1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for CFS here.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 18th March 2024 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

'Faceless monster, secret society': Women's experiences navigating ... Australia's National Disability Insurance Scheme (NDIS), 2021, Yates et al

Discussion in 'Other health news and research' started by Sly Saint, Dec 6, 2021.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,573
    Location:
    UK
    ‘Faceless monster, secret society’: Women's experiences navigating the administrative burden of Australia's National Disability Insurance Scheme

    Abstract
    Previous research has indicated that administrative burdens are particularly high in personalised funding schemes such as the Australian National Disability Insurance Scheme (NDIS), because these schemes are predicated on very high levels of self-advocacy. Administrative burdens tend to be inequitably distributed, thereby entrenching existing social inequalities.

    This is the first study to look at the lived experiences of administrative burden within the NDIS explicitly—and particularly those of women, who are underrepresented within the scheme. The research involved qualitative interviews with 30 women with disability who were either NDIS participants or had considered applying for the NDIS.

    We argue that like other marginalised groups, women with disability are experiencing significant administrative burdens within the NDIS, which are barriers to obtaining sufficient disability support. Based on this finding, we recommend the NDIS implement a gender strategy, as well as address burdensome administrative processes in general.


    https://onlinelibrary.wiley.com/doi/10.1111/hsc.13669?af=R


    (originally posted on the news from australia thread)
     
    Last edited: Dec 7, 2021
    alktipping, Ash and Peter Trewhitt like this.
  2. ola_cohn

    ola_cohn Established Member (Voting Rights)

    Messages:
    90
    Location:
    Australia
    That's an interesting paper! I'm glad someone's looking at this. It rings very true to me. I wonder how this compares country to country?

    Abstract
    Previous research has indicated that administrative burdens are particularly high in personalised funding schemes such as the Australian National Disability Insurance Scheme (NDIS), because these schemes are predicated on very high levels of self-advocacy. Administrative burdens tend to be inequitably distributed, thereby entrenching existing social inequalities. This is the first study to look at the lived experiences of administrative burden within the NDIS explicitly—and particularly those of women, who are underrepresented within the scheme. The research involved qualitative interviews with 30 women with disability who were either NDIS participants or had considered applying for the NDIS. We argue that like other marginalised groups, women with disability are experiencing significant administrative burdens within the NDIS, which are barriers to obtaining sufficient disability support. Based on this finding, we recommend the NDIS implement a gender strategy, as well as address burdensome administrative processes in general.
     
    alktipping, Ash, oldtimer and 2 others like this.
  3. Sean

    Sean Moderator Staff Member

    Messages:
    7,041
    Location:
    Australia
    Based on this finding, we recommend the NDIS implement a gender strategy, as well as address burdensome administrative processes in general.

    No doubt women have a harder time of it. But the scheme has been quite deliberately trashed for participants by our federal government over the last 8 years, just because 1) it was introduced by their political opponents, and 2) they hate any form of social security. The whole rest of the social security system is also being trashed.
     
    alktipping, Ash, oldtimer and 2 others like this.
  4. alex3619

    alex3619 Senior Member (Voting Rights)

    Messages:
    2,129
    NDIS is very hard to get for anyone with ME. They want lots of recent tests and reports, and mine were mostly from twenty to thirty years ago. I also faced losing my other supports unless I applied to NDIS, it was just about mandatory. So I had to apply with full knowledge it would fail, just so other supports remained.
     
    alktipping, Ash, oldtimer and 4 others like this.
  5. Sean

    Sean Moderator Staff Member

    Messages:
    7,041
    Location:
    Australia
    Can you expand on that?
     
    alktipping, Peter Trewhitt and Hutan like this.
  6. alex3619

    alex3619 Senior Member (Voting Rights)

    Messages:
    2,129
    Yes. Apparently all other disability funding schemes for home support were dependent on you not being on NDIS and either you applied or support was cancelled. I applied knowing it would fail. Then they switched my support funding to some new scheme (might not be because of NDIS though) so it would continue.

    Funny story, they organized a taxi for me to pick me up and take me to a meeting on this, and when the taxi arrived they didn't have a destination address. Neither did I.
     
    alktipping, Ash, oldtimer and 3 others like this.
  7. Hutan

    Hutan Moderator Staff Member

    Messages:
    26,520
    Location:
    Aotearoa New Zealand
    and what tests and reports are required?
     
  8. alex3619

    alex3619 Senior Member (Voting Rights)

    Messages:
    2,129
    Everything you got. I don't recall details, this was several years back. They want doctors reports proving disability, and dislike disability due to illness. It was geared toward major physiological damage as a cause of disability from what I gathered.

    I know one lady who got NDIS disability who had ME. It was a major struggle though, and needed lots of help with forms.
     
    alktipping, Ash, oldtimer and 3 others like this.
  9. Sean

    Sean Moderator Staff Member

    Messages:
    7,041
    Location:
    Australia
    alktipping, Ash, oldtimer and 3 others like this.
  10. ola_cohn

    ola_cohn Established Member (Voting Rights)

    Messages:
    90
    Location:
    Australia
    I agree with this. It's really a shame what's happened to ndis, how bureaucratic it is and how many people are left out of needed support.

    I haven't applied for ndis yet, but for any other aussies reading this, there's a very helpful facebook group "ME/CFS & the NDIS" with a number of people who have successfully applied for and received support through NDIS. Once I've been sick 5 years (from what I can tell you either have to be nursing home level care or sick for 5 years to get ndis for mecfs) I think my application and the process as a whole will be easier to face with the knowledge from that group. There's also a separate fb group for applying for dsp with mecfs that is very helpful.
     
    alktipping, Ash, alex3619 and 5 others like this.

Share This Page