Trial By Error: A Terrific Piece about ME/CFS on Australian TV | 4 April 2018 | David Tuller

Latest blog post:

Read the whole thing at:
http://www.virology.ws/2018/04/04/trial-by-error-a-terrific-piece-about-me-cfs-on-australian-tv/

I highly recommend watching the video, which is a lot easier to watch on YouTube (thanks, Andy!) - I couldn't control the Oz TV one:



In the interview, David says, "I got an email from a patient saying, 'Fewer of us are going to kill ourselves this holiday season, because of your work.' I felt like I had to continue. I felt like if I stopped, I'd be killing people."

The crowdfund link to support David's work: https://crowdfund.berkeley.edu/project/9730/donate

 

Wrong link Sasha

 

Well, I just watched that and it was superb. I cried when you cried, @dave30th!

Seriously, I'd pay thousands for something of this quality and with this content to be shown in the UK (apart from the guy saying CBT/GET works for some people but not everybody! ).

That PWME Susan (?) is a terrific advocate. Terrific job by both her and the other PWME (so sorry, can't remember her name).

 

Doh! Thank you. Fixed.

 

Alternative source for the video

 

Loads better @Andy, thanks - I put the YouTube link into my OP.

 

That's the best 10 minutes of video work on ME I've ever seen.

Sending gratitude and strength to all involved. More power to you

 

The donation link to support David's work again (I'll put this in my OP, which I should have done from the get-go):

https://crowdfund.berkeley.edu/project/9730/donate

 

Excellent video.

I'm ashamed to say, however, that until I watched it I had never given any thought to how David Tuller is coping with the work he is doing. He must be under absolutely enormous pressure. I hope that the pressure isn't going to make him ill.

 

That really is a terrific video. Thanks for sharing.

The content alone made it worth watching, but (having made a career in the field) I especially appreciated the artfulness The Feed team brought to this short film. Nicely done!

Bill

 

So moving, brilliant!

 

Excellent video, and a total tearjerker!
It is fantastic to see ever-higher-quality reporting hitting the media outlets.

 

Outstanding! Yep, a tearjerker. @dave30th and all concerned...thank you

 

Agree, I think it's important that we humanise the people working on our behalf, and working for the truth. Even when they produce null results or come up with dead ends, this is valuable.

I also hope that they take the time for self care and take breaks when needed if possible. Anything bad that happens is in no way related to their work or lack of it. The moral responsibility is on others.

Also, I wish they would read The Plague by Camus, as it explains the situation so much more deeply and better than I can.

 

+1

@dave30th You are not morally responsible for this situation nor resolving it. Please make sure you take care of yourself. There is no advantage to anybody in burning yourself out. Perhaps take a decent holiday when you have returned home from this latest round of travel, to recharge your batteries. Above all else, we need you to be objective and hard-nosed about the situation, including the claims we make.

Cheers

 

In my 'I'm rich!' fantasies, @dave30th, I not only pay the rest of your crowfund for the year but throw in a spa break!

 

Thanks, everyone, for your concern. I'm very touched by it. Since that piece ran, I've gotten some anxious messages about my health. So, yes, it was an emotional moment, but I wanted to reassure everyone that I'm fine. The interview must have lasted an hour or so, and I cried for like 45 seconds of it. In that clip, I was describing how I felt 2+ years ago, when I first got that e-mail. I'd never gotten an e-mail like that and it had a big impact on me. I do feel pressure sometimes because of what all of you have suffered, but I know--as @Sean reminds me--that I'm not morally responsible for what's gone on. I do have release mechanisms that serve me well--at home and on the road. I'm taking plenty of time for myself on this trip, as I do in life generally. So please try not to spend any of your energy worrying about my health or that I'll get sick or have a breakdown or whatever. I'm really ok. It is a complete privilege to be working on this project and I plan to continue.

 

Thanks you so much, David!! For everything that you do

I was really moved by the video, good to hear that you're ok

 

@dave30th What a lovely post! You are SO appreciated. It’s so nice of you to say that you feel privilege to work on this project...what a difference to how BPS people act towards us.

Just...THANK YOU for everything that you do for us and on our behalf.

You are a rock star!