australia

Adam Bandt 19 September at 16:53 · The effects of myalgic encephalomyelitis, or ME for short, are devastating enough to leave 25 per cent of sufferers housebound or bedbound and an estimated 75 per cent unable to work. But, there are no government programs supporting ME awareness in Australia...

A member of the Australian ME/CFS community was networking at a medical writers’ conference recently, and met Felicity Nelson, a medical writer who later expressed an interest in writing about issues with clinical guidelines for ME/CFS. This is the resulting article. “The tide is slowly turning...

" What should be considered in the design of a clinic to treat complex health conditions? By Cathie Powell Copyright © 2018 Bridges & Pathways. We have an urgent request for you to respond to this State Health Survey about ‘the need for a one-stop clinic for people with chronic and complex...

Your disease is real: Breakthrough in diagnosis of chronic fatigue syndrome Researchers found chronic fatigue syndrome and the related myalgic encephalomyelitis, or ME, is a calcium ion channel impairment condition. For those who are living with ME/CFS, the announcement proves the disease is...

"Don Staines explained that, given these findings, we could see that “recommendations to exercise patients are wrong” because it only places greater demand for calcium ions in the cells. This also explains why patients who meet the diagnostic criteria defined in the Canadian Consensus Criteria...

This article has just been posted to the ABC (Australia) website, ahead of a story on the current affairs show, 7.30, on the same network tonight. Based on the article, we are on tenter hooks about the story tonight...

https://coach.nine.com.au/2018/07/03/18/52/chronic-fatigue-syndrome-myalgic-encephalomyelitis The article is very good. Dr. Mark Guthridge is inerviewed about ME/CFS and the patient experience is well written. An accurate easy read.

https://meaustralia.net/2018/06/28/research-waste-in-me-and-cfs-trials/ University of Sydney’s Dr Sonia Lee looked at selective reporting in Myalgic Encephalomyelitis and chronic fatigue syndrome research. The study found psychosocial trials on ME and CFS are more likely to engage in selective...

Copied post My doctor once suggested I go to the exercise physiology clinic of Nathan Butler. Nathan Butler was involved in the PACE trial, presumably as a GET therapist, and had subsequently set up the Melbourne, Australia clinic, specialising in CFS and fibromyalgia. Back in 2015 or so he...

Paywalled at https://link.springer.com/article/10.1007%2Fs00421-018-3913-0

The Royal Australasian College of Physicians Annual Congress was held in May in Sydney https://www.racp.edu.au/fellows/resources/congress-presentations-2018 There was a Tuesday session on 'Medically Unexplained Symptoms - Is it all in your head?' with four speakers. Professor Lorimer Mosely -...

https://www.meaction.net/2018/05/22/who-is-advising-the-australian-government-on-me-and-cfs-research-and-treatment-guidelines/

This morning there was a segment on ABC Sydney radio, in which Dr Mark Guthridge, Senior Fellow at Monash University, and Dr Mark Donohoe, a Sydney GP who specialises in ME/CFS, were interviewed. Mark Guthridge gave an overview of some of the research, and Mark Donohoe spoke about his approach...

Merged thread Article in The Conversation today, by Dr Mark Guthridge, a senior research fellow at Monash University in Melbourne. https://theconversation.com/what-causes-chronic-fatigue-what-we-know-dont-know-and-suspect-94395

Open access at http://www.scirp.org/journal/PaperInformation.aspx?PaperID=84678

https://www.meaction.net/2018/05/21/just-invisible-medical-access-issues-for-homebound-bedridden-people/

Perhaps this article demonstrates the value of @dave30th 's recent awareness-raising trip in Australia. To the #MillionsMissing with ME/CFS, something remarkable is happening...

So, I encountered something unusual and was wondering if anyone else had as well. I was talking to someone from Australia who has a sleep disorder, and she was talking about graded exercise therapy that she'd been given for her issue. I started to protest that GET doesn't work in all...

https://meaustralia.net/2018/05/09/boost-for-people-with-me-and-chronic-fatigue-syndrome-thanks-to-parliament/amp

Australians with ME/CFS continue to be harmed by GET. If you’ve been harmed by GET, write a letter to one of our campaign targets (RACGP President, Dr Bastian Seidel, or Chief Medical Officer, Dr Brendan Murphy) or your local MP, to explain the impact of this treatment on you, and ask for...