Starts around 2.11.00 John Darvall. Interview with ME sufferer (ME for 20 years) Liz, who participated in pre PACE Frenchay trial in 2002....
We, the 25% ME group, would like to make our voices heard with regard to the use of Graded Exercise Therapy (GET) and Cognitive Behaviour Therapy...
NHS Health Research Authority: "It is not clear what ‘personal gain’ the investigators stood to make from the trial and, in particular, it is not...
How many protocols does this harmful GET trial need exactly? There's 5 on the website now. Is Action for ME supporting this street merging with...
Some revelations about shenanigans at NICE - the IAPT team is in charge of the NICE guidelines for ME/CFS - as flagged up by Hope 4 Fibro & ME...
The National Institute of Health and Care Excellence (NICE) is rewriting the UK ME guidelines. As part of this process, the Forward ME Group...
When you have fibromyalgia (FMS) or chronic fatigue syndrome (CFS or ME/CFS), it's common for well-meaning people to say things like, "If you'd...
So there's some news from Belgium. The government has extended its ME/CFS-convention until 2020. In parliament our Minister of Health said the...
This thread is intended for collecting evidence of harms from GET and other therapies that involve increasing activity and/or exercise....
Of all the confusing places to find this information, I found it on another exercise -is-medicine industry, CrossFit. (though they want to add...
Free full text: http://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx Reporting of Harms Associated with Graded Exercise...
Caroline Struthers' letter to Cochrane Governing Board I noticed on Anil about ME's Facebook page the following link:...
Another 'who said' post! I've got Vink's paper (2016). Even the PACE authors themselves say there was no difference between groups in lost...
The issue of GET and safety has of course been much discussed, especially regarding the the PACE trial authors' claims to have demonstrated its...
https://in.reuters.com/article/us-health-chronicfatigue-dispute/exclusive-science-journal-to-withdraw-chronic-fatigue-review-amid-patient-activist-...
I am delighted to announce a new ME project, Dialogues for a neglected illness, which Josh Biggs and myself, Natalie Boulton, will be working on,...
A blog about personal experience of PACE recommended 'treatments' published earlier this year. The PACE trial - a complaint. This is a tough...
The analysis of the 2017 Cochrane review reveals flaws, which means that contrary to its findings, there is no evidence that graded exercise...
In Dagens Medicine by Benedikte Monrad-Krohn Cochrane has taken dubious methodological steps, and the scientific background for the ME / CFS...
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