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Australia – ME/CFS doctors

Discussion in 'Other clinics and doctors' started by Sean, Jan 28, 2021.

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  1. Sean

    Sean Moderator Staff Member

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    7,159
    Location:
    Australia
    Any recommendations for a good doctor/clinic in the SE corner of NSW (Monaro region), for a newly diagnosed patient in that area?

    Thanks.
     
    Last edited: Jan 28, 2021
    Sean, Jan 28, 2021
    #1
    Snow Leopard, MEMarge and Peter Trewhitt like this.
  2. Art Vandelay

    Art Vandelay Senior Member (Voting Rights)

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    Art Vandelay, Jan 28, 2021
    #2
    Dolphin and Sean like this.
  3. Sean

    Sean Moderator Staff Member

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    Thanks for those. I have passed them on.
     
    Sean, Feb 4, 2021
    #3
    Art Vandelay likes this.
  4. oroffey

    oroffey Established Member

    Messages:
    6
    Merged thread

    Australia (Sydney): ME/CFS doctor

    My partner has suffered with ME for the past 5 years and the doctor she has been working with recently move back to the UK.

    Does anyone have any recommendations for ME doctors in Australia (ideally Sydney)?

    Thanks Ollie
     
    Last edited by a moderator: Jan 11, 2023
    oroffey, Jan 11, 2023
    #4
    oldtimer, Hutan, Peter Trewhitt and 1 other person like this.
  5. Hutan

    Hutan Moderator Staff Member

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    I'm sorry that your partner is sick; she is lucky to have you.

    My personal opinion is that virtually all doctors claiming expertise in ME/CFS should be left well alone. I think it's best to just try to find the smartest, kindest GP near you, and expect nothing from them with respect to ME/CFS-specific care.

    I know it is hard to believe that it could possibly be true that there is no useful specific help to be had from medical professionals, and it certainly shouldn't be that way.

    Is there any particular treatment or care that your partner is wanting from a doctor?
     
    Last edited: Jan 11, 2023
    Hutan, Jan 11, 2023
    #5
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  6. oldtimer

    oldtimer Senior Member (Voting Rights)

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    Location:
    Melbourne Australia
    Hi Ollie. After many years of disappointments and wasted energy, and a large amount of money down the drain thanks to ME/CFS GPs, I agree completely with Hutan.

    All the best to you and your partner.
     
    oldtimer, Jan 11, 2023
    #6
    alktipping, RedFox, Hutan and 2 others like this.
  7. oroffey

    oroffey Established Member

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    Hi both - thank you for the quick responses. Yes I seem to be getting that picture from my partner and others.

    She currently takes a number of anti-virals and NAD+ injections - which both seem to work for her. I think she just wants someone she can talk through all options with in a safe environment
     
    oroffey, Jan 11, 2023
    #7
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  8. ukxmrv

    ukxmrv Senior Member (Voting Rights)

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    Something I found useful when living in Australia was to see doctors for specific symptoms.

    As an example I had BP/HR problems for years and been diagnosed with POTS previously using the "poor mans" test which wasn't taken very seriously by some doctors. When I saw a Cardiologist and had a proper TTT and a official diagnosis of POTS I was able to get some meds that helped me.

    That wasn't any easy thing to achieve though as the Cardiologist I was had no sympathy with people with ME and thought I was wasting his time. This was proved wrong and his attitude changed completely but the TTT never would have happened if I hadn't pushed effectively.

    Another doctor I saw was able to prescribe an anti-viral/pain meds combo that made a huge difference to my pain levels.
     
    ukxmrv, Jan 11, 2023
    #8
    alktipping, RedFox, oldtimer and 3 others like this.

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