-melbourne-and-canberra/
David Tuller will be interviewed on ABC Radio Canberra today at 10.10am (AEDT), which is in just under 30 minutes from now. This is the live link for anyone who sees the post in time.
http://www.abc.net.au/radio/canberra/live/
I will endeavour to the a link to the recording for anyone who...
Here is the video of the Q&A which followed the screening of Unrest in Melbourne on Sunday March 18. The panel members were:
Patient advocate: Anna Kerr
Melbourne Bioanalytics researchers: Chris Armstrong and Neil McGregor
Academic & journalist: David Tuller
PhD student: Fane Mensah
Thanks to...
There are three posts on Emerges FB in reverse order.
This is the correct order:
Video 1
Video 2
Video 3
note: you might need to turn the sound on.
hope this works, if not FB page is here
https://www.facebook.com/EmergeAustraliaInc/
Emerge has just posted this on FB.
"SBS is looking for people to go on camera who are severely affected with ME/CFS and have had difficulties with the NDIS. The Feed, a daily news and current affairs program on SBS Viceland, is making a 10-15 documentary about the latest research around ME/CFS...
Uncommon Sense with Amy Mullins
"Tuesday 13th March: US film director Jennifer Brea will talk to Amy about her Oscar-shortlisted documentary Unrest, which chronicles her experience and the experiences of many others who have gone "missing" – the sufferers of the significantly debilitating...
So our rabidly anti-welfare government managed a net reduction of just 0.22% (66/30056).
No doubt the lesson they will choose to take from this result is to make disability tests tougher for the next round welfare bashing.
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David Tuller will be touring Australia as part of his 12 month crowdfunded work for ME/CFS in mid-March. Event details are yet to be finalised, but he will be in Australia for 4-6 weeks. I will post updates of events to this thread as they are available.
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